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Old 06-04-2005, 10:49 AM   #1
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Katina128 HB User
Anyone else have excruciating pain upon waking every morning?

Every morning I roll out of bed, my feet hit the floor, I take a few steps and then it hits. EXCRUCIATING PAIN!! Like a 12 on a scale of 1-10. I am dying. I can't do anything but waddle to the kitchen for my cup of oj and my vicodin. Then hit the couch until it kicks in. After it kicks in, my pain goes down to a tolerable level. But, man, I'm nearly in tears until it does. I've never hurt so much in all my life. I'd rather have my natural labor again. At least I'd get a new baby for it. UGH! Does anyone else have this? Should I be worried that the pain is so intense? Is there a certain way I should be sleeping in a certain position that is nicer to my lumbar area? I'm about ready to just consent to surgery and be done with it. I don't know how much more I can take.
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Katina-Mom of 2 boys 7-11-05 MicroD @L4-L5 now bulged again, L5-S1 has a protrusion which is causing left sided leg pain and low back pain.

 
Old 06-04-2005, 10:53 AM   #2
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Re: Anyone else have excruciating pain upon waking every morning?

How long has this been going on? Have you seen a neurosurgeon? Sleeping is best with a pillow (I use 2) under your knees and one between your knees when you sleep. I think you should see a doctor. Is this leg and buttock pain or nearly back pain? You should be concerned and may need an MRI but please get to your doctor or a good neurosurgeon right away.

 
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Old 06-04-2005, 10:59 AM   #3
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Katina128 HB User
Re: Anyone else have excruciating pain upon waking every morning?

Sorry, yes, I'm seeing my NS regularly. I've had an MRI and have 2 herniations-L4-5 and L5-S1. I'm scheduled for a 2nd ESI on 6-9, so hopefully that will help. Although the first one didn't do much. It's pain in the nerve root coming from the disc area (I think), butt pain, leg pain, foot pain. It all hurts. I do sleep on my side mostly, with a pillow between my knees. Should I sleep on my back instead?
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Katina-Mom of 2 boys 7-11-05 MicroD @L4-L5 now bulged again, L5-S1 has a protrusion which is causing left sided leg pain and low back pain.

 
Old 06-04-2005, 11:25 AM   #4
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avglenn HB User
Re: Anyone else have excruciating pain upon waking every morning?

K- I also suffer from the nerve root pain. Which includes butt/ back/ feet. I have the restless legs bit too, which doesnt help me sleep. Just caused more tossing & turning. By the time early morning rolls around the pain is intense. I have to take a vicodin, then I sleep better for an hour or so. Just started Neurotin, it helps the restless legs & butt pain too !!

 
Old 06-04-2005, 11:26 AM   #5
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Re: Anyone else have excruciating pain upon waking every morning?

Sleeping on your back or side doesn't matter as long as you do it properly. It's up to your comfort. You always want to make sure your spine is in proper alighment. I am sorry you are in so much pain. I had a herniation at L5/S1 with sciatica and recently had surgery and it helped completely. Since you have 2 herniations, surgery might be the best option for you depending on your pain tolerance level througout the day and how long you suffered. I am 21 and suffered for only 6 months but it was that bad that I opted for surgery. Some people have suffered for years like my mother without any surgery. You really need to ask yourself if you can live with the pain or not. The longer a sciatic nerve is pressed, the more chance of permanent nerve damage. I don't meant to scare you but treating this sooner rather than later gives you the best chance of full recovery. Hope all goes well.

 
Old 06-04-2005, 01:32 PM   #6
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Quietcook HB UserQuietcook HB User
Re: Anyone else have excruciating pain upon waking every morning?

[QUOTE=Katina128]Every morning I roll out of bed, my feet hit the floor, I take a few steps and then it hits. EXCRUCIATING PAIN!! Like a 12 on a scale of 1-10. I am dying. I can't do anything but waddle to the kitchen for my cup of oj and my vicodin. Then hit the couch until it kicks in. After it kicks in, my pain goes down to a tolerable level. But, man, I'm nearly in tears until it does. I've never hurt so much in all my life. I'd rather have my natural labor again. At least I'd get a new baby for it. UGH! Does anyone else have this? Should I be worried that the pain is so intense? Is there a certain way I should be sleeping in a certain position that is nicer to my lumbar area? I'm about ready to just consent to surgery and be done with it. I don't know how much more I can take.[/QUOTE]


Katina,

Hope you are seeing a spine specialist, but would assume that if you are having that much pain you are not. Perhaps you are seeing a general ortho or neurosurgeon. I highly recommend a spine specialist and sooner rather than later.

One other word of caution regarding pain. The longer nerves are severely compressed to present that much pain, the chances for a full recovery drop. My spine specialist (unfortunately I had a non-spine specialist first and they didn't warn me) gave me the guideline of if the compression is relieved within 6 months there's excellent chance for full recovery, a 75 percent chance at 9 months and only 50 percent chance at a year or more. My other doc had already let me go more than 9 months and while I was fortunate enough to recover fully from the pain, the numbness is forever. Some don't get full relief from pain or the pins/needles feeling, so I'm happy I got the relief I did.

My spine specialist will work with me to avoid surgery, but when it gets dangerous he also tells me, okay it's your choice but here's what you are risking.

Best wishes

 
Old 06-04-2005, 02:28 PM   #7
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Katina128 HB User
Re: Anyone else have excruciating pain upon waking every morning?

I'm sorry others are experiencing this too. It's really really painful. I am probably going to have surgery, but it will be after this next ESI, and depending on if I get any relief or not. I am seeing the best Neurosurgeon in Knoxville, according to my pcp. He wouldn't recommend anyone else for the job. He isn't listed as a spine specialist, but then, there are no spine specialists listed in Knoxville. So, I have no choice, really. And to know my regular doctor thinks he is the best and the only one he'd let operate on himself means a lot to me. My herniations started in Feb, so I'm only 3 months into it, so I am not near the 6 month mark yet. I will have surgery no later than september if my pain persists after this next esi. That would be about the 6 month mark. My little one's bday is aug 10th and I don't want to be out of commission for it. He's only 2 once. So, I will either have the surgery in the next month depending on the relief from the esi, or not till after his bday. I don't want to wait too long though, as I don't want to risk permanent damage. I'll mention this awful excruciating pain when I see my NS again, or I might call in this week and see what he says about it.
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Katina-Mom of 2 boys 7-11-05 MicroD @L4-L5 now bulged again, L5-S1 has a protrusion which is causing left sided leg pain and low back pain.

 
Old 06-04-2005, 02:48 PM   #8
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kmall HB User
Re: Anyone else have excruciating pain upon waking every morning?

oh YES - we are living parallel lives!!

i have an extruded/fragmented L4/L5 herniation pressing on the L5 nerve. i've lived with this breath-taking level of pain going-on 4 months...and i know that's not a lot compared to some folks who've struggled for a LONG time...but it's all relative. i have 2 young kids and i've missed SO much due to this pain. last month i was in a really bad place as my appt wasn't til june 15th, but i fussed and got in earlier - long story short - i had a 2nd opinion at a hospital in boston..was going to try an epidural but the pain has intensified so much, my neurosurgeon said he thinks i'd end up having surgery anyway (2 rounds of oral steroids didn't touch this pain - and the T3 and vicodin both only give moderate relief). so my microdiscectomy is schedule for tuesday...PRAISE GOD! i understand how you feel...one step, two steps, three steps WHAM!

you might need to be re-evaluated. it just sucks to be in pain, and really does take over your life. i feel SO much better mentally at least...i feel we're making progress towards feeling better. i can't WAIT for surgery and i NEVER thought i'd say that!! i've tried so many conservative things up til now. i just want my LIFE back!

i hope you are feeling better soon...go see your doc, and if you are not happy with him/her - find another one. ask around - i was shocked to find out how many people in my town have had this procedure.

oh - and ice works nicely for me....at least the coldness is distracting from the pain if it doesn't totally relieve it!

kara

 
Old 06-04-2005, 05:07 PM   #9
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TexasWildRose04 HB User
Re: Anyone else have excruciating pain upon waking every morning?

[QUOTE=the33rdczarina]Sleeping on your back or side doesn't matter as long as you do it properly. It's up to your comfort. You always want to make sure your spine is in proper alighment. I am sorry you are in so much pain. I had a herniation at L5/S1 with sciatica and recently had surgery and it helped completely. Since you have 2 herniations, surgery might be the best option for you depending on your pain tolerance level througout the day and how long you suffered. I am 21 and suffered for only 6 months but it was that bad that I opted for surgery. Some people have suffered for years like my mother without any surgery. You really need to ask yourself if you can live with the pain or not. The longer a sciatic nerve is pressed, the more chance of permanent nerve damage. I don't meant to scare you but treating this sooner rather than later gives you the best chance of full recovery. Hope all goes well.[/QUOTE]

the33rdczarina.

First welcome to the board... I am glad your surgery helped you to have complete relief from your pain... unfortunately some of us are not that lucky...such as myself.......

I had a 9 mm herniation at L5-S1 pressing on the S1 nerve root... had Surgery back in June 04... was pain free for 2 weeks, my pain came back completely... times 10... and now I have it on my left side as well as my right....My pain is extremely bad on a daily basis ...On a daily basis my pain is a 10 plus... and especially when I get up of the morning... I sleep flat on my back, that is the only way I get relief... and I wake throughout the night with pain....in my legs and such..

I have been dealing with this for over a year now, before my surgery I had the pain and such for about 8-9 months prior to surgery...Have the lower back, hip, buttocks, leg, calf, and foot pain......both sides....due to nerve damage of the S1 nerve root....have had the ESI's.... MRI's....Myelogram/CT Scan.....EMG/NCV....Nerve Block.....You name it I have had it....And so far have found nothing that helps....My pain meds might take my pain from a 10 plus to a 8-9.... but some days even with the meds its a 10...so not much relief....

Katina,

Do you take any medication at night to help you sleep..... I take my Methadone for pain.... and also take muscle relaxers-Zanaflex... and also ProSom to help me sleep... it helps, but I do wake several times throughout the night....but I can totally relate to your pain at waking... Do you have the severe foot pain? My feet hurt so badly when I get up to walk that I can barely stand for my feet to touch the floor....I had to take steps slowly... and get my forward momentum.... before I can go far......So you arent alone in this...Hopefully the ESI will help you pain.... As they did not help my pain at all... but hopefully they will help yours...Will keep my fingers crossed for you...Keep us informed as to your progress...

Good Luck to you..

TRose

 
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