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Old 03-02-2009, 11:09 AM   #1
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Smile what to do?

Hi group,
Just signed up. Am a big believer in these fourms. Have been a member of the CES (Cauda Equina Syndrome) group for years.

My question is that post 2001 fussion surgery, the pain I have not been able to deal with at accpetable levels is rectal pain and pain in my right ankle and foot. More recenlty daily migranes that med's seem to take care of. Have been told all this comes from the complete compression of the thecal sac 4 days prior to surgery. Yes, the doc should have done the surgery right away but didn't.

A current MRI shows dural ectasia at L-4-5 in the supeior right lateral recess as well as a lobulated seroma 2.6 x 3.4 x 4.1 cm.

I have done internet research on both and there seems to be no good answer except pm. I have seen some suggest drainage of the seroma.

Anyone out there with similar porblems and or had corrective action to address. other than pain med's.

Richard

 
Old 03-02-2009, 04:34 PM   #2
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Re: what to do?

Richard ,
Have you been seen by someone at a teaching hospital? I would probably do some searching for one near you and seek out the best of the best at it. I have no idea how to manage problems such as yours. I am also a member of the CES group. I see more and more of us , despite the fact that it is supposed to be so rare.
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Old 03-05-2009, 12:34 PM   #3
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Re: what to do?

Thanks for the response. I am seeking advice from my pm doctor but she is new and an anathesiologist (sp). I have done some research on the internet and it seems that not much can be done except more drugs! I am hoping that someone has the same issues. I think many may have but just do not get follow up MRI's.

Re: CES. I agree, it is far more common than what is documented, I was one of the original CES members back in 01. So many members now!


[QUOTE=backhurtz;3904606]Richard ,
Have you been seen by someone at a teaching hospital? I would probably do some searching for one near you and seek out the best of the best at it. I have no idea how to manage problems such as yours. I am also a member of the CES group. I see more and more of us , despite the fact that it is supposed to be so rare.
Back[/QUOTE]

 
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