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Old 02-11-2005, 05:02 PM   #1
ajd ajd is offline
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Question help! what do i do now

well i had my mri results yesterday my doctor said theres nothing that is showing on there that could cause my pain so get off my arse and do something i know somthings wrong i dont have pain all down my leg for nothing and a grinding feeling in my lower back when i stand or sit it is the first test ive had done in the two years ive had it im wondering if the disc has leaked all of its contents out and im just left with an empty disc my pain got worst about 6months ago and lasted for 3 months it then resided to this dull deep ache so if my disc was burst if i was given a mri earlier perhaps he might of found somthing im so sad and deppressed now it has really dissheartend me i was so sure it would of shown somthing wrong i really dont know what to do i feel just like giving up have any of you out there had this happen to you negative test results and did they eventually find your problem please respound

Last edited by ajd; 02-11-2005 at 05:09 PM.

 
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Old 02-11-2005, 05:43 PM   #2
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Valley HB User
Talking Re: [B]help! what do i do now[/B]

Well, I think that the first thing I would do is find another doctor, it's bad enough to be in pain all the time without somebody telling you something like that. One doctor told me that nothing would help me, shots, surgery,nothing, and I felt like he didn't believe that I was in pain. Well, I found another doctor that did a discogram, and it showed up what was causing my pain, and I am scheduled for surgery on the 28th. Good luck, I hope you can find some help

 
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Old 02-11-2005, 08:53 PM   #3
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myspine HB User
Re: [B]help! what do i do now[/B]

Hi
Well I know it is frustrating... but this is when you say o.k. good-bye to this doctor and you find a different doctor with a different opinion. Do not let a doctor tell you by a MRI that you are not in pain and that you need to get over it He is failing you as a provider by doing that. I have learnd that the hard way. I listened to someone tell me that, said o.k., and lived this way until years later I found my doc., he does alot of spine revision work, and said lets do a few more tests and see where this is coming from. My original doctor said the MRI looks good and now the nerve damage after 12 years is irreversible. Do not let one doctor condem you to a life of pain. you have to take care of yourself and fight for yourself . Doctors are only people and they all have different opinions so get some more and find the answer to your pain. You will find it. Take care, and do not give up .
shelley

Last edited by myspine; 02-11-2005 at 08:55 PM.

 
Old 02-12-2005, 02:03 PM   #4
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Re: [B]help! what do i do now[/B]

I totally agree; wave bye-bye to this doctor and find someone else. When you are told you are NOT in pain it is time to find another doctor. The MRI does not always show a problem and any dr. worth his salt knows that. You may need to repeat the MRI using contrast; or there are other tests available.

Don't settle for bad advise.

Good luck, and please let us know how you are doing.

Carol
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Old 02-12-2005, 11:39 PM   #5
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TexasWildRose04 HB User
Re: help! what do i do now

[QUOTE=ajd]well i had my mri results yesterday my doctor said theres nothing that is showing on there that could cause my pain so get off my arse and do something i know somthings wrong i dont have pain all down my leg for nothing and a grinding feeling in my lower back when i stand or sit it is the first test ive had done in the two years ive had it im wondering if the disc has leaked all of its contents out and im just left with an empty disc my pain got worst about 6months ago and lasted for 3 months it then resided to this dull deep ache so if my disc was burst if i was given a mri earlier perhaps he might of found somthing im so sad and deppressed now it has really dissheartend me i was so sure it would of shown somthing wrong i really dont know what to do i feel just like giving up have any of you out there had this happen to you negative test results and did they eventually find your problem please respound [/QUOTE]

I can completely relate to you.... I have been having my pain since about a year ago this past December....when I originally went to my first doctor for my butt and leg pain...he diagnosed me with a torn hamstring... never did any Xrays or MRI... then sent me to physical therapy... when that didnt help and things got worse... and I kept telling him it was getting worse and my therapist had told me to ask him if it could be stemming from a problem in my back..well I ask the doctor what the therapist told me to.. and he still insisted ... NO! it was my hamstring....Sent me for a MRI of the hamstring. IT WAS NORMAL.. Of course!!!! Well I said, ENOUGH! and went to a Orthopedic Surgeon on my own... as soon as he examined me he said.. he was 100% sure it was in my back.... ordered a MRI.. sure enough a 9mm herniation at L5-S1... and a bulge at L4-5.....so he referred me to a Neurosurgeon and I had surgery this past June, 04....Laminectomy/Discectomy ....completely pain free......after about 2 weeks my pain came back same back, hip, buttock, leg, thigh, calf... and foot pain.... when I told him on my visit for a followup.... he ordered another MRI... with and without contrast... and then told me the MRI looked good... that he couldnt see anyhing on the MRI that would be causing my pain....and proceeded to refer me to a Pain Management Doctor.. who did 3 ESI's which none of them helped... along with the third one he did a nerve block, and told me that the S1 nerve was what was causing my pain....but still my neurosurgeon insisted there was nothing on the MRI to cause my pain... No nerve compression or anything... anyway... I went to about 3 other doctors for other opinions and they basically all said the same thing... they saw nothing.. and agreed with my Neurosurgeon.... well I went back to my Neurosurgeon the other day and by all miracles he mentioned to me...."You might not remember this, but when I did the surgery I had to removed scar tissue or tissue that had formed to protect the nerve, and it was very difficult to remove, so that nerve was damaged by that tissue formation and having to remove it, and it is possible that more scar tissue has reformed back there." I was never told this.. after surgery...but it does kinda explain things now.... so now I am told by my Neuro, and PM Doc it will just take time and meds to see if it will heal on it own... and meds to try and get the pain at a controllable level...

 
Old 02-13-2005, 12:44 AM   #6
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beachgirl01 HB User
Re: [B]help! what do i do now[/B]

Hi there,
Plain and simple you need to seek a new specialist asap. It's not right that people are forced to go through this but unfortunatly it happens to the best of us. Anywho, please find yourself a good doctor and let me know how it goes. I wish you the best of luck. Take care. KRisty.

 
Old 02-13-2005, 11:05 AM   #7
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injured betty HB User
Re: [B]help! what do i do now[/B]

This is just a thought.

I had back pain a few years ago and insisted that there had to be something wrong. I had all of the tests and they found nothing. No bulges, no herniations, no pinched nerves, nada.

I had been leading a sedintary life style. I was doing all of my stretches but not walking or exercising. I was at a good weight so didn't take exercises into consideration. Once I started a walking program the back pain went away. I thought it was a miracle.

I am not saying that this is your case, I am just saying that a lot of us, me included, do not take into account that a sedintary life style can lead to back pain. Mine was from unused muscles and lack of firm abs. I now do my pelvis tilts, religiously and my walking no matter how bad I feel on any given day.

I now have a back problem due to a work related injury, but before that, it was from sitting too much.

Hope that you find answers,

 
Old 02-14-2005, 12:01 AM   #8
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TexasWildRose04 HB User
Re: [B]help! what do i do now[/B]

[QUOTE=injured betty]This is just a thought. I am not saying that this is your case, I am just saying that a lot of us, me included, do not take into account that a sedintary life style can lead to back pain. Mine was from unused muscles and lack of firm abs. I now do my pelvis tilts, religiously and my walking no matter how bad I feel on any given day.

Hi, Betty.... You have no idea how much I wish that were my case....especially when you have pain on a daily basis... and have docs saying your tests show nothing... and they can't justify your pain.... just like how the original poster stated....and Like myself have tried the therapy... and the walking... and the more I walk or walked the worse my pain got or gets..... when I walk alot or am on my feet alot... and as well with sitting alot... so needless to say I do ALOT of shifting around.. from standing to sitting, to walking around... then finally to laying down which helps to relieve the pain somewhat....Oh how I wish it would be that easy for me.... to walk and my pain go away....

Best of luck to you all..

Take Care

 
Old 02-14-2005, 07:46 PM   #9
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Re: [B]help! what do i do now[/B]

Have you tried a discogram/discography? I had 5 MRIs (1/year), none of which showed the annular tear in my L3-4. Only the discogram showed the problem (they inject dye then take an MRI).

It's VERY PAINFUL, but worth it if you want to find out the problem. GOOD LUCK!!!!
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Rampage
Accident '00
Sciatica, L3-4 Tear, Spinal Stenosis, DDD L3-S1
IDET '04
Laminectomy '06
Fusion (BMP) L4-5 '11
Anterior Fusion (BMP) L3-S1 '13

 
Old 02-14-2005, 09:10 PM   #10
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Re: [B]help! what do i do now[/B]

[QUOTE=Rampage]Have you tried a discogram/discography? I had 5 MRIs (1/year), none of which showed the annular tear in my L3-4. Only the discogram showed the problem (they inject dye then take an MRI).

It's VERY PAINFUL, but worth it if you want to find out the problem. GOOD LUCK!!!![/QUOTE]


Hey Rampage....My Pain Management doc was going to do a discogram, then cancelled it because he looked at my latest MRI and said that my MRI looked good and that it didnt appear that there was any damage to the discs so he said that a discogram would do more harm then good and he would not do one..

 
Old 02-15-2005, 09:17 PM   #11
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Re: [B]help! what do i do now[/B]

Huh, interesting. I didn't know that was a possibility. It's funny...every procedure or treatment, etc. seems to affect everyone differently.

I hope at least they'd already figure out your problem. I did the discogram only as a last resort, because every other test showed nothing. They were trying to tell me my pinched was causing the pain!!!! I told them I didn't care what they thought, and that they needed to be aggressive because I wasn't sure I could take it anymore.

Knowing what's wrong, for me at least, was half the battle. I was just relieved to know what I had, so I was willing to take that risk. That was 3 years into it...I guess I was at my wit's end.

I also spent over a year researching specialists...had to make sure I had a dr. who knew what he was doing!!!

How's the pain management thing going??? I've thought about it, but am unfamiliar with the details (beyond what little you can find online). Appreciate any insight you can provide. And, of course I hope it's going well for you.

Cheers.
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Rampage
Accident '00
Sciatica, L3-4 Tear, Spinal Stenosis, DDD L3-S1
IDET '04
Laminectomy '06
Fusion (BMP) L4-5 '11
Anterior Fusion (BMP) L3-S1 '13

 
Old 02-15-2005, 09:24 PM   #12
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Re: [B]help! what do i do now[/B]

Huh, interesting...it's funny how every treatment, etc. affects people differently.

Of course, I was 3 years into my effort to diagnose the problem, and was literally at my wit's end. No other diagnosis left for me, and I had to do something!!!

I also spent well over a year to find the best specialist in my area. Had to make sure I found someone who'd be as aggressive as I needed (and believe me, I needed aggressive after hearing my pinched nerve was causing the excrutiating pain - yeah, right!).

How's the pain management working? I've only found so much online, so appreciate any details you could provide to see if it might also be an option.

Cheers.
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Rampage
Accident '00
Sciatica, L3-4 Tear, Spinal Stenosis, DDD L3-S1
IDET '04
Laminectomy '06
Fusion (BMP) L4-5 '11
Anterior Fusion (BMP) L3-S1 '13

 
Old 02-15-2005, 09:30 PM   #13
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Re: [B]help! what do i do now[/B]

Funny how each treatment affects people differently...I was 3 years into my search for the cause, and was at the end of my diagnostic options and rope!

I also spent well over a year trying to find the right specialist...had to find the most aggressive available (especially after hearing my pinched nerve was the only cause of my excruciating pain!!!).

How's the pain management working for you? I've looked into it online, but a practical perspective would be greatly appreciative.

Cheers.
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Rampage
Accident '00
Sciatica, L3-4 Tear, Spinal Stenosis, DDD L3-S1
IDET '04
Laminectomy '06
Fusion (BMP) L4-5 '11
Anterior Fusion (BMP) L3-S1 '13

 
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