I have tried going thru the posts to see if I can find anything similiar to what my husband is going thru but I guess it would take me days to go thru them all so it makes more sense to start a new thread hoping that someone from one of the boards can help me find some answers. (This may be a little long)
In Feb. of this year my husband went to our primary care doctor because he was having a lot of neck, shoulder and back pain. Very unusual for him. Our primary sent him to an arthritis specialist who did several tests including an MRI of his spine. The results were that his spine looked absolutely fine except for he has a focal lesion on his T10 vertebrae. Upon discovering this the specialist looked back over his blood work and found that his Lymphs were in the high range. The mid-range was high and the gran. was low. (I don't quite understand the meaning of these but they are listed under Hematology.) The specialist then sent us back to our primary and he ordered another set of the same blood tests and then sent us to an oncologist. During the visit with the oncologist he stated that the second set of blood tests came back fine and since he had problems with that particular lab before he ran a set of the same blood tests for a third time right there in his own lab. After reading the results of this set he stated that they were fine and we needed to go back to our primary and have him do another MRI with contrast this time. He did not believe my husband had cancer at that time. (I have since gotten a copy of the third set of blood tests and they read similiar to the first set that was done - so that does not make sense.) Anyway, our primary did the second MRI with contrast and the results stated that the focal lesion could possibly be a metatisis or Myeloma. So he then ordered a Bone Scan. That came back normal. Then he ordered a Biopsy and we just received the results yesterday which said that everything looked normal. NOW we are really confused. The only symtoms my husband is having is pain. Severe pain! He is on morophine and that only dulls the pain. Our primary is now sending us to the Mayo Clinic in Scottsdale, Arizona. The biopsy does state that it does not appear to be an infection or a cyst but more in the lines of a lesion or tumor of some kind but they cannot identify exactly what it is. The primary did say that it could still possibly be cancer. How could this be if the biopsy did not pick it up?
If there is anyone out there that has had or heard of anything like this I would really appreciate a response. As you can probably imagine we are both at our wits end and I feel as though I am having anxiety every second of every day. If we don't get an answer soon I will be the one that is sick from the stress of all of this. I have researched about all I can on the net but the more I search the more questions I have. It will probably take a couple of weeks or more to get into the Mayo clinic so that makes the stress level go even higher.
Thanks in advance for any help anyone can provide.
Hi, Sorry to hear of all the problems that bring you here. I hope that someone will be able to give you a more specific answer as I can't.
I only wanted to tell you a little of what I have learned this pass 6yrs and that is when dealing with issues of the spine it is not always easy to find the source of what is causing the pain, often it is just a series of test, procedures and more test and process of elimination.
I know as well as any that it can be very stressful and discouraging but you have to hang tough and it may take a lot of changing drs and searching to find the source of the problem and sometimes it's not even found so the symptoms have to be treated and not the source.
I am by no means trying to discourage you but want you to not stress so much because this is not as rare as you may think.
I lost a WC claim because I exhausted the amount of time to prove my claim and other problems only to have since find out I will be disabled for ever and WC got off from treating me, not the point though I'm just saying that spine problems can so very hard to diagnosis you just need to stay on top of it, it sounds as if you have drs that are trying and not just blowing off the pain and this is a good start.
I wish you the best and hope someone can give you a better idea of what it may be, I just wanted you to know it isn't uncommon for it to be hard to diagnosis some spine problems your are fortunate that you have a dr that knows if there is pain something is wrong often drs try to just blow the pain off.