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Old 03-02-2007, 12:23 AM   #1
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Join Date: Aug 2005
Posts: 11
melissa42472 HB User
Long, But Desperate For Advice

I got hurt 10 yrs ago I was assisting a very obese pt. from the Bedside commode she fell on me.
A few months later I was diagnosed with a neurogenic bladder, I was taught to self-cath
I went to neurosurgeon had T8-9 disc rupture with spinal cord compression. It also showed 2 lumbar disc bulges.
my neurogenic bladder is permanent.

In 2001, I was admitted for an acute L4-5 disc rupture.

At the end of 2002 I went back to work. I got local trigger point injections every few weeks from the pain clinic and had epidural steroid injections. I worked, missing a lot of time due to pain and times I couldn't’t walk or stand up straight. I often get UTIs and kidney infections.
I had to stop working a few months ago.
It’s hard to walk. When I walk the pain and weakness gets worse in both lower extremities the more I walk the worse the pain gets and I have to stop. When I sit or stand for extended periods of time I have pain in my back with numbness and tingling and decrease sensation to my lower extremities. Because of the decrease sensations, I sometimes trip over my own feet. stabbing pain in my thoracic area radiating to my ribs. My pain and spasms are so bad I get nausea and headaches and have trouble sleeping at night. I h

Although there are multiple areas of pain, My pain is real and has become very debilitating to me. It takes everything out of me each day just to do the best to take care of regular activities of daily living.

my symptoms are worsening really starting to scare me, because they are changing a bit. The spasicity in my legs is different. When I first stopped work, the acute spasms were really bad in my legs. I was having constant vibration type feelings in my legs. That is not as bad now but I have, which feels to me as severe sciatica down both legs it is so severe that when I drive the shooting burning pains and pins and needles get to the point where I just can not drive. Then after sitting a while my legs feel like rubber bands that won't stretch enough for me to walk they are tight, heavy, and tingling. My entire back and all my muscles are sore and burning with sporadic spasms. I mention driving cause that is when I feel the worse I do not know if it is because my position is so restricted to the seat.
My chest and rib pain is still really bad and I am starting to get the shooting pains and pins and needles in both arms. My left arm it shoots down radiating to my middle and ring finger. My right arm shoots to my thumb and index finger.
I am having very bad joint pain including my shoulders, elbows, wrists, hips, knees, and ankles, worse on the right side.
I have been having headaches trouble concentrating and fatigue also.

I feel like maybe I have some undiagnosed muscular disease or something. As far as my headaches, I find the more everything else hurts, the worse my headache is so it is probably tension headaches. I don't want a miracle just some type of treatment to improve my quality of life.

I have been in chronic pain for 10yrs have had many acute flare ups and medrol dose pak has been the treatment most effective, but this flare up has been for many months and not able to have any relief.

I can really use advice on what Dr. to go to next I can see any dr. in mississippi, but just need to know of one that will care enough to help.
Thank you again for your time.
Sincerely,
Melissa
the following are my latest reports
-----------------------------------
Date:13-Nov-2006 CT LUMBAR SPINE WITH CONTRAST: Following lumbar myelography, CT imaging of the lumbar
spine was performed in contiguous thin slices. Axial and sagittal reconstructions were performed. The vertebral bodies are unremarkable. The surrounding paravertebral soft tissues are unremarkable as well. The conus is unremarkable. The nerve roots are well distributed throughout the thecal sac. The T12-L1 level is unremarkable as is L1-2 and L2-3 and L3-4. At L4-5, there is mild broad-based disc bulge. There is minimal if any narrowing of the lateral recesses secondary to this. The L5-S1 level shows mild left paracentral disc bulge, but minimal if any narrowing of the lateral recess on the left. There is no significant facet hypertrophy although there is early facet hypertrophy present at L4-5 and L5-S1. IMPRESSION: Early spondylytic changes in L4-5 and L5-S1. No evidence of high-grade narrowing or compression at this time.----------------------------------------------

EXAM DATE: 11/13/2006 CT THORACIC SPINE POST-MYELOGRAM: TECHNIQUE: A post-myelogram thoracic CT was performed. Axial CT slices across the thoracic spine were obtained and produced along with sagittal and coronal reconstruction images. I have no older similar studies for comparison. The results are as follows: 1. There is a 1.4 cm rounded area of sclerosis posteriorly and laterally to the left of midline within the disc space at
T8-T9. This would be consistent with the history of previous surgery here. There are some adjacent arthritic changes at the articulation of the adjacent left rib with the vertebral body with some spur formation. There is a mild bony anterior impression upon the thecal sac to the left of midline at T8-T9. There is no cord deformity. 2. There is a 3 x 2 x 4 mm filling defect seen to the left of the lower thoracic cord at the T9 level. This would correspond with the small focal defect seen on the earlier myelogram images of the same date. I suspect that this lies along the course of a nerve root. 3. The conus lies at T12-L1. There are minimal degenerative changes along the lower thoracic spine with small marginal osteophyte formation, but this study is otherwise unremarkable. IMPRESSION: 1. Minimal degenerative changes lower thoracic spine. Postoperative changes are seen posteriorly and laterally
to the left within T8-T9 disc space with ossification across the disc here. Ossification here leads to a minimal anterior impression upon the thecal sac to the left of midline and there are some adjacent arthritic changes at the articulation of the left 9th rib with the adjacent vertebral body. 2. A small filling defect is seen within the thecal sac to the left of the lower thoracic cord at the T9 level. I would suspect a nerve root mass such as a neurofibroma. I would recommend a MRI of the thoracic spine with and without contrast material with special attention to this level.
===================================
EXAM DATE: 11/22/2006 MRI THORACIC SPINE: The thoracic spine shows good alignment. No abnormal marrow signal intensities are identified in the thoracic spine except to note a small hemangioma in the superior aspect of the T4 vertebral body. The thoracic cord is of normal caliber. The conus lies at the T12-L1 level and appears unremarkable. There are some minimal disc degenerative changes of the lower thoracic spine. However, I do not see any evidence of disc herniation or stenosis of the canal. At the T8-T9 level, there is a minimal bulge paracentral to the left and this minimally effaces the ventral thecal sac but does not impinge the cord. No abnormal cord signal is identified.
IMPRESSION: 1. Minimal disc degenerative changes at the lower thoracic spine. 2. There is a minimal left paracentral disc bulge at T8-T9 of doubtful clinical significance. 3. No vertebral compression deformities or marrow signal abnormalities are demonstrated.
===================================
EXAM DATE: 11/13/2006 Thoracic
Myelogram: After the intrathecal administration of contrast material at the L2-L3 level, and the images over the lumbar spine region, I obtained several images over the thoracic region. These images were limited because the patient was complaining of leg pain, greater on the left. The images revealed a small focal extradural defect to the left of midline on the thecal sac at the T9 level. These images were otherwise unremarkable, but a CT will follow for a more detailed evaluation. CONTINUED ON PAGE 2 Thoracic Myelogram, Continued: IMPRESSION: 1. Small focal extradural defect on the thecal sac to the left of midline at about the T9 level. 2. By the end of the imaging portion of the procedure, the patient as complaining of a good deal of pain in her legs, greater on the left.
____________________________________________________________
I have been in chronic pain for 10yrs have had many acute flare ups and medrol dose pak has been the treatment most effective, but this flare up has been for many months and not able to have any relief.

I can really use advice on what Dr. to go to next I can see any dr. in mississippi, but just need to know of one that will care enough to help.
Thank you again for your time.
Sincerely,
Melissa

Last edited by HBMod07; 03-02-2007 at 02:01 PM. Reason: Please review the Posting Rules, you may not reveal your profession

 
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Old 03-02-2007, 04:54 AM   #2
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Join Date: Oct 2006
Location: KC, MO
Posts: 2,212
yvette777 HB User
Re: Long, But Desperate For Advice

Hi, welcome here and sorry for all you are going through. Atleast you have a wealth of information here.

Your story about the bladder really sounds familiar, my counsins wife is an RN to and had a very similar thing. She was cathing herself etc to. She finally had surgery a few months back.I thought maybe you were her for a second.

Ofcourse I am not a doctor, but I would take all your tests and make an appointment with a couple of different neurosurgeons for their opinions. Most of the time they do not even read these reports just look at the films, because the reports are made up by radiologists.

It sounds like you have disc bulge problems and starting deg disc disease to me. You had some similiar words that were on my report that were part of ddd like sclerosis, and osteophytes which is bone spurs etc.

The things you describe aren't uncommon here, alot of us have all kinds of leg problems etc. sitting etc. - But here we all have spine problems.

Since you probably have the best insurance being a nurse, and access to information I would try to find the top spine specialist or neurosurgeon in your areas, but you should get a couple of opinions and go from there.

Good luck and welcome vette

 
Old 03-02-2007, 07:16 AM   #3
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Join Date: Aug 2005
Posts: 11
melissa42472 HB User
Re: Long, But Desperate For Advice

thanks for the response, trust me I have been trying to find a neurosurgeon, neurologist, ortho...etc.

About the insurance, i got hurt at work 10 yrs ago, it was very complicated, bottom line was worker's comp said I have to go to work but the Dr. would only release me for light duty.Workers comp found a job for me, i would have had to drive one hour to get there, it was a desk job, 8hrs/ day 40hrs/week.
I knew my back couldn't handle that. My lawyer told me to tkae the job or i had to sign a "release of responsibility from comp" so i signed the release.
I was married at that time and my husband had good insurance.

One shift took everyhing out of me and it would take 2-3 days of doing absolutely nothing but rest to recover.

I missed a lot of time with flare ups.
After all of that trauma, to my already messed up back, i have been progressively worse. So i stopped working at the end of november last yr.
I am not on workers comp because my injury 10 yrs ago is to blame. I prob could have claimed work related injury after the hurricane, but i am a very honest person (want to go to Heaven when i die...lol) had i not had all of the preexisting injuries, the work I done there would have never done this to me.

oh, ok now... to the point.....I do not have insurance. My doctor set me up with vocational rehab and it is very hard to get a Doctor to help. When I had all those tests pasted above in my first message, the doctors nurse called and told me, my test were normal, and he could not do anything to help me. He was an Ortho, i asked the nurse is it ok to make an appoint. to see him, or can he refer me to someone else who may be able to help... she said "no, because you are a voc rehab pt, and we usually give the results over the phone"
my family pract. referred me to neurology. i went to a neurologist one hour from home waited 1.5 hrs to get into the room, and his nurse took my vitals and went out with all my records. she came back in and said the doctor said he has reviewed your records and doesn't think he can help you! I walked out cried as soon as i hit the elevator, cried three days after that, went into deep depression for about a week, and finally realized this is so unfair to my kids, so,i picked myself up and have been trying to find a doctor who cares. i am not going to stop til i do.

I wish i could call dateline or something and have them investigate things like this...for example i wish they could go under cover with really good insurance and my reports go to the same dr.s who couln'd help me and see if they get further then I.

Maybe we can get a bunch of people who have been mistreated and write to dateline..20/20..Dr. Phil...anyone who will investigate this.
i do not think it is legal to exchange personal information for us to do that on this site, is it?

I really can't type any more pains really bad.
Thanks for reading and caring,
Melissa

Last edited by melissa42472; 03-03-2007 at 07:25 PM.

 
Old 03-02-2007, 06:15 PM   #4
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yvette777 HB User
Re: Long, But Desperate For Advice

Melissa, what an ordeal you have been through. What you went through with the hurricane I couldn't imagine.

I to found myself jobless and uninsured and unisurable. Its really tough, have you applied for mediciad?

I am sorry I willhave to finish posting tomorrow need to lay down. vette

 
Old 03-03-2007, 08:57 AM   #5
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melissa42472 HB User
Re: Long, But Desperate For Advice

yvette,
yes, I have been through a lot. I am very uninsurable. I tried to get life insurance. so my kids would be ok if anything even happened to me, but the rates were unbelievably high. Health insurance turned me down.

I went to the madicaid office and asked a few questions about applying. I think I am going Monday to apply. I really need it now because, not only do I have all of this back and muscle stuff going on, but I had an ultrasound last week cause I have been having pelvic pain and slight bleeding off and on for 4 months. I had a hysterectomy 2yrs ago for severe endometriosis which I have had 4 surgeries within 10 yrs. I only have one ovary left, which the Dr. told me 2 yrs ago that ovary would eventually have to come out too. but I beeged him to leave it if it looked ok.
who would have known I'd be divorced with no insurance. Anyway the ultrasound showed a cyst that needs to come out and he said i prob have adhesions and scar tissue causing the pelvic pain, from all my surgeries.
Oh well, what next, LOL...I am just going to take it one day at a time.
thanks for listening.

Melissa

Last edited by melissa42472; 03-03-2007 at 07:30 PM.

 
Old 03-04-2007, 05:48 AM   #6
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Join Date: Oct 2006
Location: KC, MO
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yvette777 HB User
Re: Long, But Desperate For Advice

I initally got turned downed when they go off of income. My family doctor wrote a letter, to whom it may concern explaining my condition and that I need surgery and am unable to get it. With this letter and applying for social security I was able to get a different type of medicaid well same kind but not going off income. It was for temporarily disabled. And I had been off of work for awhile, I had to prove I had applied for social security.

 
Old 03-06-2007, 07:54 AM   #7
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Join Date: Aug 2005
Posts: 11
melissa42472 HB User
Re: Long, But Desperate For Advice

went to my family practitioner yesterday, he is doing bld work to rule out rheumatoid arthritis, osteoarthritis, and lupus. He is sure from everything in the reports on my spine that I have osteoarthritis, but he is concerned I might also have Lupus. I should know more by Friday.

My disability worker sent my records off to the medical examiners, not sure how long it takes from then. wanted to go yesterday to apply for medicaid but just didn't have the energy, i may try today.

Thank you Yvette, for listening. but, I dont want it to be all about me. How are you. what problems do you have that brought you to this board. If you don't mind me asking?


Melissa

 
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