Hi bjmp: I live in a rural area, where there aren't any ortho's and only one neuro that treats backs, and what they do here is refer you to the closest Univ Hosp. Univ Hosp have spine specialist or what they call "complex spine" drs and also drs that treat scoliosis. If you have a Rheumatologist in your town they may be able to give some treatment, but I would try the closest Univ Hosp. Since I don't know where you live I can't say where that would be or if there is one within driving range.
We have 3 tertiary Hosp that are considered great but the closest is a 45 minute drive. Tertiary Hosp are the Univ Hosp that are known for the top drs who see unusual med probs, but they also take care of things like the problem you have.
Try that and see what you can find. Good luck, I was just dx with scoliosis as well.