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Old 01-02-2011, 10:42 AM   #16
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Re: scar tissue

If you run a search for artificial disc replacement, you will come up with tons of information. They are more commonly used in Europe and the UK than in the US.

I do not have any personal experience with ADR but I would strongly suggest that you check out your surgeon's experience before agreeing to this surgery. You should be convinced that it is appropriate for your problems and that he has done the procedure many times.

The problem with ADR is that IF something goes wrong, it is extremely difficult to remove once it is in place.

Also, if your search for ADR on this forum, you should come up with some experiences of people on the board.

When is the surgery scheduled for?

 
Old 01-02-2011, 06:14 PM   #17
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Re: scar tissue

[QUOTE=tetonteri66;4652282]If you run a search for artificial disc replacement, you will come up with tons of information. They are more commonly used in Europe and the UK than in the US.

I do not have any personal experience with ADR but I would strongly suggest that you check out your surgeon's experience before agreeing to this surgery. You should be convinced that it is appropriate for your problems and that he has done the procedure many times.

The problem with ADR is that IF something goes wrong, it is extremely difficult to remove once it is in place.

Also, if your search for ADR on this forum, you should come up with some experiences of people on the board.

When is the surgery scheduled for?[/QUOTE]
Thank you for your quick reply...The surgeon wants to do it as soon as possible as I'm just not getting any better, the pain is increasing a lot. I had another nerve conduction test that showed my nerve in my left leg was getting worse. The surgeon has told me basically it's my only option. I don't get any relief unless I'm flat on my back and drugs. I'm under the impression I have no other option. Thanks again !!

 
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Old 01-03-2011, 12:55 AM   #18
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Re: scar tissue

I am very concerned about this recommendation. First of all, if an artificial disc is really an option, it surprises me that it wasn't mentioned sooner (along with fusion.) Secondly, and perhaps even more importantly, this doesn't address the issue of scar tissue encasing the nerve root. In addition, the disc replacement surgery is likely to produce additional scarring, with adhesion to neighboring tissue a very likely outcome.

I'm not a doctor or other medical professional, but I think it would be very helpful for you to get a second opinion, preferably from a neurologist or neurosurgeon. It might be beneficial to consult with a pain management specialist as well, since I think that's where you are likely to end up if the disc replacement surgery doesn't address the nerve root issue. Ask each doctor you see for an opinion how much of your pain is due to the disc issue and how much is due to the scar tissue encasing the nerve root. If the scar tissue is reponsible for most of your pain, the disc replacement procedure might not offer substantial relief (especially if the procedure was likely to result in significantly more scar tissue formation.) If I was facing the same decision, I wouldn't proceed with any surgical procedure until I was certain that the surgeon wasn't likely to create more problems than prior to the sugery. Surgeons tend to see surgery as the solution to a given problem, and an orthopedic surgery might not use the same approach as a neurosurgeon, so I think a second or third opinion are warranted, and not necessarily from another orthopedic surgeon.

Please let us know what happens. I know that seeking relief from constant pain can be incredibly frustrating, but you have some support here.

[QUOTE=mce;4652536]Thank you for your quick reply...The surgeon wants to do it as soon as possible as I'm just not getting any better, the pain is increasing a lot. I had another nerve conduction test that showed my nerve in my left leg was getting worse. The surgeon has told me basically it's my only option. I don't get any relief unless I'm flat on my back and drugs. I'm under the impression I have no other option. Thanks again !![/QUOTE]

 
Old 01-10-2011, 04:02 AM   #19
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Re: scar tissue

I to have been dealing with scar tissue pain and also have tried many of the medications you also have to no avail...the only relief I do get from the pain is to be in bed....I so very much do want to know once again what a "normal life" is. My orthopedic had told me for my situation there is no operation for scar tissue because it will only form again, so I was sent to Pain Management, there they have tried 2 Transformial ESI (epidural steriod shots) I got very little relief from them, so they have offered me the Spinal Stimulator Implant, with the process of having this done I am hoping for the trial run in early Feb. with my fingers crossed. I have been reading up on the internet on the stimulator and the pain doctors have given me some dvds to watch and it does sound like an option I am willing to try at this point to hopefully get to be able to function. Best wishes to you

 
Old 01-17-2011, 10:20 AM   #20
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Re: scar tissue

Scar tissue formation can be a major issue, and further complicating the issue is that it's extremely difficult to predict how much scarring will occur and to what degree the scarring will affect the outcome. Scar tissue formation is almost always self-limiting, so if your body is capable of dealing with the adverse affects, in time you will usually find that the scar tissue formation becomes less of a problem. Unfortunately, when scar tissues attach to nerves (and then often to other structures,) the result can be chronic or even constant pain (or in the case of motor nerves, spasms, contracture, or some paralysis might be the outcome.) In my own case involving sensory nerves in the scalp, constant severe pain forced me to be bed-ridden for nearly a year and a a
half. My pain was actually being made worse by the narcotics I was forced to use, a real "Catch 22" situation. This was discovered after an overdose sent me to the hospital, where a change in narcotics made all the difference. Eventually my scar tissue formation slowed to a crawl, and my body was able to deal with the pain, but it has taken years, and it will be a lifetime challenge.

The Spinal Cord Stimulator (SCS) is a very good option for failed back syndrome and other localized pain syndromes. The trial is a very simple procedure, and you will know within a day or two if it is going to help you. If you do not get sufficient relief, you may still be a candidate for and intrathecal pump (usually called a "morphine pump" although many different meds can be used.) Another option being tested is direct application of local anesthesia (with meds like lidocaine, bupivicaine, etc.) Some pain sufferers get relief from lidocaine infusions directly into the bloodstream.

A neurosurgeon may also explore options of stimulating certain areas of the brain. Although Deep Brain Stimulation (DBS) has been reported in the news, other less invasive stimulation techniques might be suitable, such as motor cortex stimulation or periaquaductal gray stimulation. A neurosurgeon can discuss the various options with you, along with the risks associated with each one. The most important thing for you to realize is that you're not at the end of your rope yet; there are several options still available, so try to keep an optimistic attitude.


[QUOTE=greeneyes1966;4658082]I to have been dealing with scar tissue pain and also have tried many of the medications you also have to no avail...the only relief I do get from the pain is to be in bed....I so very much do want to know once again what a "normal life" is. My orthopedic had told me for my situation there is no operation for scar tissue because it will only form again, so I was sent to Pain Management, there they have tried 2 Transformial ESI (epidural steriod shots) I got very little relief from them, so they have offered me the Spinal Stimulator Implant, with the process of having this done I am hoping for the trial run in early Feb. with my fingers crossed. I have been reading up on the internet on the stimulator and the pain doctors have given me some dvds to watch and it does sound like an option I am willing to try at this point to hopefully get to be able to function. Best wishes to you[/QUOTE]

 
Old 02-11-2011, 01:00 AM   #21
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Re: scar tissue

hi, its been a while, I was going to have a ADR, but after a myelogram , showing L4/5 (as well as L3/4), was encasing my nerve , an ADR is now out of the question..thankfully it showed in M/gram as the MRI didnt show it !!! now I'm going to have microdsectomy, I have the impression this is a band aid for a while, then a double fusion later on, my surgeon feels im too young ? to have this surgery now...hopfully I will improve for a while, as im still basically bedridden, thanks for all your support Its really appreciated

 
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