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Old 09-13-2007, 09:46 PM   #1
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Diagnosed with Discogenic Disease

Backtracking about 15 years...that's how long I've had back problems. I'd go to the chiropractor and would feel better after a few times. Over the years I usually went to him several times a year (would have gone more if we'd have more money). Over the past year or two, I've been gradually getting more and more freqent lower back pain. Early last year I complained to my regular doctor about it. They did x-rays in the office and they said they didn't show anything. He put me on ultram and I took that for a few months, but I never noticed an improvement.

Last year my husband lost his job, we have no insurance and we now go to a free clinic. When I went there the first time, I had pain running down my one leg along with the lower back pain. I told the doctor that I have constant lower back pain, some days worse than others. I have to watch the way I bend, the way I walk, etc. When I get out of bed in the morning I feel like a 90-year old woman must feel. I practically have to roll out of bed. I can barely bend over to turn the faucet on to take a shower. Sometimes if I take too big of a step, an intense shooting pain goe across my lower back. It only lasts for a second or two, but it is so horrible it takes my breath away. One day last week I had such terrible pain no matter and could barely stand, sit, walk, or anything. That was the worst day I had yet. I know that that my back problem keeps getting worse.

The first time I was to the free clinic the doctor prescribed Prednisone for me and I was to come back in two weeks. The Prednisone didn't do a thing. Then he put me on Tylenol with Codeine, which also didn't do anything to relieve the pain. He sent me for an MRI and I think he said something about T4 and T5 vertebrae, whatever that means. I was back to see him again today because the Tylenol with Codeine wasn't working, so he said he'd put me on Neurontin, but I'll have to wait to get it through a patient assistance program, which will probably take a month. I'm 51 years old and he said we want to avoid surgery because I'm too young. Funny how I feel very old! He doesn't want to put me on any narcotics.

My orthopedic consult at a local hospital isn't until December 20, and that was scheduled at least a month ago. I had no idea that it was going to take so long to see a specialist, but I guess I can't complain since we won't be charged for the visit. The doctor at the free clinic said something about maybe I'll be able to get injections after I go to that orthopedic consult. I can picture that dragging out over more months! Just what injections would these be? Exactly where would they inject me? How bad does it hurt? I had a spinal tap done one time some years ago and swore I'd never get one again. If it's anything like that, I don't know...I just thought it was horrible.

Just what are people with this problem supposed to do? I hope I don't have to live like this the rest of my life. The pain is already so bad that I don't even want to imagine what it would be like 10 years from now. I might at some point wish that I weren't even alive if it gets absolutely unbearable. I really didn't picture my life ending up like this. Is this situation hopeless or not? Did anyone here with the problem get relief with anything at all? This is really depressing. I already have depression and now I'm even more depressed. Any help would be appreciated. I wish I had something to look forward to, but I'm really feeling down.

 
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Old 09-15-2007, 09:24 PM   #2
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Re: Diagnosed with Discogenic Disease

I didn't get any replies. I don't know if I forgot to mention that Discogenic Disease is the same as Degenerative Disc Disease if that helps. Maybe I'm the only one who has this.

 
Old 09-16-2007, 02:25 AM   #3
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Re: Diagnosed with Discogenic Disease

[QUOTE=comeonnow;3207874]
The first time I was to the free clinic the doctor prescribed Prednisone for me and I was to come back in two weeks.

[B]This is typical.[/B]

He sent me for an MRI and I think he said something about T4 and T5 vertebrae, whatever that means.

[B]T4 and T5 are located in the thoracic area of your back(mid back). Did your MRI show nerve compression? [/B]

My orthopedic consult at a local hospital isn't until December 20, and that was scheduled at least a month ago. I had no idea that it was going to take so long to see a specialist

[B]Is this orthopedic doctor a spinal surgeon?[/B]


maybe I'll be able to get injections after I go to that orthopedic consult. I can picture that dragging out over more months! Just what injections would these be? Exactly where would they inject me? How bad does it hurt?

[B]Typically they do these epidural injections in a series of 3 at least one week between each injection. Make sure that the steroid injections are doing under flourscopy so that the physician is seeing under guided imaging where the needle is being inserted. They will inject you in the level you are having problems with. They spray numbing stuff on your back. Numb the injection spot and inject steroids into the correct area. Sometimes you will have a twinge of pain especially if they have gotten it in the inflammed area. Each time I have had this injection it makes may pain markedly increased for up to a week and hopefully at the end of the week you will feel some relief with your pain.
[/B]
Just what are people with this problem supposed to do?

[B]My best advice to you is to become very educated on your spinal problems and remember you need to be very clear to your surgeon/doctor what the problem is. Don't go in and say I hurt really bad. For example, say when I walk down the street 1/4 mile a shooting pain begins in my leg. Be specific about what is causing the pain and what you do to relieve it.

It is normal to be scared and depressed. Many people suffer for months before getting to a spinal surgeon/neurologist for evaluation. That in itself is depressing. If it becomes a real problem, be sure to bring this up to your regular doctor so he can determine if you need to be on an antidepressent or not. Nine out of ten if your pain is treated, you will find that your depression will lift.

Just remember that we are here for you and if you have specific questions, ask away. I hope this helps and makes sense my medications are beginning to fog my thinking at the moment. [/B]
[/QUOTE]

Last edited by ms_west; 09-16-2007 at 02:28 AM.

 
Old 09-16-2007, 02:34 AM   #4
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Re: Diagnosed with Discogenic Disease

I believe that they both are the same thing.

Please don't be discouraged about the lack of response on the weekend. Things tend to be a little slower because many of us are spending time with our families and/or running errands with our families because we often depend on our loved ones to help us with errands/household responsibilities due to the back problems and not being able to lift and drive due to medication effects.

Last edited by ms_west; 09-16-2007 at 02:35 AM.

 
Old 09-16-2007, 05:28 AM   #5
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Re: Diagnosed with Discogenic Disease

Hi, ditto what Pepper told you. Many of us here have degenerative disc disease & believe it or not, it's quite common. However, not everyone gets pain or problems from it. I have it too and I keep getting disc herniations in my lumbar spine that cause shooting nerve pains, which is what it sounds like you are getting. It is very unfortunate that you have to wait so long to see the doctors and get tests, etc. I have insurance & sometimes I have to wait too long also. And in the mean time it's like how do you just live with that awful pain. It stinks, but I seem to have gotten used to it as many others have. Do you know how many miligrams of Prednisone you took? I only ask because if it was a high dosage & didnt do anything, then I wonder if epidurals would even help. But you never know. Many of us have had the epidurals..when I had mine, I had twilight sedation and felt nothing & thankfully the shots did help my sciatic pain, but it doesnt help everyone. I think Neurontin is med for nerve pain, so I really hope that it helps you. Again, though, it's a shame you have to wait so long for it. Are you able to go the Emergency Room if the pain gets too bad?

 
Old 09-16-2007, 12:24 PM   #6
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Re: Diagnosed with Discogenic Disease

Hi i am new to this so please bare with me.
Eleven years ago today 16/09/1996 to be precise i slipped three disc's in my back and it was the simpleist thing that caused it but ever since then i have suffered and when i say suffered i mean suffered at the time i was 28 years old with a 9year old daughter i cant explain the amount of pain i was in but for those of you who have ever had a slipped disc then you know what i 'm going through anyway since then i have had two pain killing injections in my spine (epidurals) and twice i have been for a MRI scan the last time i went to see my consultant at the hospital he told me that theycould'nt do anything for me and that i would just have to learn to live with (ok for them to say that they are'nt the one's suffering form this condition which i now know is degenarative disc's)
I take that many tablets i rattle when i walk. Today however which coinsidentialIy is the 16/09/07 has been a realy bad day for me which has resulted in the DR been called out to me because i am in so much pain and feel so down in the dumps i dont know what to do with myself i was hopeing he would give me an injection of something but he did'nt instead he has given me a prescription for MORE drugs and told me to go back to my own DR and get him to send me to the pain clinic wether this will help me god only know's but hey anything has got to be worth a try after eleven years of suffering.
Anyone out there who suffers from this problem you have my sympathy believe me.
If this thread does'nt make any sence to you or the spellings are bad then i i'm sorry its the drug's i'm takeing for the pain although as my username suggest's !!!!!!!

[QUOTE=comeonnow;3210611]I didn't get any replies. I don't know if I forgot to mention that Discogenic Disease is the same as Degenerative Disc Disease if that helps. Maybe I'm the only one who has this. [/QUOTE]

 
Old 09-18-2007, 11:53 AM   #7
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Re: Diagnosed with Discogenic Disease

dietdrpepper, I'm not really sure exactly what my MRI showed. The doctor asked the girl (I'm assuming a nurse) in the patient room where I was and she rattled something off, and I think that's what she said (the t4 and t5) but maybe not. My problem is in my lower back. I honestly don't know if it showed nerve compression but I'm kind of assuming that. The next time I go I'm going to ask for a copy of my results. I don't have a scheduled appointment though. He prescribed the neurontin and I'm waiting to get the paperwork in the mail from them to send to the drug company so I can fill out my part and send it in and get the medication. I hate having to wait but whaddya do?!

I also don't know if the orthopedic doctor is a spinal surgeon, but even if he is, my doctor at the free clinic doesn't recommend surgery. After reading on here about people being worse after surgery, I don't think I'd want it anyway. I hope that orthopedic doctor gives more answers than the other doctor has so far and has more of a solution. I really am tired of living with this pain. I'm so depressed. I wake up nights from being in pain and then feel dead tired the next day, and this goes on every night now. I can tell that it's getting worse because I could at least sleep a year ago.

So what if I do go for epidural injections and they don't plan on doing them under guided imaging? I doubt if they'd do it if I'd demand it, and my appointment would be cancelled and I'm back to square one basically. I'm hoping that they will have that though. I sure hope they spray numbing stuff in my back because after having a spinal tap about ten years ago, I think I have an aversion to having someone sticking needles in my back. I honestly think I could make myself sick if I'd think about that experience long enough. It was absolutely horrible, and nobody ever had to talk to me again about having a spinal tap done..uh uh! There was so much pressure in my back, my legs were shaking, oh gosh, I hated it! I was drenched in sweat by the time I got out of there. The spinal tap was to rule out having I forget what as the reason for my headaches. Then I had a horrendous spinal tap headache that would go away. I couldn't sit up or my head felt like it would explode. So the doctor ordered caffeine IV on an outpatient basis at the hospital. I ended up having some kind of reaction and thought I was having a heart attack. I ended up down in the ER and was screaming because my head hurt so bad and I was throwing up and I can't remember when I felt more awful than that time. So now I will just put up with my headaches. I've always had them and it's not like they're debilitating, just annoying. They aren't anything near like the migraines I got after having that spinal tap done.

So you're saying that if I have epidurals, I'll actually feel worse for a week? I hope that I will feel better after that, but I guess how long it will last is probably anyone's guess or even if they do help my back, huh? I don't even know if these epidurals would be paid for since we don't have insurance. I don't know how much the free clinic and hospital is willing to put in me moneywise.

I had started going to a chiropractor in I think about 1990 or 1991 for backaches and I wonder now if it was this all along. My back got better though after I went to see him. I can't afford to go to him anymore. I just hope that having him work on my back didn't make it worse in the long run.

I am specific when I tell the doctor about my back and he asks me exactly where it hurts and if anything makes it better. I'm honest and say no, nothing, not tylenol, tylenol with codeine, ultram er, bengay, ibuprofen...NOTHING. I'd at least have a ray of hope if something would make it better. I didn't expect to get to this point until I was about 80, but I'm only 51 and feel like I'm falling apart. I can't walk for long, stand for long, lay for long, sit down for long. It's hell, and it's horrible to wish you'd just die and get it over with because I get the feeling that nobody knows that they're doing and I'm not going to live with this pain the rest of my life. I already take antidepressants from being depressed for years over my general life. Can't tolerate jobs, can't get social security or supplemental, no insurance, no savings, we can barely get the bills paid, filed for bankruptcy, my parents are aging and that's on my mind. Our son and daughter had to put themselves through college (son flunked out but still has to pay on loans) because we never had the money. I feel like a total failure and I'm sure this probably adds to my back problems. I'm always aching almost everywhere. I think I have arthritis too because my hands hurt, but I haven't even mentioned that because I'm already on about 8 different meds for various things including asthma, allergies, GERD, the back problems, depression, anxiety and panic. Now all this disc stuff is getting me even more upset.

Thanks for helping and sorry that I feel so hopeless.

 
Old 09-18-2007, 12:10 PM   #8
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Re: Diagnosed with Discogenic Disease

Baybreeze,
I guess my common sense tells me that I'm not the only one with this problem but when I'm feeling super bad and pitying myself and wondering why doctors dont' know more than they do, then I feel all alone and feeling like nothing will ever help me and I might as well be dead rather than go through this pain. I won't kill myself, but I've told my family that if a car ever hits me and kills me to not cry for me because I will at least be out of this suffering. I'm getting the idea that that is the only thing that will ever put a stop to it.

I actually hadn't realized that DDD is pretty common. I don't know why I didn't hear about it before, probably because I didn't know I have it and therefore wasn't paying attention to anything that was written about it. I wish so much that I were one of those people who doesn't have problems or pain with it. I hear all of these terms and don't know what the difference is between all of them. You mention herniated discs. Is that the same as what I have? I think the doctor had mentioned that I had/have that because of the pain that was running down my leg for a few weeks and then went away. What is a herniated disc? How is that different from a ruptured disc?

Yeah, I wish I could get in for my orthpedic consult sooner, but I was told that's the soonest they could fit me in. I thought at first it was because we don't have insurance and someone else has to pick up the tab, but I guess that's not the case if you have to wait long too.

No, I really can't remember how many mg of Prednisone that I took. That was a few months ago. I really hope too that the neurontin helps. I'm about at my wit's end because I've had this pain for a long time. My regular family doctor didn't really do anything other than have a regular x-ray taken and he said nothing was found, so then I got to thinking that it was all in my head. He didn't pursue anything after that, and shortly after my husband lost his job and insurance and here I am.

If I do have the epidurals, I hope that I can have that twilight sedation. I would prefer that so I don't know what's going on and I had that when I had an endoscopy done and didn't remember a thing. It's hard to believe that you aren't actually asleep. I feel like I was. I don't understand it, but I know that I didn't mind having it done. My throat was a little sore afterwards, and my hubby had to drive me home and I can't tell you a think of what went on other than the nurse sprayed my throat with some numbing agent. Then I got scared because I couldn't swallow and I said what do I do?! She said to turn my head to the side so the saliva could run out and I don't remember a thing after that.

I suppose anyone can go to the ER, but the question is can I afford to go to the ER. NOPE! I already told my husband that I will die in the house in so much pain before I go to the hospital for anything as long as we dont' have insurance. I don't want him burdened with thousands of dollars of medical bills that I know he won't be able to pay. He's the only one working, and I wish I could find something that I could tolerate, but after trying for many years, I'm still here at home, and we are poor as heck.

Thanks for your concern. It does help to know that you and others care.

 
Old 09-18-2007, 04:07 PM   #9
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Re: Diagnosed with Discogenic Disease

I think a ruptured disc is the same as a herniation, it's just another term that's used. But I'm not a doctor, so don't quote me on this. I can't tell you what you have, but it sounds like a herniation or something from the symptoms you described. Your symptoms sound like sciatica (nerve pain that runs down your leg from compression in your spine). A herniation is when the center of the disc pushes out through the outside part of the disc; there is a gel like substance inside there that can come out. It can push out into the spinal canal and press into surrounding nerves, which can then cause alot of nerve pain. Plus if the inside leaks out onto the nerves, that can cause pain too. It's similar to a jelly donut, if it gets squeezed, the inside jelly pushes through the donut.

You mentioned you just had an x-ray from your regular doctor. I also had an x-ray after a while of my back pain not going away. That seems to be pretty standard procedure. My extra didn't show much either, except mild scoliosis and some bone spurs on the outsides of my vertebrae. It wasnt until months later, after worsening pain, when I got to the point I was vomiting from the pain, that i had an MRI. WEll, my MRI showed all kinds of things going on; After so long of getting worse and trying all sorts of treatments, I finally had surgery.

 
Old 09-21-2007, 12:03 AM   #10
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Re: Diagnosed with Discogenic Disease

I'm so sorry that you've had to go through all of that. I think it's a crime that people like us here on the forum and others elsewhere have to practically get down on their hands and knees and beg for a solution. I sometimes wonder if the doctors even know what they're doing half the time. When we did have insurance, my doctor just had x-rays done of my back in the office and they showed nothing, so that was the end of it. He prescribed ultram for me but it didn't help anyway. I wish he had ordered an MRI back then and maybe I'd be closer to having less pain by now. I'm really sick of it and could just bawl. Yeah, I agree with you, how would they like to live with the pain. It seems they aren't really all that concerned if we have to live with it. I guess we'll just have to keep trying to find the answers. I get down in the dumps too.


[QUOTE=drugsdont_work;3211298]Hi i am new to this so please bare with me.
Eleven years ago today 16/09/1996 to be precise i slipped three disc's in my back and it was the simpleist thing that caused it but ever since then i have suffered and when i say suffered i mean suffered at the time i was 28 years old with a 9year old daughter i cant explain the amount of pain i was in but for those of you who have ever had a slipped disc then you know what i 'm going through anyway since then i have had two pain killing injections in my spine (epidurals) and twice i have been for a MRI scan the last time i went to see my consultant at the hospital he told me that theycould'nt do anything for me and that i would just have to learn to live with (ok for them to say that they are'nt the one's suffering form this condition which i now know is degenarative disc's)
I take that many tablets i rattle when i walk. Today however which coinsidentialIy is the 16/09/07 has been a realy bad day for me which has resulted in the DR been called out to me because i am in so much pain and feel so down in the dumps i dont know what to do with myself i was hopeing he would give me an injection of something but he did'nt instead he has given me a prescription for MORE drugs and told me to go back to my own DR and get him to send me to the pain clinic wether this will help me god only know's but hey anything has got to be worth a try after eleven years of suffering.
Anyone out there who suffers from this problem you have my sympathy believe me.
If this thread does'nt make any sence to you or the spellings are bad then i i'm sorry its the drug's i'm takeing for the pain although as my username suggest's !!!!!!! [/QUOTE]

 
Old 09-21-2007, 12:08 AM   #11
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Re: Diagnosed with Discogenic Disease

I don't know either if they're considered to be the same thing. I hear so much terminology and get so confused about it all. I did have the sciatica but then it went away. I always have a hurting back every single day for several years now with no relief. Thanks for explaining herniation for me. Ugh, no wonder I hurt.

Wow, it sounds like you've gone through a lot. Was this over a period of some years? I've had back pain for around 15 years, but at least it used to come and go, but now it's with me all the time. So your surgery helped you then, I hope? Thanks again for explaining things.


[QUOTE=Baybreeze;3214906]I think a ruptured disc is the same as a herniation, it's just another term that's used. But I'm not a doctor, so don't quote me on this. I can't tell you what you have, but it sounds like a herniation or something from the symptoms you described. Your symptoms sound like sciatica (nerve pain that runs down your leg from compression in your spine). A herniation is when the center of the disc pushes out through the outside part of the disc; there is a gel like substance inside there that can come out. It can push out into the spinal canal and press into surrounding nerves, which can then cause alot of nerve pain. Plus if the inside leaks out onto the nerves, that can cause pain too. It's similar to a jelly donut, if it gets squeezed, the inside jelly pushes through the donut.

You mentioned you just had an x-ray from your regular doctor. I also had an x-ray after a while of my back pain not going away. That seems to be pretty standard procedure. My extra didn't show much either, except mild scoliosis and some bone spurs on the outsides of my vertebrae. It wasnt until months later, after worsening pain, when I got to the point I was vomiting from the pain, that i had an MRI. WEll, my MRI showed all kinds of things going on; After so long of getting worse and trying all sorts of treatments, I finally had surgery.[/QUOTE]

 
Old 09-21-2007, 03:01 PM   #12
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Re: Diagnosed with Discogenic Disease

[B]"Wow, it sounds like you've gone through a lot. Was this over a period of some years? I've had back pain for around 15 years, but at least it used to come and go, but now it's with me all the time. So your surgery helped you then, I hope? Thanks again for explaining things. "[/B]

Comeon: My back disintegrated over a period of about 3 1/2 years until I was diagnosed with severe lumbar central canal stenosis, 2 herniations (one was torn). The herniations caused sciatic nerve pain and the stenosis caused neurogenic claudication pain. My back pain started out of the blue in maybe June of '03..it wasnt constant but I had what I know now as spasms. I would get flare ups constantly, and it would feel like the bones in my rear was hurting. I think I had the x-ray sometime in '04 ( i hadnt complained about it to my rheumy until then). I think in Feb '05 I finally had an MRI b/c my pain got so bad I was literally sick to my stomach, plus I could no longer walk upright & was lucky to walk as little as 30 feet or so before I couldnt go on anymore. I went almost a year in this pain, had epidurals (which helped my sciatic pain but not any stenosis pains)...I really could not even bear it anymore, and I had to get to work everyday somehow in this pain. I had many humiliating moments. I finally had surgery ..OMG today is my 1 year anniversary! I had it last Sept 21st. They did laminectomies to cut away alot of bone off my spine, cut away some of a ligament in there, not sure if they cut away any disc material. I was so overcome with happiness when I got out of the hospital bed and was able to stand tall again. I still have arthritis in my spine, so surgery cant do anything for that pain. I still have degenerative disc disease and keep getting herniations and bulges, but I knew my surgery could not cure that. My surgeon explained it all to me. But I am still soooo happy I did it becaue I can walk like a normal human being again...I also have some other issues, so I cant walk for too long (maybe 45 minutes max) but at this point, that will just have to do!

 
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