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Old 04-13-2005, 02:21 PM   #1
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cardinal HB User
? Total back a mess, what is the future?

Ok, now I face my cervical and lumbar fusion. I'm not cashing in yet. Anyone have both cervical and lumbar herniated? I'm getting really scared now. Can it be fixed? I had my lumbar discectomy in '99, now collapsed. L3-5 are bulging, as of my last mri. My cervical c 5-6-7 are fused, failed fusion. C 3-5 are bulging. I have ddd, osteoarthritis in my whole spine. I am alone and facing all this, not a happy camper. I am only, 49, next month lol, and don't want to give in to this! I am pretty much flat out right now as I pulled my lower back just trying to tend to my little garden. I just got a call from my new neuro and they want me in asap after reviewing my records. New mri will be this Friday. I pretty much know I am in for multiple redo;s. Please anyone who has had both upper and lower advise the outcome. Neuro asked which one bothers me most, well, right now lower but upper stops me from any activities daily. They can not do both again at the same time.
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Old 04-13-2005, 02:31 PM   #2
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Re: ? Total back a mess, what is the future?

Cardinal, before you have surgery, ask your doctor how he is going to manage your pain after surgery. I wish I had done this. If they are going to gaff you off with your pain meds, don't do it, find another doctor who WILL provide adequate pain relief. You have alot you are going thru *hugs*, and being alone and being in extreme pain should not be an option!

I am going to raise a stink about this where I live. I am going to contact my doctors, the hospital, anyone I can think of and let them know that leaving a post-surgical patient in pain with meds that aren't effective isn't responsible doctoring.

Blossom

 
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Old 04-13-2005, 03:17 PM   #3
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Re: ? Total back a mess, what is the future?

Blossom, what do I do? How do I remedy this situation without surgery? I don't want to go thru this again, but with a failed fusiona and lumbar not doing well either what next? Yes, when I talk with the new neuro on the 22nd I will ask about after care... but looks like there is no other option than surgery again. I did well as far as pain meds after all my other surgeries, I didn't take most of them. I do not tolererate meds well, I tend to have a few beers instead. In fact as we speak, I have plenty of hydro's and I opt for a few beers in lieu of. But, the fact remains, I have a back that is going down hill fast. I don't tolerate morphine, demoral, etc and that oxycontin stuff forgeet it!!! so guess I am in for a wild ride after this next one. All I pray for is to be semi normal again and be somewhat "productive" in life. With all the great knowledge in this world you would think someone could come up with a pain free solution to all our troubles!! Until it hits "home" they don't care.
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Old 04-13-2005, 03:24 PM   #4
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Re: ? Total back a mess, what is the future?

Cardinal, at least you have some hope because it sounds like the neuro thinks something further can be done/redone. My husband is just beginning this journey but his problems are extensive, also. Like you, he just wants to return to some form of his previous life.

Hopefully you'll be able to hear from someone who has had to have their fusions redone and can offer some more hope. I think it's real encouraging to know that your neuro is willing to help instead of giving up like so many on this board have heard before. Best wishes to you.

Last edited by kaybee; 04-13-2005 at 03:32 PM.

 
Old 04-13-2005, 03:36 PM   #5
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Re: ? Total back a mess, what is the future?

Cardinal hon, wish I had the answers, God knows I wish I did. I try to be the "good patient" and end up getting screwed over by doctors. I wish I didn't wilt when it came to confronting them.

If you don't have surgery, the vertebrae will eventually fuse on their own, and that is not a good scenario always. My best gf of 22 yrs had her neck broke by her ex years ago, and didn't have surgery. Now her neck fused on it's own, and all the nerves are being squeezed off by the askew fusion, and she will eventually be paralyzed, she can't have surgery now, it's too late. Get two, three, or four opinions if you have to, then compare notes.

I think we give these doctors too much of our confidence, they are taking literally our lives and spines and possibly doing damage. My Ortho is a good doc except for the pain meds deal, and he told me that he doesn't use a neruo when he does surgery. I have no numbness like I did pre-op, so he did a good job not messing with nerves. Have you talked to an Ortho? He said they never use Neuros, but Neuros call him alot to help with their surgeries.

He kind of joked about it.

Anyway, God Bless you hon, if you want to talk more, I will be more than glad to be here for you, I know what it's like to be alone. You can email me if you want I believe mine is email enabled on this thread. I think it's important to have support back buddies.



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Last edited by moderator2; 04-13-2005 at 04:30 PM. Reason: please carefully review the posting rules - no emails

 
Old 04-13-2005, 04:05 PM   #6
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Re: ? Total back a mess, what is the future?

p.s. I am having a couple beers too. I found out several months ago the hops relax me more than any pills.

 
Old 04-16-2005, 09:09 AM   #7
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Re: ? Total back a mess, what is the future?

[QUOTE=blossom64]p.s. I am having a couple beers too. I found out several months ago the hops relax me more than any pills.[/QUOTE]
Hey Blossom! How are you today? Well, my mri yesterday was a JOKE! the machine broke down! go figure? So, keeping my appt next Friday with the spine specialist in TN and will hopefully get the mri done there instead, probably a God send , seeing the equipment here is bogess. Still can't stand up straight, pain etc. My neighbors have been so great, brought me dinner last night. She is driving me the 2hrs to get to my appt next wk. So, I have gratitude and Faith. It's a beautiful day here today and would love to get out and enjoy it, but I can atleast lay in my lounge chair on my deck. This new cabin I bought is mountainess, stairs are the only way in and out. I prayed for this and got it, retreat but it comes with a price, lol. Got all my plants in just prior to the lower back pulling out, so all is done now! Some people are in much worse shape, gotta remembe the good things we still have!!! hugs
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Old 04-16-2005, 09:37 AM   #8
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myspine HB User
Re: ? Total back a mess, what is the future?

Hi Cardinal
I just read your post. I had a lumbar fusion in June with hardware and have had multiple problems with my leg and hip because of nerve damage....It is such a long story. Anyway and am also having a Cervical fusion in 6 weeks, I am 34 and feel your pain. I have had 4 lumbar surgerie since I was 22 and this is the first and hopefully the final for my neck . Anyway, I know how discouraging it is to have it with the back and neck believe me. I wish I had a magic phrase for you. I have my 3 little ones that need me each day and my husband. I also have to have everyone and myself out the door and at work by 7 so that gets me out of bed each day. I hope you find relief soon. I know how hard it is. Good luck to you.
shelley

 
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