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Old 11-03-2008, 05:38 AM   #1
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Question Scheduled for Trial Neurostimulation / Does it help?

I am scheduled for the TRIAL medtronic scs nov. 17 I am scared to death, because the back surgery was supposed to be up in 6-8-weeks....2 years later, I am trying this..I am desperate...the pain is not going away by itself... advice?

 
Old 11-09-2008, 09:41 PM   #2
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Re: Scheduled for Trial Neurostimulation / Does it help?

I would really like to know how it goes. I am really feeling crazy right now because I had L5/S1 microdiskectomy and then left hip bursectomy all in Jan 08. Well I still have pain in my leg and hip and buttock that just doesnt stop. I have tried more injections, a myelogram, etc. and nothing helps and I get the looks like I am faking this somehow. They are now trying to get me to do the implant but I just don't know enough about it.
I feel like a crazy person. Please post your experience and GOOD LUCK!

 
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Old 11-11-2008, 01:00 PM   #3
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Re: Scheduled for Trial Neurostimulation / Does it help?

Nerve pain is the most severe kind of pain because it does mess with your mind...I will post how everything goes if i am able. I want anyone who has had experience with this to please let me know.......thanks!

 
Old 11-11-2008, 02:59 PM   #4
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Re: Scheduled for Trial Neurostimulation / Does it help?

Thank you and good luck!

 
Old 11-11-2008, 05:24 PM   #5
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Re: Scheduled for Trial Neurostimulation / Does it help?

My wife has a stimulator and would kill any one that even said it had to come out. I now have back and leg pain from a slip and my Dr. is talking about giving me one.I'm all for it. You'll have a trial to make sure it works for you. At the end of the trial my wife begged to leave it in until her perminate one was implanted 1 week later.

Dale

 
Old 11-11-2008, 07:27 PM   #6
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Re: Scheduled for Trial Neurostimulation / Does it help?

Were they able to find the source of the nerve pain? Or, process of elimination resulted in the neurostim decision? I feel like there is a huge bee wrapped around my left buttock and hip and my whole leg just aches and aches. It is so hard to explain it especially after all the tests are basically neg. Glad to hear more about this option. Just starting to explore it myself. Thank you all for your support and help.

 
Old 11-11-2008, 11:23 PM   #7
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Re: Scheduled for Trial Neurostimulation / Does it help?

[QUOTE=NiceShot;3790652]Were they able to find the source of the nerve pain? Or, process of elimination resulted in the neurostim decision? I feel like there is a huge bee wrapped around my left buttock and hip and my whole leg just aches and aches. It is so hard to explain it especially after all the tests are basically neg. Glad to hear more about this option. Just starting to explore it myself. Thank you all for your support and help.[/QUOTE]
I think that is the funniest way I have heard it described....thanks, but I do know it is NOT funny...I have that also and it feels likeI have stepped in a beehive and all of them have stung me and no relief...how are we supposed to function like this? People do think we are crazy, I am sure. they need to feel this for ten min. and they would know how it works on our brain. I went to neurologists, neurosurgeon to see if something might be trapped , had nerve conduction studies, three rounds of therapy, water therapy , accupunture, chiropractor, I may be repeating myself from a previous post, but to answer your question, they tell me that the nerves were just damaged in the surgery and no answer as to how long they could be like this....with them offering hope only with the stim. I believe they think it is permanent...It has been over two years of Hell on earth and I have to try something....with all the pacemakers and every other device they have to fix people, why shouldn't this be able to work. they say that the nerve pain in your feet leg and buttocks is the kind that this works best on...they tried so hard last year to get me to do the test, but at the time i was sooooo scared of anything else, I couldnt think of anything else....oh, I forgot, I also had a nerve block and an epidural that put me on the couch and in bed for three days...I believe there is a reason for everything, but me and God have yet to agree about why this is happening to me...HA HA I know he has a reason though... sometimes we have to be flat of our back to look up and see where our lives are going.... sorry, this is way to deep for two in the morning....stressed out totally over this,,,,I guess this is my last hope of functioning normally, and i am afraid it will not work..I am expecting too much from it , and also I am scared to hurt anymore. (the surgery). I am afraid it may just push me right on over the edge...Not that it is very far sometimes....Ha

 
Old 11-11-2008, 11:37 PM   #8
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Re: Scheduled for Trial Neurostimulation / Does it help?

OH MY GOSH,,,,,this is what i want to hear...where is her pain exactly and tell me everything....I am sooo excited.....where all did she hurt....I still cannot stand cover to touch my feet but I cant stand even a breeze to blow on feet either...I would love to be able to put my feet under the cover and sleep normally with my husband instead of fixing like two beds....... so many things we take for granted.... carol

 
Old 03-06-2009, 12:53 PM   #9
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Re: Scheduled for Trial Neurostimulation / Does it help?

USPS, Boy do I know how you feel. Just yesterday I went in for a transforaminal epidural injection and it did not help at all. I have been livining with this chronic pain for 20 years and have seen many Doctors but they don't seem to be able to help. Yesterday my pain dr. said my last resort was the implantable stimulator but I just don't know if I wont to go throug that. The problem I have where I live (Missour) is Doctors just don't want to give you any pain meds. You are right if they had to live one day in our shoes they sure would be taking something for pain. Living like this is hell and sometimes you almost want to give up but just keep hoping something will come along that will help. Sorry if I sound down but I really had my hopes up yesterday about the injection and now I just don't know what to do.

 
Old 03-06-2009, 12:54 PM   #10
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Re: Scheduled for Trial Neurostimulation / Does it help?

USPS, Boy do I know how you feel. Just yesterday I went in for a transforaminal epidural injection and it did not help at all. I have been livining with this chronic pain for 20 years and have seen many Doctors but they don't seem to be able to help. Yesterday my pain dr. said my last resort was the implantable stimulator but I just don't know if I wont to go through that. The problem I have where I live (Missouri) is Doctors just don't want to give you any pain meds. You are right if they had to live one day in our shoes they sure would be taking something for pain. Living like this is hell and sometimes you almost want to give up but just keep hoping something will come along that will help. Sorry if I sound down but I really had my hopes up yesterday about the injection and now I just don't know what to do.

 
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