It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-15-2005, 04:19 AM   #1
Senior Member
(female)
 
Join Date: May 2004
Location: NY
Posts: 241
Dee74 HB User
For those of you who opted for surgery.. advice?

Did you get second or third opinions first?

I'm only asking because I got my MRI results back (cervical spine and brain) and my neurologist told me that there is NO way I can avoid surgery. She wouldn't get into the specifics since she's not a surgeon herself, but she told me that I have "severe disc degeneration at C5-C6, causing compression of the spinal cord" and sent me straight to the neurosurgeon to make an "urgent appointment". She was so adamant that I get in asap, that she actually called them herself and told them that it was imperative to work me in. Until the actual appointment (March 3rd), I've been ordered to wear this itchy soft collar at all times.

The reason for the MRI to begin with is because I keep having complete numbness and pain in my left arm that comes and goes and also really bad headaches that start at the base of my skull. I also have intermittent numbness and pain in both legs and the bottoms of my feet, also a few bouts of sciatica pain. What they were really looking for were Multiple Sclerosis lesions. The brain MRI was all clear.

She also had me go for an MRI of the lumbar sacral spine (sp?), but I won't get those results until I see the surgeon. I had this done after the appointment with my regular neuro.

From the way she was talking to my husband and I, there is NO way I can avoid surgery.. well, I want to avoid it at all costs!!!! I don't know if I believe that it's all THAT serious, you know??

I kind of just want to prepare myself before I see the surgeon.. if he tells me that he thinks I need surgery, should I just go somewhere else and get a second opinion or just go ahead with it and have it done??

Last edited by Dee74; 02-15-2005 at 04:29 AM.

 
Sponsors Lightbulb
   
Old 02-15-2005, 05:27 AM   #2
Senior Veteran
(female)
 
Join Date: Dec 2003
Posts: 10,133
feelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB User
Re: For those of you who opted for surgery.. advice?

I am glad you have the right additude about what you are being told by this doc.Too many people rely on just one opinion re surgery when if they had actually consulted one or two more docs(specialists)they could have done other things besides surgical intervention to cure or help control their problems.I actually consulted three different Neurosurgeons before I finally determined that I really did need to have surgery.It was really quite a scarey time as the surgery I needed was on the inside of my spinal cord itself and definitely would cause nerve and spinal tract damage.But I could have had another bleed inside my cord from this glob of blood vessels that were lurking inide there and would have most certainly been paralyzed from the chest down.i took the lesser of the two eveils.Ask alot of questions when you see this new doc and make dang sure that this truely IS the best and only real option before you go ahead with the surgery.There may be less invasive alternatives for you to try.unfortunetly for you though, if you really do indeed have actual compression of your cord, you probably are looking at some sort of surgery.but just make sure to research every other option availiable to you and also the procedure that this doc may recommend to you.i don't know what I would have done without all of the info I was able to obtain just by using my PC, it has also been extremely helpful in dealing with all of the damage and godawful syndromes that I now have due to the damage from my surgery.good luck to you and please keep us posted here as to what you find out.Marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-15-2005, 05:38 AM   #3
Senior Member
(female)
 
Join Date: May 2004
Location: NY
Posts: 241
Dee74 HB User
Re: For those of you who opted for surgery.. advice?

Oh believe me, I fully intend to do ALOT of research if surgery ends up being the only solution. And I refuse to go under the knife if there are other options. I know that any spinal surgery is major surgery and I want to make sure I understand everything they intend to do.

I'm really praying that my neuro was just trying to make sure that I do see the neurosurgeon asap, and that I wouldn't just let it go and not do anything at all. Maybe I'll get really lucky and I won't need surgery.

My mother just had a cervical fusion done last year.. actually she had two of them. Apparently, something didn't take with the first one.. they had taken bone from her hip, but then later they had to go back and put hardware in. She was in agony for a few weeks and I have NO desire to go through that unless it's absolutely necessary.

I'm just all confused about this stuff. The way my neuro was talking, if I don't wear this collar at all times, I could do some serious damage. I don't know.
Gaaaah. I wasn't prepared for ANY of this lol I thought if I got the good news that it wasn't MS, then I could relax. I had NO idea that something was wrong with my spine. Heck I'm only 30!!!

 
Old 02-15-2005, 05:45 AM   #4
Senior Veteran
(female)
 
Join Date: Feb 2005
Posts: 745
caszyman HB User
Re: For those of you who opted for surgery.. advice?

I am currently looking at surgery for my 15 year old daughter. Surgery was first suggested in June of '04. At that time I did a lot of research and consulted with two other specialists. Her doctor was totally fine with us consulting others. His office even called to get us in for an appointment. Otherwise we would have had to wait three to four months and we didn't have that time. All agreed surgery was needed, but one dr. did suggest trying a brace before surgery, which we did.

I needed to get as much information as I could before making this decision for her. We are now looking at surgery this spring/summer, but I feel that I have covered all bases by consulting with three surgeons first. I also go into each appointment with a typed list of questions. It sure has helped me remember all of the issues that I have wanted to discuss with the dr. Best of luck.

 
Old 02-15-2005, 06:44 AM   #5
Junior Member
(female)
 
Join Date: Feb 2005
Posts: 19
jeanniebug HB User
Re: For those of you who opted for surgery.. advice?

I'm having fusion surgery one week from today on C5/C6, C6/C7 with plates, screws. I saw 4 neurosurgeons, one orthopedic surgeon and two chiropractors before making my decision. I was hoping that SOMEONE would say I didn't need it! Like you, I have spinal cord compression. They told me that I could be paralyzed from any major jerk to my neck. I have good days and bad, but I think I could live with the pain if they hadn't said the "paralysis" word. I'll be off of work for 3 months and in a collar. I'm scared to death, but at this point, I just want to get it over with. My sister had the exact same surgery one year ago and she's doing fine. That gives me hope. Please let us know what you decide. It's a hard thing to face, so get those other opinions just so you know that you checked out everything before going forward. Good luck!

 
Old 02-15-2005, 06:48 AM   #6
Senior Veteran
(female)
 
Join Date: Feb 2004
Location: Pennsylvania
Posts: 593
Jessie1 HB User
Re: For those of you who opted for surgery.. advice?

I have had two surgeries on my lumbar spine, and before both I got second opinions, from a doctor not affiliated with my original surgeon. I think it's really important to do that, since once you have surgery you can't go back and undo it. Good luck, and let us know what's going on.

 
Old 02-15-2005, 07:27 AM   #7
Senior Veteran
(female)
 
Join Date: Feb 2004
Location: Dallas, Texas
Posts: 764
Rhonni HB User
Re: For those of you who opted for surgery.. advice?

I didn't get a 2nd opinion, but mostly because I could see for myself on the test results that things were bad and that the only option to fix it was surgery.

I felt I asked all the right questions and was specifically at the doctor I was because of his reputation to make things better.

 
Old 02-15-2005, 10:35 AM   #8
Inactive
(female)
 
Join Date: Feb 2004
Posts: 2,139
injured betty HB User
Re: For those of you who opted for surgery.. advice?

My husband was injured in December 03, did all of the PT, meds, ect and the Neuro said, "Surgery" when his pain did not subside. He had an exposed nerve root sheath.

So, fusion of C4/C4 and C5/C6, I believe. October '04

We researched this to death. This was his only option.

He returned to work at two weeks for four hours a day. He is now up to seven hours a day, no meds, no light duty. He saw his doctor at three months and fusion had started to take place. He uses a bone growth stimulator every day for thirty minutes.

His fusion entail using bone marrow taken from his hip, BMP, two rods and two cages, with screws.

He is pain free, almost four months after surgery. His only complaints are that he can't bend his neck forward and that he can't swallow when he bends down to get into the filing cabinet.

He has no work restrictions.

His surgery was done on an outpatient basis, two level fusion.

His only regret was that the didn't do it sooner and had to jump all of the WC hoops and hurdles.

His main objective, which he met, to be pain free, return to full duty at work, and little disruption in his life. His worst fear, paralysis and a life of pain meds. He used very little pain meds in this process.

I hope that you find the same relief.

As for six weeks off of work, why? Do you have a physically demanding job?


Last edited by injured betty; 02-15-2005 at 10:36 AM.

 
Old 02-16-2005, 05:02 AM   #9
Senior Veteran
(female)
 
Join Date: Dec 2003
Posts: 10,133
feelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB User
Re: For those of you who opted for surgery.. advice?

Hey Betty, I am so happy for you and your husband.what a great outcome.Now, if you could only get yourself to that point,huh?Marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 02-16-2005, 12:07 PM   #10
Inactive
(female)
 
Join Date: Feb 2004
Posts: 2,139
injured betty HB User
Re: For those of you who opted for surgery.. advice?

Feelbad: I am waiting for the results of my MRI and CT scan right now. I hope that it is just a loose ligament. <crossing my fingers>

I am walking five to ten miles a day and each day I get up and hope that this will be the day that the pain is gone. The sunshine does wonders for my outlook.

I will be working for the next two days and am going to try to wing it, no Advil.

I envy my husband's progress but am happy for him also


Take care,

 
Old 02-18-2005, 12:30 PM   #11
Newbie
(female)
 
Join Date: Feb 2005
Location: Houston, texas
Posts: 6
cincosunflower HB User
Re: For those of you who opted for surgery.. advice?

I DON't know what city you live in but if you're in Texas I can recommend a brilliant surgeon - I had surgery on T12/L1 3wks ago and am living without pain for the first time in years - I had tried physio and other treatments but sometimes surgery is the only answer - it's not as bad as people make it out to be - you have to take it slowly for a month or so afterwards but I am walking 1/2 mile twice a day and back to work part-time and feel great. It is good to get 2nd or 3rd opinions even though my neurosurgeon was the first doc I saw - I just got a good feeling from him so stuck with him.
Good luck!

 
Old 02-18-2005, 03:35 PM   #12
Inactive
(female)
 
Join Date: Dec 2004
Posts: 1,291
Quietcook HB UserQuietcook HB User
Re: For those of you who opted for surgery.. advice?

xxxxxxxxxxxxxxxx

Last edited by Quietcook; 07-16-2005 at 03:20 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Negative HPT but lots of Prego Signs Advice Please kear0001 Pregnancy-Teen 6 04-04-2011 06:51 PM
Worse feeling after Morton's Neuroma Surgery Dancinboots Foot & Ankle Problems 124 07-19-2010 04:01 AM
26/F 12 days post two level discectomy surgery. Warning: Long post Abrie25 Back Problems 7 06-29-2010 02:51 PM
Surgery Tuesday...any advice...help? Knox99 Thyroid Disorders 9 09-08-2008 09:13 PM
steroids/prednisone before possible surgery? advice please. lilydilly Spinal Cord Disorders 5 06-26-2008 03:01 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is Off
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ibuprofen
Lyrica
Morphine
Neurontin
Oxycontin
  Percocet
Soma Tylenol
Valium
Vicodin




TOP THANKED CONTRIBUTORS



teteri66 (1109), gmak (129), SweetPeainSF (78), maltluver (71), twohands (64), pebblebeach3 (63), cheryl1213 (51), Moldova (46), ibake&pray (41), workinmom572 (40)

Site Wide Totals

teteri66 (1166), MSJayhawk (999), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (667), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 10:24 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!