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Old 02-13-2011, 08:25 AM   #1
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degenerative discs, back pain, both legs shake, any one else have the same?

I have been diagnosed with degenerative discs disease 9 years ago. I have foot drop and 30% feeling in one leg. My legs shake all the time my pain levels are high, this is from the moment I wake up till the end of the day when I finally fall asleep, I get this for weeks sometimes. It will follow my pain, the more pain, the more my legs and feet shake. Pain goes off, legs stop.

Has anyone else got shaking legs? What is causing the legs to shake, my feet really get going at times, one might rotate round, the other shakes sideways and very fast. It's very tiring, like I have done a marathon.

If any one else has had this or knows why the legs shake when the pain increases i would be most interested to hear from you.

Last edited by dynomo; 02-13-2011 at 08:37 AM.

 
Old 02-13-2011, 08:40 AM   #2
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Are you currently seeing a spine specialist? This sounds serious, I hope you are able to get some answers from a qualified specialist.

In my case, I get the sensation of shaky/weak legs but they don't actually give out or visibly shake. Evidently, that is from the myelopathy in my lumbar spine. A condition I am not finding much info about.

I see you are in the UK, so I know your system is different than here in the US. Can you arrange to be seen by a spine specialist?

 
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Old 02-13-2011, 08:50 AM   #3
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

[QUOTE=sassy411;4683544]Are you currently seeing a spine specialist? This sounds serious, I hope you are able to get some answers from a qualified specialist.

In my case, I get the sensation of shaky/weak legs but they don't actually give out or visibly shake. Evidently, that is from the myelopathy in my lumbar spine. A condition I am not finding much info about.

I see you are in the UK, so I know your system is different than here in the US. Can you arrange to be seen by a spine specialist?[/QUOTE]

Hi, thanks for the reply.

Yes I am in the UK. I have seen just about everyone I can here in the UK from a surgeon to a pain clinic. No fix is all I am told. MRI's don't show much, surgeon said I had degenerative disc disease 9 years ago when I saw him. Not one person can give me a clear explanation for why my legs are shaking. If I lie down they shake, or if I sit they shake, not so much when I stand. I guess that because my weight is holding them in place. My legs go heavy and drag alot when the pain is high. I have to sort of ski everywhere when I walk. I get lots of bad pain episodes.

Last edited by dynomo; 02-13-2011 at 08:54 AM.

 
Old 02-13-2011, 09:05 AM   #4
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Hello, and welcome to the board. I have to say that I am unfamiliar with the symptoms you describe, but I concur that you need to see an Orthopedic Spine Specialist or a neurosurgeon who devotes the majority of his practice to the spine. If that isn't possible, at the very least you need a new MRI to determine what is going on right now. Your family doctor can order one of those. I realize that the health care system in your country is different from ours but I think it very important that you push hard for the imaging.

You didn't describe the pain you are having, but the loss of strength in your legs and the numbness are symptoms of nerve impingement. After a time, the nerve will become permanently damaged, so it is important to try to prevent that.

I sincerely sympathize and hope that you find the care you need quickly, even if you have to see several doctors to find one who will help you. Please do let us know how you are doing and keep us updated on your fight to get the proper treatment.

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Old 02-13-2011, 09:29 AM   #5
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

[QUOTE=maltluver;4683558]Hello, and welcome to the board. I have to say that I am unfamiliar with the symptoms you describe[/QUOTE]

Hi, Thank you for your kind welcome,

your not the first to say that to me. I cannot find much about chronic back pain and shaking legs on the internet. I have just been reading a post on these forums of someone who had similar issues after having an injection in thier back. My pain levels vary quite wildly at times. I can go a week or two sometimes without very much pain at all, then other times I have to lay down on my bed, the pain gives me no choice and my legs will shake all the time. If I walk my legs just drag, I sort of cannot lift them whilst in high levels of pain. Stairs become a mountain to me. I can be laid up for two to three weeks on average lately. I am on strong pain killer medication, liquid morphine when I get real bad spells.

I had an MRI 2 years ago at my local hospital. This did not really show much up. In the UK once you have seen a back sergeon it's is very hard to get back to see them again. I have been to just about everyone can, pain clinic is the final stop and they could do nothing for me as I have learnt to cope with the pain the best I can after 9 years of having it. I know when to stop and my limits of what I can do. I just do what I can when I can and rest when the pain is to much.

Last edited by dynomo; 02-13-2011 at 09:31 AM.

 
Old 02-13-2011, 12:27 PM   #6
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

About 3 weeks after my initial problems of back pain/sciatica, my left leg started jerking (not shaking, but a quick, violent jerk every few seconds, kind of like the doctor testing your knee reflexes). Like you, it doesn't happen when I stand, but rather when I sit, recline, or lay down. I can put on a pretty good freak show with it, and it's really quite embarrassing. I have had so very many sleepless nights because my leg wouldn't stop jerking! I've had doctors give me many, many different explanations, from spinal myoclonus to a pinched nerve to damage to the reflex control of the leg to psychological.

I finally had a doctor put me on Baclofen which is a muscle relaxer and antispasmodic which is frequently used to treat MS patients. I'm amazed at how well it works! It's taken away 99% of the jerking. However, I've tried to lower my dose and go off the Baclofen several times and the jerking comes right back. I may have to be on it for life.

I've never gotten a definite diagnosis for the jerking and I've come to the point where I don't need to have an answer for everything. I've been told by several doctors they've never seen anything like how my leg jerks, so you may be in the same boat of having difficulty with the doctors to get a firm diagnosis for your leg shaking. I was evaluated for MS since that condition can cause limb jerking/shaking, but I was negative for MS.

Have you seen a neurologist for this condition? If not, it would be worth a visit to them.

 
Old 02-13-2011, 01:39 PM   #7
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

That's very interesting. Thanks for your post. I am not the only one then. I was told it was degenerative disc disease that was causing mine, then this and that and then it was psychological too like you when no one could figure out why it was happening. I was sent to see a psychologist and phyciatrist but they both said it was not in my head and was a mechanical problem with my back causing the problem. I already knew that. Apparently if it's in your head when someone talks to you and you answer back the shaking will stop whilst talking. Both concluded it was a mechanical fault in my back.

Both my legs shake at the same time. The muscles are being activated like yours, a sort of flicking of the leg and my feet flick in different directions. One foot will flick up and down, the other will flick in a circular pattern. I have had this for around 9 years. As my back pain rises the legs shake for weeks, pain goes down, the legs stop for a while. I suspect this is inflamation in the back causing something to sit on the nerves. If I sit still you can see my knee's are boucing up and down all the time making it uncomfortable to sit still. Plus is does no favours for my already painful back.

I have not seen a neurologist. It was hard enough trying to get to see the back specialist here in the UK. Our NHS is not that great, but they try to do thier best. Alot of the people I have seen give me no confidence that they know what they are talking about.

Last edited by dynomo; 02-13-2011 at 02:19 PM.

 
Old 02-13-2011, 02:24 PM   #8
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Well, it's worse than unfortunate that people in the uk have such a hard time getting medical care. Just because you saw a spine specialist once, does that mean that you better pray you never develop any issues with your back? I mean, I find that to be ludicrous. I'm afraid I can't see the rationale in it. If you were diagnosed with DDD, do they think that the problem won't get worse?

It's been 9 years and there is bound to be further deterioration of those discs and it seems to me that there must be some hoops that can be jumped through in order to be seen by the kind of doctor one needs to see. Barring that, perhaps a neurologist can provide some answers, tho for the life of me, I don't know how he would be able to treat you should you need surgery for impinged nerves for example.

I'm very sorry; I know this post isn't helpful. I have suffered terribly with back problems for many years and I cannot imagine not getting the medical care I need to get help.

My heart goes out to you and all those in need of a good doctor of their choice.

Carol
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Old 02-13-2011, 11:16 PM   #9
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Thanks for your post Carol !

For your information I have over passed 9 years seen many different people in the NHS. My experiences have been most of these doctors or so called experts don't know why my legs shake, even my own GP does not really know why. Some say it's where my pain levels are so high and that the shaking is my bodys way of dealing with the pain, others say it's damaged to my back that is causing the shaking, I suspect the latter. I had one so called expert doctor at a pain clinic here in the UK look at me for less than 2 minutes, did not even examine me, never felt the lump in my back and then wrote a report to my doctors that is was all in my head and I was not in much pain. Even though I was sat there with massive pain and shaking like mad in front of him. Hence why I had to have a psychologist and phyciatrist report done which proved otherwise. I was blooming fuming that happened, I know when I am in pain and why would anyone give me so many meds if there was nothing wrong with me. It beggers belief. I am in pain for 3 out of 4 weeks most months.

My pain is very disabling, I am bored with my bed now . I have tried to push through these pain episodes, but it is almost impossible to keep going. The pain just climbs higher and my legs go heavy, my other foot drops so I have to walk on my toes and drag my legs, legs shake more vigorously. You can fell a lump in my back when this is happening. I have to rest then the pain comes down again after about two weeks.

Last edited by dynomo; 02-13-2011 at 11:31 PM.

 
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Old 02-14-2011, 01:21 AM   #10
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

hi, im sorry to hear your going throught so much. i can relate i have degenetrive discs and sacroillitis, i live in ireland and have to wait till august to see a neuro surgeon in dublin as everyone iv seen in my own county cant help me. i have had the shaking of the legs when i rest or lie down. i also walk like i ski as i dont have the strength to lift my legs, my kids were only laughing at me yesterday saying i walk like a penguin i went to my orthapedic surgeon in oct and as he held my leg i shook out with tremors he was not happy and admitted me straight away for an emergency mri. he was convinced something would show hitting off a nerve but he could not see anything on the mri of nerve damage. i had to stay in hospital for 13 days and got injections and epidurals. the epidural was hell the minute the needle went in i was screaming with the pain in my leg and my feet went numb. the surgeon was not happy with this but said after 13 days he could not find anything to operate on or to work on to help with my pain. so he made an appointment with the neuro surgeon for me. he does not know and cant find the reason for my pain to be so bad and i have all the signs of nerve damage but he cant fing that either, so like you im waiting in a lot of pain for some answers. i think you should try to see someone to get another mri because my surgeon was very worried about the shaking he said it was not a good sign and he would not leave me home from hospital till the shaking and high levels of pain were some way under control. again im sorry you have to go through so much and i know how frustrating waiting for answers and not getting the help needed is, iv been suffering 10 yrs and only got to see surgeon and pain management after 8 thats how long waiting lists here are. take care and please feel free to talk at any time,, i hope your pain is a bit better today.

 
Old 02-15-2011, 12:00 AM   #11
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Hi Shelsers75,

sorry for the late reply, been having a bad spell of pain here this week. Backs locked up big time.

It's very interesting to hear from others who have the same shaking going on like me. Do your legs stop shaking when the pain is low and increase in shaking as the pain rises again? That's what basically happens normally to me. But interestingly the last few days the pain has been extremely high , enough for me to need to use to 2 crutches to walk and the legs have not been shaking. I have never had that happen before in all the time I have had this back problem. God knows what I have done this time to set the back pain going like it is right now.

Last edited by dynomo; 02-15-2011 at 12:02 AM.

 
Old 02-15-2011, 01:12 AM   #12
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

hi dynomo, im sorry to hear your still in so much pain, i think you should try see someone and fight till you get all the paossible tests and help you need. im in the same boat i never know when its going to get really bad, i dont have to do anything and it feels like it just snaps. i dont have the shaking all the time just when the pain is high but the symptoms are always different. some days i cant stand with the pain from my back, other days i cant feel my legs other days which is happening a lot now, i cant lift my feet im shuffling across the floor. my legs and feet feel as if there on fire. o you have problems with your knees and hips when im bad i get pain in mine.in the last 2 months im having problems with my neck and pain and numbness in my hands. the doc thinks its a muscle hitting off a nerve and its linked to my lower back problems, who knows. i feel like im falling asunder im in pain 24/7 and its getting worse. keep in touch feel free to talk at any time i log on every day and i hope this bad episode calms down soon and you can get some help. have you seen all the docs you can, have they said they cant help anymore, when my surgeon said that i asked for a referral to the neuro surgeon in dublin, maybe you could do the same, find out the names of specialists and ask them to refer you, well take care shelsers

 
Old 02-15-2011, 05:54 AM   #13
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Hi,

I saw my doctor yesterday. He says I have been just about everywhere and nothing much more we can do right now. Just have to rest and let the pain come down again on it's own. My pain right now is lower in my back, just above my hips. Normally it's about 2 inches higher up. I guess that's why I am not shaking right now. I do get pain in my hips and have knee pain as well. My knee makes some nasty clicks when I get up sometimes. I guess it's something to do with the way I walk on my toes as I have foot drop. Also have 30 % feeling in one leg. I do get pain that seems to go from bottom of my back to the top of my neck occasionally. I am stuck in bed right now.

Like you my pain varies so much. I can have days where the pain is almost gone, but that experience is becoming rare now. My pain levels start to rise over a few days, my legs drag like I am ski'ing is always a sign of bad pain is coming, then my legs will shake and the pain rises up. I can shake constantly all the time im awake for up to 3 weeks. I have no choice but to rest, lay down. I find it hard to sit and if I keep going the pain goes through the roof. It is very hard to cope with as I feel trapped in my house alot of the time.

Last edited by dynomo; 02-15-2011 at 09:49 AM.

 
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Old 02-21-2011, 02:25 AM   #14
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

hi dynomo,just a quick messaage to see how you are, are you having any relief. take care shelsers

 
Old 02-21-2011, 02:56 AM   #15
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Re: degenerative discs, back pain, both legs shake, any one else have the same?

Hi Shelsers,

Thanks for your message ! Yes having a good day today for a change. Still shaking abit, but pain levels much easier to cope with. My legs are not dragging today. It's a funny old game, this time last week I could hardly walk with 2 sticks. This will be my first real break from the pain in over 3 weeks looking back over my diary. Will make the most of it, I know whats just around the corner.

Hope you ok today? I take it your pain levels go up and down like mine?

Last edited by dynomo; 02-21-2011 at 03:05 AM.

 
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