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Old 10-26-2008, 07:47 AM   #1
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Join Date: Oct 2008
Location: ENGLAND
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flower22mary HB User
Unhappy Spinal Cord Stimulator

HI, At the beginning of September I had a SCS fitted. At the moment I wished I had not bothered. I have more back pain than ever. It was fitted to control the chronic pain in my legs. I have been told this is normal but it does not feel like it. Has anyone else had one fitted if so did you experience pain at the tunneling site. I am unable to do anything really physical and have to rely on my husband to help me.Somedays the pain is really really bad. Thanks for reading.

 
Old 10-26-2008, 12:42 PM   #2
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Join Date: Jan 2008
Location: MT
Posts: 39
alpine HB User
Re: Spinal Cord Stimulator

Yes, I have a very similar situation. I had my stimulator implanted in March of this year. I have a lot of pain at the site of the lead...almost like an electrical shock going through my soft tissue. Before, I had low back pain and leg pain. Now, I have low back, leg and thorasic pain. I've had a lot of reprograming of my SCS, but to no avail. After a lot of agonizing, I'm going to have an L5/S1 fusion to fix the problem rather than mask the pain. My surgeon is going to take out the SCS and as much of the lead as he can.

Sorry you're having a similar experience. It's awful to go through surgery and have it not work.

 
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Old 10-27-2008, 05:21 AM   #3
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Join Date: Mar 2007
Location: wenonah nj usa
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mewcamaro HB User
Re: Spinal Cord Stimulator

Hi Flower, I do not have the Spinal Cord Stimulator yet but since I am still in so much pain after having 3 surgeries (2 lami/disc and ALIF 2 discs removed with titanium ones put in and a fusion) I think this is the next step my nerusurgeon is going to do.

He has no idea why I am still in pain, right now I am having a series of epidural injections with still no relief.

I have heard that the Stimulator doesn't work that well and many people complaining about them.

I'm glad you shared your story, I am leaning towards not having that surgery.

Although I am in great pain everyday, I think I will just have to live the rest of my life in pain and accept it. I think 3 surgeries is enough, like baseball you get 3 times and your out!

Marie

 
Old 10-27-2008, 08:54 AM   #4
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Join Date: Aug 2005
Posts: 273
Lynne720 HB User
Re: Spinal Cord Stimulator

My bf had 4 back surgeries and his right hip replaced this summer. He had a few complications and he is still in alot of pain. He went for some trigger point injections 2 weeks ago and they didn't help for very long. A few doctors, including his pm doctor, have suggested the SCS but I'm just afraid it will cause more harm than good for him. His immune system can't handle anymore operations and the thought of another infection and let down from this unit which I've read here that it hasn't helped alot of you, has me really hesitant. I've read that the trial has helped more patients and when the actual unit was put it that it didnt' work as well. His meds aren't even working as much as they used to. How do you guys cope? I am sick over all of this for him.

Lynne

 
Old 10-28-2008, 02:18 AM   #5
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flower22mary HB User
Unhappy Re: Spinal Cord Stimulator

Thanks for your replies. I had my 1st surgery 2001 a decompression of L2-L3. Another decompression L2-L5 2003. The first surgeon decompressed the wrong vertebra. This was not successful so in 2004 I underwent a spinal fusion from S1 through to L5. Big mistake!! Ever since a have suffered with chronic pain in my lower back and both legs and feet. Both legs and lower back feel numb to touch. My bladder function has also been effected. I have to use catheters when ever I need a pee. I was offered the SCS in June and thought this was the answer so I said yes after a little research. Sitting here writing this I really wished I had not bothered. I have even more pain in my lower back. It has helped a little with the pain in my legs. I have had it reprogrammed several times but it still not right, I need to go again and see if it can be improved. I do know that it has helped some people but not me. Maybe I am asking to much and should give it a little longer to see if it does improve. Have a good day.

 
Old 10-28-2008, 10:59 AM   #6
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Join Date: Oct 2008
Location: Big Rapids Mi
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danscarly HB User
Thumbs up Re: Spinal Cord Stimulator

wow thank God I chose today to look up info on scs removal.finally there are people who prove that I am not crazy.I had my stimulator put in end of June 07.Had some relief with legs but still major back pain.After two weeks of going a couple times a wek to get programmed my husband and my pain dr insisted on getting an xray to see if some thing was wrong.After being told surgeon was excellent and had developed almost foolproof placement of leads so they would not move mine shifted a great deal within two weeks period.Having it removed in Nov and I am scared to death of what I will have to go thru.You need to ask for an xray right away to make sure leads have not shifted.If they have you are putting yourself thru programming pain for nothing.Good luck

 
Old 11-04-2008, 03:57 AM   #7
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Join Date: Oct 2008
Location: ENGLAND
Posts: 5
flower22mary HB User
Re: Spinal Cord Stimulator

A lady asked me several questions by email have not been able to send reply. The battery is in my stomach and slightly protrudes from my stomach but I am still able to wear normal clothes.I do feel electric shock sensations from this spot. I had the full implant in September and I am still in a lot of pain. Maybe I am expecting to much to soon.

 
Old 11-04-2008, 04:51 PM   #8
Newbie
(female)
 
Join Date: Nov 2008
Location: Tulsa, OK
Posts: 5
ouarmymarinemom HB User
Re: Spinal Cord Stimulator

Hi Flower, just wondering who is the manufacturer of your scs. Also, does it hurt when you charge and how long does your charge last?

 
Old 11-05-2008, 02:51 AM   #9
Newbie
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Join Date: Oct 2008
Location: ENGLAND
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flower22mary HB User
Re: Spinal Cord Stimulator

Hello, My scs is made by Medtronics. It is non rechargeable. The rechargeable ones are not fitted here in my country. Regards

 
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