You are certainly not alone. I have terrible nights. Once I finally fall asleep I often awake, some night it's numerous times. Sometimes I have to get out of bed or else I get no relief. When I am in that much pain sometimes I feel as though I am paralized in pain and it's so hard to move at all. The pain effects my back (lower mostly but sometimes it extends to my neck), it effects my hips and my stomach, my right leg with numbness (sometimes my left one as well and both of my feet. Even once I get out of bed it looks as though I am totally drunk. I have no balance whatsoever. I have to make sure I have a really good solid pair of slippers and a cane or walker, in case I totally lose my balance. It's quite bad.
I have my second surgery coming up in a couple of weeks so I am praying for relief then.
If you don't mind me asking, what is your diagnosis? I look forward to hearing from you. Take care. Beachgirl.