I have had herniated discs in my L4 and L5, I understand the pain you are in. I was going crazy with the pain, and was tired of the pain medication, and all the tests. My dr wanted to do back surgery, but i was two months pregnant, and the thought terrified me. I started searching for alternate solutions. There is a procedure called VAX-D, which i found on the internet, and there was a clinic in MN.
It is something like traction, but not really. I went to the clinic, and brought my MRI with, the dr there said I was a candidate for this treatment. It has an 85% success rate, and it worked for me. It is worth a shot to check it out. The down side, is many insurances do not cover this. Hope you find some relief.
Thanks for your response <IMG SRC="http://www.healthboards.com/ubb/smile.gif"> glad to know I am not alone. I might check into that or anything at this point <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
thank you so much for all your information. I also have had a really bad year. but you have really been through it all. I hope you are feeling better or at least not as bad. <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
I also have had the steriod injections they are not fun , I am only on Darovet for the pain which really isn't helping, and I have voiced this with my dr. But he seems to think that Drugs aren't the answer, I know this but until we find the answer they help with everyday functions and take the edge off. I am also on Neurotin 200 mg 3 times a day. That too is not working. I have been in PT and that is not the answer, I am just so disgusted with the pain and my being away from work. I am getting ready to go on Long Term Disability from my job, I have been on FLMA off and on since last year. I have really large breasts and I am scheduled for a consultation for a reduction that would really help my back, they weigh about 10-14 lbs a piece. <IMG SRC="http://www.healthboards.com/ubb/frown.gif">
I am interested in learning more about your pressure test and what that involves. if you don't mind?
What other pain treatments have you had. perhaps I could suggest them to my doctor.
I am finding a lot of information on this message board already and I just joined today. I have a ruptured disk at L4-L5. I don't seem to have as much info as most of you. I have taken steroids orally but refused the ESI. I figured it was just temporary and so I am waiting to see what happens. I am 60 years old and kinda leary of surgury. I am enjoying reading the experiences on this site. apprentice
Welcome How long have you been on the steroids. My doc won't give them to me but 3 times a year, says they hurt the body. (like my body doesn't hurt now, LOL)
Keep reading and follow some of the links that Linda left at this posting. It will give you great info.
<IMG SRC="http://www.healthboards.com/ubb/smile.gif"> thanks sooo much for the information...I printed out the links and will read them tonight, too hard to sit and really read them. They look like they have lots of info and I am scheduled to go for doc appt on Thursday 07/18/02. I will be ready for him.. I really thank you for responding to my posts. Many do not. I am very grateful for your friendship <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
I have just about the same problems as you will see in my signature. I find it so hard to get comfortable in any position so I truley know how you feel. What if ay treatments have you done so far? Have you seen a neurosurgeon yet? I wish you luck. Keep us up on how you are doing!
DDD widespread, several disc hernations mostly L4,L5-S1 region, canal too small, nerve root clump, and multiple dehydrated disc. Have not had surgery yet.
Hey Von, I'm fused from L1-S1, 12 screws and 8 rods. I wouldn't really recomend doing it again.LOL
Someone else mentioned Kadian and it really is far superior to any other oral med. If you tolerate morphine. It lasts 24 hours but most take it twice a day to provide a smother serum level. I have been on it almost a year and haven't felt a dose wear off or kick in. Unfortunately my script plan changed and now I'm looking into the IT pump. It may also be an option for an inoperable back.
L1 is a terible place to end a fusion, It changes the axis of your entire spine. I feel like my whole upper body is trying to balance on a role of quaters. There was never an intent to end it there but due to my broken hardware from a previous fusion and dificulties removing the old stuff they cracked L2 and had to hop up to L1. Every doc I have seen since has said ending a fusion there is a big no no.
If you haven't found a good Pain management doc I would certainly start looking. You may get lucky of the bat or have to jump through a dozen hoops before someone will manage your pain properly. There really is no limit to opiate dosing as long as your tolerant. Side effects like urinary retention and constipation are the most dose limiting factors.
I do think some meds people develop tolerance to at a much higher rate.Oxy is the worst,IMO I started on Oxycontin and never found a dose that worked for long. With Kadian I haven't needed an increase since I was titrated on to it 11 months ago. I usually hang out at the pain management board but check in over here from time to time. Good luck with whatever you decide. Take care, David
This is the best article I have run across about CP and the use of opiates. It's definitely worth reading.
part 1 <A HREF="http://www.hosppract.com/issues/2000/07/brook.htm" TARGET=_blank>http://www.hosppract.com/issues/2000/07/brook.htm</A>
Part 11 <A HREF="http://www.hosppract.com/issues/2000/09/brook.htm" TARGET=_blank>http://www.hosppract.com/issues/2000/09/brook.htm</A>
Thanks for your very informative response... What is an IT pump ? how long have you been in this condition ?
I started in Sept-Oct 2001 and it has been escalating ever since. <IMG SRC="http://www.healthboards.com/ubb/frown.gif">
I may pop up on the pain management site so look for me ,,,, <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
thanks for your freindship <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
Von <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
Hey Von, I've been disabled since the last surgery, 4-1-99, I spent 10 months flat on my back before I found a PM doc to prescribe enough meds to allow me to walk and sit for more than 10 minutes.
An IT pump is an Intrathecal morphine pump. They can put other meds in them but basically it's a Pump placed in your ab that wears out in 5-7 years depending on the work load. They run a cath to your spine just under your skin around to your back and place a catheter into the thecal sac. The sac of fluid that surounds the spine. They can use Baclofin, a drug for muscle spasm and also use small amounts of numbing agents similar to novicaine directly on the site of injury or any pre decided location.
Medtronics makes the best, most programable as far as being able to give you bolust doses in the evening or whatever your pain pattern is. Here is there web site, <A HREF="http://www.medtronics.com" TARGET=_blank>www.medtronics.com</A>
The advantage is they use about 1/300 of your oral dose. I take 600mgs or morphine now a day plus BT meds so I'll probably end up the 3-5 mgs a day range. I'm just guessing, they document the 300th part but I have yet to see a chart that was anything more than a guide. With reduced meds you should have reduced side effects, especially cognative side effects.
You can contact them and ask for a list of docs certified in doing the pump implants and it's a good way to find a non opiate phobic doc or PM practice.
My PM practice pretty much does it all, they have several docs and I would basically change to the anesthesiologist and fortunately medicare pays for refills aas an office visit. Refills can be from 30-90 days depending on the dosage. That's done by injecting the med mix into a port on the front of the unit. With some body types you can barely see the pump with skinnier people it may be more of an appearence issue.
It's become very high tech and as long as the doc sees it as a tool and not the final cure all, where it handles 100% of your problems you should do fine. There are things that can go wrong, we know that from just being here.LOL No worries from me about it.You do a trial before the actual implant. I'm waiting on a trial date now, after doing their psych eval. Any other questions and I'm pretty easy to find at the PM forum. Just reading here today, you guys have a pretty active and helpful forum here. I may be around more often. Take care, David