It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Back Problems Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-27-2006, 03:47 PM   #1
Newbie
(female)
 
Join Date: Apr 2006
Posts: 7
JCblue HB User
Unhappy Please help I am scared about surgery I need advise fast

My lumbar discetomy is scheduled for May 15th. I have two herniations at L5-S1 levels. I have low back pain and excruciated shooting and stabbing pain in my left leg. I have been dealing with this since 2004 I have tried my hardest to avoid surgery. I have tried PT, massage, traction, injections. They only help with temporarily relief. I am 25 years old and people tell me that I walk like an old lady. I can't sleep, I am not able to be active which is really hard for me because I used to be very athletic, I have gained 50 pounds as a result of my injuries. I just recently saw a neurosurgeon because I can't stand the pain anymore but after reading the posts about surgery and reherniations I am scared. I need advise I don't know what to do I am so tired of being in pain all the time but I don't want to have multiple surgeries. I have heard about the DRX 9000 and I am skeptical. If anyone has tried the DRX 9000 please let me know how it went. I just want to move on with my life!
Please help!

Last edited by JCblue; 04-28-2006 at 10:54 AM.

 
Old 04-27-2006, 05:09 PM   #2
Junior Member
(female)
 
Join Date: Mar 2006
Location: georgia
Posts: 42
pooh26 HB User
Re: Please help I am scared about surgery I need advise fast

I am also 25 yrs old and was diagnosed with DDD from injures sustained in gymnastics. I was having the same problems as you described. I did everything you did for 2 yrs before I decided to have surgery. I had gotten so bad that I walked with a cane. My first surgery was a discectomy at the L4-L5 and L5-S1 levels. That surgery only lasted me 8 months before I was back in severe pain. So 8 months after that surgery I was back on the operating table having the L4-L5 and L5-S1 levels fused with titanium screws and rods. I am 3 months out of that surgery and am starting to see improvement. From what I understand and from talking to other people and to my spine surgeon the discectomy is not a long term solution. Some people have good success with it but most do end up back on the operating table, maybe not as quick as I did, but eventually. Just make sure that you do all your research and make sure that you are at the last straw and can't handle the pain anymore because once you start having surgery it seems like it is a never ending battle. Good luck with the surgery and I hope it goes well for you.

 
Sponsors Lightbulb
   
Old 04-27-2006, 09:42 PM   #3
Inactive
 
Join Date: Apr 2005
Posts: 65
visions HB User
Re: Please help I am scared about surgery I need advise fast

Often a discectomy to repair a herniated disc is successful and never reherniates. But there are no guarantees, it is always possible. My surgeon told me from the beginning when the MRI's showed an L5S1 herniation that if PT and epidural injections failed he would do a discectomy to repair it. He told me if down the road it herniated again, he would do another, trying to avoid a fusion. If it herniated a third time, he told me I would then have to have a fusion. Over the course of a few yrs that is exactly what happened.

I would do it all again in a heart beat. After each surgery I was completely pain free. The alternative was to remain in pain, something I was not about to do it if could be fixed and it could. A disectomy is a fairly simple surgery, compared to a fusion and the recovery time is just a few weeks.

I have two close friends who both had a disc herniation, one in her early twenties and the other in her mid twenties. Both had discectomies and have never had anymore problems and it has been over 20 yrs for both of them. Wouldn't it have been a shame for them to continue living in pain when they didn't have to. I am all for fixing something if it can be fixed. I was already in pain so I had little to loose and everything to gain.

 
Old 04-28-2006, 09:00 AM   #4
Newbie
(female)
 
Join Date: Apr 2006
Location: Chicago
Posts: 4
bowa41 HB User
Re: Please help I am scared about surgery I need advise fast

it seems like you and i have similar situations, my surgery is scheduled for the third week of may also, i am having a microdiscotomy, i'm very nervous but i also can't live with this pain anymore, i too walk like i am an old lady, my friends and family make jokes about it all the time.

i hope your surgery goes well, and we should share our stories when we are all done with surgery!

 
Old 04-28-2006, 10:53 AM   #5
Newbie
(female)
 
Join Date: Apr 2006
Posts: 7
JCblue HB User
Question Re: Please help I am scared about surgery I need advise fast

I guess the major reason I am so scared of having surgery is once it's done there is no going back and what if my disks reherniate and my pain is worse. I don't want to have multiple surgeries and eventually have no choice but to have a fusion. POOH26 and visions or to anyone else who has had fusions what is life like after the surgery? How flexible are you, how active can you be, what is rehab like? I have talked to doctors about fusions, but it is so much better to hear from people who have had the surgery and done the rehab, if you know what I mean. I don't want to be in chronic pain all the time, but what price will I pay if I have surgery? That is why when I heard about the DRX 9000 I had a little hope but is it just temporarily relief, I don't know if it has been out long enough to know what the long term effects of the treatment are? Thank you for all of your advise!

 
Old 04-28-2006, 11:47 AM   #6
Senior Member
(male)
 
Join Date: Apr 2006
Location: Connecticut
Posts: 280
mmusilli HB User
Re: Please help I am scared about surgery I need advise fast

Hi JC.... A few things... First, about DRX-9000.. So far, I have heard great things about it.. I was in hospital a month ago due to herniated T11-T12 and my nurse told me to try DRX-9000 as it worked for her.... Keep in mind that this is a nurse in a major hospital, telling me to try DRX-9000.. Secondly, my co-worker's wife had nerve pain in neck for 4 years, and tried everything (accupuncture, chiro, massage, etc) and nothing worked, and now is trying DRX.. After second or third treatment, she still has pain BUT her numbness in fingers is going away for the first time..... So, I have it on the back-burner and if I have problems down the road with my disc, I will try DRX-9000.. I also read several posts on this board and say that it works for them...

Second thing... My neighbor accross the street had fusion done, and I didnt even know he had operation as he was walking better than me after 1 week... Technology gets better every day, and today, techniques are better than just a year ago... Just make sure you have a spine specialist that has lots of experience... Ask him where he had his "fellowship" done.... Also, I learned that in order to reduce scarring, they should use anti-scarring gel, so ask Dr about this... I know TONS of people with disc herniations at all ages... They DO heal, BUT, you have to strengthen your core muscles SLOWLY and stretch, so that your muscles hold up your weight and not your spine... And, even more important is POSTURE and BIOMETRICS... Sit straigth, stand straight, and when lifting, use legs and keep stomach slightly tight... My friend, and his son both had spine operations, and he is playing golf, and son is active... In fact, it is probably a bad thing to be inactive.. You want to strengthen muscles, but dont lift too much... No excercises that put compression on spine.. Also, you need to loose the 50 lbs that you gained, as this is adding more weight to your spine... But do it slowly.. I use bike at gym and am up to 25 minutes and getting stronger... Perhaps, you can start with that or eliptical and dont lift heavy stuff off ground (nothing heavier than a gallon of milk) until you have strengthened core..

What Dr are you seeing? Spine specialist or ortho? Please make sure it is a spine specialist... Dont be afraid to change Drs if you find a better one... This is your back!!

Our prayers are with you!!

MM

 
Old 04-28-2006, 11:49 AM   #7
Senior Member
(male)
 
Join Date: Apr 2006
Location: Connecticut
Posts: 280
mmusilli HB User
Re: Please help I am scared about surgery I need advise fast

Just re-read your post and see that you are seeing NeuroSurgeon.. Ask if he has completed his spine "fellowship".

 
Old 04-30-2006, 12:18 PM   #8
Junior Member
 
Join Date: Apr 2006
Posts: 12
zedek704 HB User
Re: Please help I am scared about surgery I need advise fast

HEllo

I am 27 yrs old and just had the PLIF (fusion L5-SI) last August (8/2005) surgery itself went well. Afterwards was not as bad as I thought. Stayed in hospital for 4 days which was good, you will need help. THe first time they got me up to walk was living hell. But it will get better each time. Take your time.

I wonder why so young having surgery but seems to be more common. Just becareful and things will be fine.

 
Old 04-30-2006, 01:35 PM   #9
Senior Member
(female)
 
scbmxmom's Avatar
 
Join Date: Mar 2006
Location: SC
Posts: 145
scbmxmom HB User
Re: Please help I am scared about surgery I need advise fast

Hi JCblue
Sorry to hear are having to consider all of this at such a young age. I am 33yo and I have DDD and several discs that are being compromised. I had a LARGE rupture at L3/L4 and my neurosurgeon suggested surgery. I tried meds., weight loss, shots, etc. I got some relief but then the pain would return. I finally decided to have the surgery and my surgeon did warn me that I may eventually need a fusion. I had the discetomy in Dec. and I ended up with the fusion in Jan. I don' t think my surgeon meant I would need a fusion that fast. (I had a piece of disc material that had gotten lodged underneath the nerve after the first surgery and could not be seen on MRI so a fusion was the next option.) There are times I regret having the first surgery but then again the way it was going wasn't working either, so I had to do something. I knew I needed to make a decision before more damage was done.

I have talked to MANY people who have had GREAT success with a discetomy and have no regrets. I am starting to feel much better I know the road to recovery is long. One thing you do have on your side is your age. ONLY you will be able to make the decision about surgery. Do research on you doctor and ask around about him. The spine is a VERY delicate area. Like I said before I have met a lot of people who have had GREAT success. So I think it goes like any surgery, there are risks and results vary.

Pray for direction!
__________________
DD
Dec 05 - Discectomy L3/L4
Jan 06 - TLIF Fusion L3/L4
May 08 - Ruptured C5/C6
Jun 08 - Fibromyalgia
Oct 08 - Artificial Disc C5/C6
July 09 - Ruptured L4/L5
July 09 - Spinal Stenosis

 
Old 04-30-2006, 06:47 PM   #10
Inactive
(female)
 
Join Date: Dec 2004
Posts: 1,291
Quietcook HB UserQuietcook HB User
Re: Please help I am scared about surgery I need advise fast

JCblue,

You are so young to be facing back problems alrady, but it can happen. The others are right in highly recommending that you deal with a true spine specialist instead of general ortho or general neuro.

If you are not familiar, spine specialists will be orhto or neuro, but will have completed a lengthy spine fellowship, and then gone on to dedicate their practice to just the spine, whereby the general will be treating elbows, shoulders, knees, and the neuro will be doing brain surgery. The real difference, is that because they dedicate their practice to a limited area, they get 4-5 times the experience of the general ortho/neuro surgeon AND they are usually involved in the latest technology and procedures years before the others. For instance, a spine specialist is more likely to be able to potentially offer an artifical disc replacement (several types) or later if a fusion should ever become necessary, if you qualified then a flexible dynesys fusion versus a fixed fusion. The spine specialists are often very involved in clinical trials and thus get experience on the new techniques sooner, but the general ortho and neuro cannot stay up on the newest in all areas of the body, so may be 5-7 years behind doing the techniques a spine specialist will use, providing you more and better options and retention of more normal functions.

If you are not aware of how to check out credential or even how to locate a spine specialist, use the advanced button on the search feature at the top and find a thread I started on how to locate a spine specialist in your local area. You are also wise to visit such sites as the spine universe and others on spine health to learn terms and see what nerves may be affected based on the chart which shows you how they track. The more you know allows you to ask more relavant questions and you are then your own best advocate.

Hope you let us know how things go.

 
Old 04-30-2006, 06:48 PM   #11
Newbie
(female)
 
Join Date: Apr 2006
Posts: 7
JCblue HB User
Re: Please help I am scared about surgery I need advise fast

I have tried exercising, I got a gym membership I did alot of stretching before and after exercising but I still ended up in extreme pain. Last July I couldn't walk or even sit up without excruciating pain in my back and leg the doctor gave me another MRI because he thought my disc had completely ruptured but nothing different showed up on my MRI, his explanation was sometimes even bending the wrong way can cause inflammation in the effected discs and I was put on steroids. I have been hesitant about surgery because I live alone and I am a poor student with a part time job right nowand I don't have any family that could take of me. But I was thinking maybe with the lumbar discetomy I could do it by myself with the help of some of my friends. But now I am worried that it might not work from what some people have told me about their discetomies and how they eventually end up needing fusions, i don't know if i could have the fusion if this surgery doesn't work. Thanks to everyone for your advise and concern. I will also check to see if my Neorsurgeon has a spine fellowship and I think I will try to get a consult for the DRX 9000 before my surgery it is coming up really soon. I have had alot of problems with my insurance because it was a car accident so hopefully they will authorize the surgery.

 
Old 04-30-2006, 10:09 PM   #12
Inactive
(female)
 
Join Date: Dec 2004
Posts: 1,291
Quietcook HB UserQuietcook HB User
Re: Please help I am scared about surgery I need advise fast

Jcblue,

If this was a result of an accident, hope you got an attorney who deals with wreck injuries. They don't get money until you win money, and although by law in most if not all states, you must file a suit, it doesn't mean you have to wind up in court. Many such suits are settled with negotiations, but you have to use reason and stand firm to ensure that the attorney doesn't push you to settle too quickly for too little.

I cannot speak from experience as far as microdiscectomies. Just have noticed that some who have them seemed to have considerably more difficulties and longer healing than I did with standard discectomy. Of course, I'm older and not worried about whether I have a 1 inch versus 4 inch scar on my back. What I do know is that I had lost the use of my legs when the first disc herniated into the spinal cord instead of going outward, so it was an emergency surgery. I woke and went from the screaming pain of entering the hospital to feeling wonderful and ready to come home immediately. Oh, I had some incision pain, but was totally back to normal within a couple of weeks.

Then about 5 months later, I blew another disc with a total herniation. Now, that does not mean that everyone does such a thing. I am older than you by a good bit, plus I spent more than 28 years working with the military and hauling large heavy briefcases of documents while running to catch flights whether a military helicopter or a major airport. I have always done a lot of very physical work, so the fact that my body gave out like it did, does not mean that the next person will have a second herniation or even that they will need fusion surgery at some point. Some who worked as hard physically may never have a problem, and some who have never been physical may have lots of problems. We really don't know how each body will respond

Hope you can get better news when you talk with your doctor again.

 
Old 05-01-2006, 03:48 PM   #13
Senior Member
(male)
 
Join Date: Apr 2006
Location: Connecticut
Posts: 280
mmusilli HB User
Re: Please help I am scared about surgery I need advise fast

JC... My neighbor go fusion and one week later, was walking around like it never happened.. The important thing is that he used the best spine specialist in the area, which is now my doctor.. The Also, I dont see why insurance wont pay. If you need surgury, then you need surgury.. Auto insurance company should pay...

Our prayers are with you

 
Old 05-04-2006, 02:45 PM   #14
Newbie
(female)
 
Join Date: Apr 2006
Posts: 7
JCblue HB User
Re: Please help I am scared about surgery I need advise fast

Thank you QuietCook and MMusili for your advise and concern. Unfortunately my statute of limitations is up for my car accident I already spoke to a lawyer but hopefully all will go well with my insurance. I had another appointment with my neuro he has done a fellowship for spines and much of his practice deals with spinal injuries he has been doing this for over thirty years and is very well known internationally. I spoke to him about the microdiscetomy and he told me it is only used when one level is herniated and I have 2 levels of herniation so he will need to do the lumbar discetomy. After talking to him I feel much more confident about the surgery and just trying to stay positive.

 
Old 05-04-2006, 02:58 PM   #15
Senior Member
(female)
 
scbmxmom's Avatar
 
Join Date: Mar 2006
Location: SC
Posts: 145
scbmxmom HB User
Re: Please help I am scared about surgery I need advise fast

JC
Sounds like you are on the right track. It's good to ask lots of questions. And being positive is key. Like I said before [B]a lot [/B] of people have [B]great[/B] success with the surgery. Good luck!!
__________________
DD
Dec 05 - Discectomy L3/L4
Jan 06 - TLIF Fusion L3/L4
May 08 - Ruptured C5/C6
Jun 08 - Fibromyalgia
Oct 08 - Artificial Disc C5/C6
July 09 - Ruptured L4/L5
July 09 - Spinal Stenosis

Last edited by scbmxmom; 05-04-2006 at 03:00 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
L5 S1 Fusion in 5 days just a little bit scared!!! Kelliew Back Problems 37 08-07-2010 07:42 AM
back-to-back surgeries scheduled -please chime in Wymom94 Spinal Cord Disorders 8 04-04-2008 09:17 AM
1 day post-op / 2 level ACDF moonchaser Spinal Cord Disorders 19 09-03-2007 02:37 AM
need some advise please stefojo14 Addiction & Recovery 11 08-31-2007 07:19 AM
Really Don't know what to do! PLease help.. mitch_cab Sexual Health - Men 1 06-24-2006 05:22 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is Off
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Ibuprofen
Lyrica
Morphine
Neurontin
Oxycontin
  Percocet
Soma Tylenol
Valium
Vicodin




TOP THANKED CONTRIBUTORS



teteri66 (1107), gmak (127), SweetPeainSF (78), maltluver (71), twohands (64), pebblebeach3 (63), cheryl1213 (51), Moldova (46), ibake&pray (41), workinmom572 (40)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (832), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 05:25 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!