Hi my spinney friends,
Sorry I haven't posted in a few days. Couldn't help myself much less offer advice to someone else. I have kept up with all of you though. Lots of new posters...Welcome to the board
As you have all found, this is a great place with lots of caring, knowledgable people.
I apologize beforehand for the long post. Finally talked to my surgeon's PA yesterday and the PM today. Would be nice if they could all communicate!!
If you recall, the DR who did the second EMG made some recommendations such as a TENS unit, seeing a neurologist (he recommended a specific one who is good at helping patients manage nerve pain with meds),and coming off the Cymbalta so when I see the neurologist I can try other nerve meds without fear of interactions. BUT his very first recommendation was for a spinal cord stimulator. He was very nice though when I explained that I didn't feel as though we had explored all other options before doing this invasive procedure.
Surgeons PA said:
Stay on Cymbalta and let neuro decide if I need to come off.
Try a TENS unit...wouldn't prescribe the RS4I that W/C recommended which is a better unit for back patients.
OK to see neurologist if W/C will approve the one the EMG doc recommeded
I didn't need to come off Cymbalta but if I did...take 1/2 one for 1 week and then stop it!!!!!! Well, we all know that is NOT the way to come off this drug. Withdrawal symptoms can be very nasty.
W/C nurse case manager (has been great to me) said:
No, that is not the way to come off Cymbalta.
She already has approval for the RS4I External Stimulator (cost $3000-$4000) and will get it for me when the doc agrees to it!!
She will work on approval for me to see the recommended neurologist even though he is not in the W/C system!!!
I'm getting better care from W/C than I am from the doctors!!
So what am I doing?
I am weaning myself from the Cymbalta. I spoke to quite a number of people who had to wean themselves from Cymbalta and another drug, Effexor. You literally count the number of pellets in the capsule (160 in Cymbalta) and decrease by 5-15 pellets every 2 days. Is this a good way to do it? Maybe not the best but certainly better than the PM said to do it!!!????? So far I have decreased by 35 pellets and have had no side effects. So I will just continue.
I will wait for referral to see neurologist.
PT gave me a regular TENS unit today so I'll try that and see if I get any relief from it.
Meanwhile I am still in pain and very frustrated.
Sorry so long (warned you
), glad to be back and hope all my buddies are doing better.