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Old 03-18-2006, 11:26 AM   #1
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Join Date: Feb 2006
Location: Houston, TX, USA
Posts: 274
HurtinHouston HB User
Thumbs up Not CES

The good news is that the doctor says I don't have cauda equina syndrome. The bad news is that they still don't have a diagnosis for me. The best guesses now are that, in addition to the lumbar damage: stenosis, spondy, DDD, scolosis and herniations, I either have MS, a late-life form of Muscular Distrophy, Lyme desease, or something cervical going on.

I have been going to the pm clinic all this past week and working very hard to overcome the atrophy in my muscles, but though in some regards I feel I am getting a little stronger, I also feel I am getting weaker. I know that might not make sence and I don't really know how to describe it except to say that I am doing more and more exercises for longer periods of time at the clinic, but I feel my body getting more and more fatigued and weaker in other ways. This morning I had trouble standing for more than a few minutes without my legs shaking and feeling like they were going to give way. For the 1st time, I had trouble feeding myself breakfast and drinking from a cup as both of my hands began shaking. One month ago I could walk with a cane. Today I can barely walk with a walker. I am fighting the thought of going into a wheelchair, but they are talking to me about it at the clinic.

By the way, I have a lot of numbness in my feet, but on the right foot, the entire heel has been extremely painful...the whole thing...and there is nothing in the heel like a splinter or anything...to the point of not being able to put any weight on it at all. I was wondering if anyone else has had this and what caused it?

One last piece of good news. I got an email from my employer and they are finally issuing me the HIPPA letter I need to get my husband's insurance to cover me as primary so that I can get a neurologist to look at me and maybe get a dx soon.

Ya'll take good care and I'll update you when I know more.

Houston

 
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