Hi, I was wondering if anyone else has this problem? Pain in the lower back sometimes leg gives out my neurologist told me it is my sacral joint and later on would probably need surgery he'll let me know when it get's that bad but it is very painful and I also have a T2 hemangioma which has me in pain 24/7. Any help appreciated. Thanks
I had SI joint disruption due to a bad fall several yrs. ago. In June 08, I had a SI joint fusion....believe me, this is like no other back surgery. If you can get an injection & it works....stay with them as long as you can...or anything else that works. Unfortunately, my SI joint fusion failed...didn't fuse....and now I have to consider if I want to live with what I have now...or go for another surgery and hope that I fuse. My Dr. told me that he had only had 3 failures....and 2 of them had resurgery...and healed (fused) I am the 3rd failure...awww...so I have to decide what to due in the next few weeks.... You will need a special specialist if you have a SI joint fusion...check and see how many the Dr. has done....what the results were....what the expected recovery time is...(very long) and any other questions....check the DR. out very carefully...because there are so few who do this surgery you need the best.
Hi Sage thanks for responding before you had the surgery was your main problem one sided low back pain sometimes hard to walk and sometimes leg gives out? I think I will stick with the injections as long as I can it's a problem because I have this problem plus a t2 hemangioma which causes a lot of pain and neck pain so when I go in I have to figure out what hurts the worst. Not an easy task.
Last edited by soapies777; 10-28-2009 at 03:22 PM.
Reason: sage I hope you have a good day and hope you feel better too
Sorry that you are having this problem...prior to surgery I had pain on the right side (the side the SI joint was disrupted on...) I had falled almost 6 yrs previously and herniated my c5/6 disc at the same time. I went to every Dr. and had every test and injection I was told I have...and NOTHING...no relief. Even had nerve ablation done on lumber area (can't remember what level...low I think L4/L5...) Finally went to a wonderful neurosurgeon and he finally diagonosed me...then I had to find a DR. who specialized in this type of surgery...and again more tests...but that was ok...cause they finally found out what the problem was... I had the right sided pain down my leg - ankle - and of all places to end up - my little toe...I have said it many times, I actually though of eliminating the little toe...it was sooooo painful. After the surgery the leg - ankle - and little toe pain left me...but I still have the back/butt pain which sometimes travels to my right theigh.. My leg felt tired all the time...aching. I also have several hemangioma in my spine.....but I don't think they are bothering me. I was actually told that they are harmless...ha. Can you imagine. I just focus on the area that is hurting me the most...and that is the area that I try to get repaired. I took PT/massage (which I loved and felt better for it a little bit...relaxes everything!!) and many many medications...We are actually surprised that I was not addicted to pain meds....my pain mgmt. Dr. said it was because I needed them for my pain. (family Dr. kept saying dire things like I was addicted/the pills would stop working/I should learn to live with my pain- HA - he is learning...slowly that other things can work besides will power!) I have put my pride aside and now ride in those little buggies in the stores...it makes shopping so much easier and my day is not filled with pain because of the shopping experience...I let a lot of stuff at home slide....cleaning closets...well, the door is shut so who sees they need cleaning!! Gardening, I love, but a few weeds tend to blend in with everything else...I do the gardening, and have pain, but we do have tradeoffs. Right now, I am in a war with myself about having the SI joint surgery done again to make the joint fuse. This is not something I want to do...but I don't like pain either.
The only way you can be diagnosed with SI joint disruption is for you to have 2 seperate injectons in the SI joint. If the fluid in the injection flows out of the joint, it has problems...they do a CT following the injection...you also experience relief for a short time...couple of hrs...following the injection.. If this happens on both injections, you have SI joint problems.... If you find any way other than surgery to help your pain...do it, but if you can't find any relief...well, find a really really experienced specialist for SI joint problems and see what he suggests. Not trying to frighten you or sway you in any direction, just letting you know what I have found along the way. Take care..hope you have a good day!!
please anyone whos contemplating back surgery please look into prolotherapy first
Hello, I wanted to put this out there, because there are so many people suffering with si joint dysfunction,,, I was one of them. .. last december I was involved in a car accident, which left me with the diagnosis of a hypermobile si joint, turns out many of my joints are hypermobile i just never knew this. So after many months of miss diagnosis the joint being loose, not holding adjustments etc... I got to to the point where I couldn't stand for more than ten mins without being in agonising pain... I was a personal trainer, I was used to training five times a week, so to go from that to where I was, was awful.
I researched everything I could, I got an si belt to hold the joint in place but to no avail... after reading a lot on prolotherapy I found out about a very experienced practisioner in london, I started in may, its now sept and although I'm not 100% cured I'm 80% better than I was.... so I wanted to put this out there, for all of you that are being told 'it will pass' by your doctors, please don't rely on just the medical practise to fix u, please look into whatever u can.
Hello. Yes I was also suffering with this this si joint dysfunction. .. first of all you need to go to a osteopath and find out if the joint is stuck or loose. .. as there are to different treatment approaches... the stuck joint is easier to treat. If its loose try physio and an si joint belt first. .. see How that goes if your still getting pain. .. please look into prolotherapy.
Hi Proloforsure, I read your post and became a member to say that I agree with you. I've been getting Prolo for about 6 months and it has helped a lot.
People do need to know that it is a valid treatment and much better that fusing the joint. There needs to be a Prolo thread so others can learn about it.
Hey prolo. Thanks for you back up. .. when I was at my worst I was searching through these sites to find something that could fix me. .. a lot of the posts are quite old so I wanted to bring this topic up to date. Its bad enough going through all the pain without having to go through surgery and ending up worse than you started. .. there's a lot of people our there who have had surgery for it to go wrong. .. and then they have prolo. .. save your self the hassle of surgery.
Prolo has a problem being accepted in the U.S. because there isn't any money in it. It's sad but true. The drug companies can't patent Dextrose so they're not interested in it because they will not profit off of it. Doctors aren't going to get rich off of injecting Prolo,not much money in it for them. Also, surgeons will lose patients so they're not going to suggest it. The studies done for backpain are mostly bogus because the protocols used usually involve a few injections in the lumbar which isn't enough (at least 50 injections needed). However, the studies that were done on a smaller area like tennis elbow show very good results. Fewer shots are needed in the elbow.
Unfortunately, the Insurance companies look only at the bogus studies and decide not to pay for it which I find totally idiotic because Prolo is much cheaper than the surgeries that they'll cover.
With all that, fortunately here in the U.S. Sports Medicine Docs are starting to acknowledge that Prolo is a legitimate treatment.