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Old 11-16-2008, 04:43 AM   #1
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Could this be caused by problems in lumbar area

Hi everyone,
Have a question, at times I feel pressure very much like the kind you would get from constipation, but have it even when after bowel movement.
Does anyone know if that could be caused from lumbar issues?

I have not been able to get the doctors to repeat the MRI on the lower back due to the cervical surgery coming up. Yet I feel more & more in my lower extremities. I am getting worried about not knowing whats up down there. All I know is the problems that showed in the L1-2 from the C&T MRI.

Also for the women does the pain increase when your monthly occurs? It can be unbearable for me & wondering if this to is due to problems in the lumbar.

My PM said he will look into the lumbar after the cervical is addressed but I hate not knowing. He stated he may have problems with my insurance since the cervical is being done. I have to believe him due to the hassle I had with the insurance trying to get the first MRI on the cervical & thoracic.
Does anyone have problems with the L1-2, if so can you tell me your symptoms?
I have alot of issues that can go down the leg, mostly left but at times right & my knee feels like it can give at times.
I am trying to learn as much as I can about the lumbar area. Hoping to piece it all together some what. I appreciate any opinions, thanks & god bless, Sammy

 
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Old 11-16-2008, 08:25 AM   #2
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Re: Could this be caused by problems in lumbar area

I really dont know....but I will say that injuries in that area can cause loss of bladder and bowel control and is very serious....I would look into it at your earliest convenience. good luck


Devon

 
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Old 11-17-2008, 06:03 AM   #3
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Re: Could this be caused by problems in lumbar area

Hi, Sammy.

I have just come across your post and I have similar problems.

I am 20 and I too have degenerated/damaged discs in my Lumbar area - L2/L3 and lower.

I've had this back pain and leg sensations since I was 17 (2005) - tingling, numbness in areas, hot/cold sensations and pain at times. My leg sensations are also in my left but can come into my right leg too and go down both my feet into my toes too. My knee makes very loud clicking noises but doesn't give out. My hip also makes loud clicking noises. My pain does get worse when my monthly appears too so I do wonder if it has some sort of a connection. The pain is unbearable when I get it and I just have to sit or, preferably lie down as it is just so bad. My pain when I get my monthly is a deep ache in my lumbar spine and very severe pain in my legs and buttock area, both of them.

It started after I had a flu-like virus (vomiting, runny nose, very high temperature, hallucinations, severe aches and pains all the way down my body) and I've never been the same since.

I went to the doctors and told them about it in 2005 but they just ignored it and said it'll go better on its own and that it was just probably a muscle strain or growing pains. I figured it wasn't just that at all as I still had it a month after seeing them so I went back again and they still dismissed it. I then decided enough was enough and went into the hospital's minor injuries department and a nurse saw me and was much more sympathetic towards me than any doctor has ever been to me and phoned my GP practice up and asked for them to see me and I got an appointment on that same day in the afternoon. The doctor still insisted it was only muscular and just sent me to physiotherapy without even getting an x-ray first which I thought was a bit of a stupid way to go about it. I still didn't improve, in fact it made it worse with physio so I went back in October 2007 and demanded I get an x-ray as I still knew there was something more wrong than what these people have all guessed it was. I went for the x-ray in November 2007 and it came back with multiple degeneration of the lumbar discs and that was when I knew I was the one that was right. I knew my body was telling me that something wasn't right. My doctor, I think then realised he'd got it wrong and referred me to a consultant spine surgeon (though this spine surgeon didn't bother to see me and I never knew why) after making me go away for three months of exercises (again!). I never saw that spine surgeon (the none existent one!) but was transferred to a physiotherapist and he assessed me and sent me for an MRI. The physio did the right thing which the doctors should've done way back in 2005. The MRI came back showing degeneration of the L2/L3 discs and one lower down (can't remember which one) with Schmorl's nodes too (Schmorl's nodes are a defect of the endplates). I kept going back to my doctor who'd referred me to the non-existent spine surgeon and he thought I'd been seen by this spine surgeon but the look on his face was priceless when I told him he didn't want to see me and he then wrote another letter to the said surgeon, yet there was still no reply for months and months - the spine surgeon obviously wasn't one to see his patients for some unknown reason and didn't like to even have the courtesy to inform his patients, particularly their doctors that referred them the reason why he didn't want to see them which I think is disgraceful and rude, very unprofessional indeed. I'm glad I didn't see him now as he sounds a bit like a bad example of one that you shouldn't see. I then arranged to go and see another different spine surgeon as I knew at the moment I wasn't getting anywhere. I had to wait three months before I could see him but at least I did end up seeing him. In the meantime I also got a surprise appointment to see a Neurosurgeon at the same hospital that the spine surgeon who wouldn't see me worked. I was finally getting somewhere!

When I saw the Neurosurgeon he looked at me and asked questions then arranged a nerve conduction study. He suspects that the damage/nerve problem may be higher up so he plans to do a scan of the Thoracic and Cervical spine. I've got to now wait for the follow up appointment with this Neurosurgeon to see what's next.

The other surgeon I saw hasn't suggested anything as of yet. The only thing he could think of was that perhaps I had a small fracture that didn't show up on MRI so he arranged for me to have a CT scan of my lumbar region. Strangely enough he never really mentioned any sort of treatments for the degenerated discs. I've got a follow up appointment and will see what, if anything, comes up on the CT scan. Though I'll be very surprised if he finds anything else as the MRI, I'd have thought, would've picked that up.

I've talked to many a health professional about this flu-like virus starting it off and they just brush it off as "Oh, it was just a coincidence" but I know it's too much of a coincidence to be 'just a coincidence' and don't believe them.

In May this year I started getting numb areas on my pubic bone and slightly going in between my legs/upper thighs which is when I knew that something was going on. When I saw the physio I told him and another physio that I was seeing about it but they ignored it, don't know why as it is a 'red flag' sign and should be dealt with immediately according to what I've read.

I then began to get intermittent - not everyday - bladder frequency but without the urges and then in late August it got much worse and I have now got it everyday and the frequency is awful (I have to get up six times a night) and have got urge/full bladder feelings but am not leaking, thank goodness.

Your symptoms sound very similar to mine.

I have been told by doctors that I saw that they wonder if it's some form of arthritis, hopefully not, or a collagen variant that makes my collagen very lax which in turn would make my bones grind together sort of thing and then degenerate them. I am now having a blood test to see if I've got some form of arthritis.

I can bend my thumb to touch my wrist on the one hand which is a sign of extra stretchy collagen.

I would recommend that you certainly get this checked out asap.

Hope I could be of help to you and I do appologise for the long post but I wanted to give you the background information first so that you know what is going on.

Good luck, Sammy and I hope you can find some sort of answer. It may take a while, like me but hopefully, you'll get there.

 
Old 11-18-2008, 05:03 AM   #4
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Re: Could this be caused by problems in lumbar area

Thanks for replying both of you, Niad, wow that is awful.
I know the surgeon I had been referred to for my shoulder would not see me without MRIs or report sent to him prior. I guess some dont feel they should bother which is such a shame.
I am getting worried. Off to see the surgeon tommmorrow for the cervical but my lower back is getting worse. My right foot woke me up right along with my right arm & fingers. I really am afraid of having surgery on the C area to have to suffer the pain in the L area. I think I had symptoms years ago but the doctors ignored it just as they did the cervical. I used to get hot spots on my thigh. Like someone was holding a match to my skin. I am beginning to think its all lumbar related. I dread my monthly & know I will suffer more. Feels like my back is in a vice at that time & my legs feel like lead.
I to have to use the bathroom all the time. If I drink anything its one after another. I dont feel the urge until its to late most of the time so I am off & running. I have to say it can get on ones nerves, especially when your in some where like a store & cant hold it.
I really appreciate your post & feel bad for you but I have to say after all I have been through I dont have alot of faith in doctors. I am in Pain managment now & he is great but after all the run around & wrong diagnosises it takes alot to have trust.
I hope all goes well for you I will keep an eye out for updates on you. We seem to have problems in the same area. I dont know about the rest of the lumbar until they do an MRI, just the L1 & 2. I have a funny feeling there is more going on. God bless & thanks so much. Sammy

 
Old 11-18-2008, 07:20 AM   #5
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Re: Could this be caused by problems in lumbar area

Hi, Sammy.

I too am not looking forward to having maybe to consider having any sort of surgery if my C-spine has got a compressed/trapped nerve showing on the MRI as I think it's more risky than the Lumbar area, not sure.

I sometimes very occasionally get hots spots just how you have described it, like a warm heat kind of feeling, not painful just warm/hot feeling.

I also dread my monthly and am certainly considering stopping my monthly altogether so that I don't get them. I'm going to speak to one of the doctors about it as I just can't carry on like this with my monthlys giving me this much agony every month and threreafter. My monthly also makes my bladder problem much worse too so I'd certainly be glad to see the back of my monthlys.

My bladder problem has started to get worse. The pain is awful. It's on the one side of my bladder/abdomen and goes into the bit where my urine comes out and down my leg. It's a sharp, nagging pain and keeps me awake at night now. I just don't know what to do. I can't get an appointment with my Neurosurgeon until they actually get the results of my NCS/EMG and find my notes. I feel scared that I'm going downhill very fast and must get some scans of my whole spine asap. I am considering asking my mom to take me to accident and emergency and get it checked out asap. My bladder is just really nackering me up at the moment as I just can't sleep.

I have also lost a lot of faith in doctors as I've never had a good experience and all they do is sit there and say "It'll go better, it's nothing serious." or "I'm sorry I don't know what is wrong with you and can't tell you whether your back and bladder will get worse or better." I thought doctors were trained to actually diagnose and help their patients, not guess what is wrong with them or just say that it's nothing. It's rediculous and I feel exactly the same way you do about them. It does make me wonder how they actually pass their medical stuff and then forget about how to correctly diagnose and help their patient. I just don't know what to say to this state of the medical world today. It's attrocious.

I don't think I'll ever be able to trust a doctor 100% after what has happened most of the time as I just can't. It scares me to think I'll have to trust them if they have to actually do surgery or even something simple!

I also have a funny feeling that more is going on, like the Neurosurgeon said, higher up as well.

Good luck and hope you find an answer soon.

I'll keep you updated and keep an eye for any updates on you too.

 
Old 11-19-2008, 05:50 AM   #6
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Re: Could this be caused by problems in lumbar area

Niad, I have had the same thoughts, just asking to stop my monthly cycle. I may do that in the future. I think its smart to do the entire spine (MRI) if there is thought to be any problems in another area. Why put it off? We deserve to know whats going on with our bodies. I dont want to sit & wonder.
My family wondered why they did not do the whole spine the last time.

I am so sorry about your bladder problems I think that should be looked into asap. That would be tough to deal with. I know I take off at a run when I have to go there is no holding it at all & I have very little warning. It gets to you.
I tried years ago to get someone to deal with my lower issues but after being told it was in my head or I was depressed I just let it go thinking they would not treat my other problems if I pushed & that would have left me with pain I could not handle. I am doing my best to get over my anger with the doctors who chose to ignore my complaints. It has cost me so much of my life.

Sounds like you have alot in common when it comes to your monthly, which makes sense because our problems thus far are aroung the same area. I am really curious to see if any other women have the same, perhaps I will put up a post. Maybe someone has found I way to deal with it. I dread it & can barely handle it. There is a procedure that can be done to try to stop cycles. My neighbor had it but the name escapes me. She said it is a pretty simple procedure & she is so happy she had it done, but it does not always work on everyone who gets it. She gave me some litature on it. I will let you know if I come across it. Good luck, please let me know if you find out anything. Does your doctors know how bad your bladder has become? god bless, Sammy

 
Old 11-19-2008, 08:57 AM   #7
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Re: Could this be caused by problems in lumbar area

Hi, Sammy.

I've just been to see my Orthopaedic Surgeon and he said that there is nothing wrong with my spine and that there is only degenerated disks but not where the pain is coming from so he said there is unfortunately nothing he can do except be on painkillers which doesn't sound all that great but I've never been one to take lots of drugs as it can have other effects on other parts of my body and then I'll have another problem and another....

I don't know what I'll do as of yet as I still don't believe it as the pain is coming from somewhere. Pain is a signal from the body that something is wrong. It's its way of telling us and I know there is something up. It just needs further investigations on the whole of the spine, not just the lumbar area which is all the Orthopaedic Surgeon did.

I still think my Neurosurgeon is the key player in this and is much more thorough. It was his idea that he'd scan further up. I haven't got an idea of when I'm exactly seeing him but I know it's sometime in December. I haven't had these scans yet and hope he gets them done pretty quickly as I want to find out what is going on and to rule anything higher up out.

Though another suggestion is that I may well have Endometriosis which could well be why they can't find anything wrong with my spine and why my bladder is playing up. The next thing I'm going to do is get a laparascopy to rule that out. It is said that it can cause back pain and bladder issues too. The Orthopaedic Surgeon I saw did actually suggest it could be this as he can see nothing wrong with my lumbar spine and I have a family history of endometriosis. He also said to have the urodynamics that I am scheduled to have in December, though I haven't had an appointment yet to confirm this.

My mom also wondered (I actually wondered this first) why they didn't scan the whole of my spine too. It would seem like the best way and quicker way of finding out more about what's going on. They have only scanned the lumbar spine for some reason. I just don't see their logic in this either. What's the point in them only scanning the lower part of the spine when maybe, just maybe, it's higher up? It is kind of a bit silly, really.

I have actually asked them to get going on the tests and get me seen asap for my bladder but it just isn't working like that. I'm stuck on a waiting list and have to wait my turn in the qeue.

Yes, I too have been told 'it's all in my head' and this does actually hurt as it makes me feel like I'm mental and that they don't believe that I have a 'real' problem at all. It's disgraceful and to be honest, I hate anyone who ever says 'it's in your head' as what would they know? They haven't got the problem. I tend to think people do this just to get us more down than we are. I have certainly and still do feel insulted by it. I mean, you would think people would have more respect than to immediately come to that sort of conclusion. I s'pose it's because it's easy for them to say that really and brush it off. I understand exactly how it feels to be told that as I've been told it by various people. Sometimes it makes me want them to have to go through it and then they won't be saying that!

I too am angry with a lot of doctors I've seen as they, again, don't know what it's like, they've never had it. They just say that there's nothing they can do and they're sorry I feel like I do. Well if they're sorry, why don't they start trying to actually help me or at least give me some meds to help?

I would certainly be interested about finding out what that procedure was that your neighbour had as it does sound promising and I'd try anything just to stop my monthly as I too find that when I do get it I can't do anything for at least five days to a week. I dread it every month and don't know how I would cope when I have to start arranging things, even like holidays away as I just wouldn't enjoy it and would just be lying around in bed. I think it's certainly time to eradicate them for now and see how it goes but I can't do anything yet as I've got to have investigations and tests to find out what is wrong with my bladder first.

Is that procedure your neighbour had called endometrial ablation or Dialation and Curretage (D and C)? They are pretty much the only procedures I currently know that sound familiar.

I have told my doctors how bad it is but they say that they just can't help. They said that they don't want to give me any medications yet as they don't know what is wrong with me and want to see what the test results say first. Though I have thought about going to A+E maybe as it'd certainly be a quicker alternative but I just don't know as I went to minor A+E before and they just said that there wasn't anything they could do and sent me home again! Seems I'm just going round in circles at times and it's getting very boring and frustrating at the same time as I just don't know what to do.

Good luck with everything and I'll let you know what happens in the meantime.

 
Old 11-24-2008, 04:39 AM   #8
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Re: Could this be caused by problems in lumbar area

Niad, I am sorry you have to go through this. Its hard not knowing what is going on.
I do know that your body is telling you something is wrong & you are doing your best to find out what it is.
I was told my problem was not bad enough in the Cervical area to cause all these problems based on an MRI 11/2 years ago & now look here I am same area going for surgery. So all along it was causing me alot of problems but 1 MRi caused all this doubt & suffering.
As far as the MRI of the entire spine they only like to do the area, whether it be C,T or L that they think may be causing you any problems, based on your symptoms.
If I were you I would get the anything else looked at to rule out & then if all is well & you still have pain/problems I would insist they take another look.
I was in your shoes for along time & I know its hard not knowing.
I have to wait for the C area to be done to get the MRI on the lumbar & my back it really bothering me. I do know asap I will look into it, I dont want to suffer like I did with the C area.
I am not sure the name of the procedure yet that my neighbor had done, If I see her out I will ask her or if I come across the litature she gave me.
Good luck & let me know how it goes. Whats next? Still waiting for a call?
Sammy

 
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