Hi I am new to the board and I have started looking for "others" going through or have gone through what I have been going through for years! ugh I am on the verge of giving up hope.. but my son and husband have obviously advised me NOT to, and to them I owe that much. BUT I am NOT having ANY luck, and either with doctors! I am in CONSTANT pain 24/7, and this is NO life to live!! I have a VERY active 7yr old son whom I have to constantly tell him I am unable to play, or go outside and play/walk or whatever his little heart desires..This pain is debilitating, and makes me feel as if I need to be in a nursing home! My husband, thanks to him or I wouldn't have help, not just psychically, but emotionally as well, idk where id be without him. I have been dealing with this pain for 7yrs now, and over the years it has been getting worse. a few times a year my back goes out to where I am bed-ridden for days or weeks at a time.. and now I am unable to walk most of the time, even something as simple as going to the bathroom (with my husbands help that is) is something I do NOT take for granted! I have SEVERE back pain, associated with Sciatica, I haven't felt my right thigh in over 4yrs and now that numbness is spreading to the other half of my right thigh. and noticed a couple months ago my toes on my LEFT foot (in the web) are lightly numb too! Sometimes my back, with its pain with it will "paralyses" me to the point I am unable to move AT ALL from the waste down! and on the same side of my right body, my right ankle has never healed from a sprang, and surgery a year ago and constantly gives out on my, as well does my right leg, so walking is probably one of the hardest things to do! I have been on EVERY anti-flamatory meds their are, and over the counter pain medication. I just started recently seeing a "bone" specialist, whom has ordered a bone scan which came back "ok" and another EMG which we are currently waiting for results. I had/have a herniated disk MONTHS ago that NEVER Healed. I am in so much pain I cry ALL the time.. lets not forget the fact its debilitating that having to ask for "HELP" when going to the bathroom, all thoughts intended.. its seriously depressing.. I am losing my hope, and strength, idk where else to turn, my regular Doctor just says "psychical therapy" which I have done over and over and over again and the same results are still here and rearing its ugly head! And now insurance wont pay for anymore "sessions" so I am at back square one! I went to the doctor today and he just sent me on my way like its no big deal after I stressed how DEPRESSING this is, and how much PAIN I am in constantly, and he just said "maybe I can give you a referral for pain management!" but never did give me one! Has anyone gone through this? how do you deal? Where do I turn? like I said I am about to give up, I can't do this anymore, my life is withering away, and I don't even get to enjoy in life anymore, my son is growing up and his "fondest memory" of ME is going to be. "my mom spent my life in bed" I have done EVERYTHING my doctors have asked me to do..So what do I do now?
You really need an lumbar MRI and maybe a cervical one, as well. They might not tell you anything, but you have to find that out. Do not go to pain management until you've had the MRI's. Find out what's wrong before you try all kinds of treatments. That's just common sense.
I have had numerous MRI'S and on my second EMG and a recent Bone scan done! My blood pressure is spiking BC of the pain..today pain level at a "10" and it was 162/100!! I feel like I am losing my mind! I am losing my hope QUICK! I have been dealing with this crap for YEARS and its just getting worse and worse and I have changed doctors..and it just seems that and I quote "oh numbness is a normal part of life" are you kidding me! ugh.. I was researching and has anyone had an "myelogram"? I think that may be my next test..or atleast something I am going to ask for.. I know test and what not take time.. but I am living with severe chronic back and leg pain and I can barley take care of myself let alone my family! I just want to give up..why care when the doctors I am PAYING don't??
Sorry, I didn't see mention of MRI's. Anything recent, and particularly lumbar? I have some ability to interpret MRI's (likely no more than you, though, as you're a "veteran"). Other than that, I haven't got much to offer, other than that it would seem you need a new doc, unless he's just the latest in a string who have all told you the same thing.
Have you seen a fellowship-trained spine specialist? When you say you are seeing a "bone specialist" are you referring to an orthopedic surgeon or what?
You told us where your pain is located, but can you tell us if you've been given a specific diagnosis? You mentioned stenosis and that you had a herniated disc. What else is going on? Are you problems all in the lumbar area of the spine?
What does the EMG reveal?
Are you being treated by an interventional pain management doctor or a physiatrist?
It doesn't sound like you have had very effective treatment from whomever you are seeing. Sometimes it is necessary to travel to the nearest big city or major medical center at a large university in order to be diagnosed accurately.
Request a copy of the radiologist reports from your most recent two MRI's. There will be information in there that may help some of us point you in a direction.
I have been through 6 years of symptoms that sound similar to yours in some ways. I would feel fine one day and the next day I could hardly move, and it would last for a few days to weeks. Been through injections, physical therapy, etc with no results. Finally ended up with a pain management doc that figured things out. Facet joint problems, which has symptoms almost identical to disc herniation, except that it is completely unpredictable as to when it's going to flare up and how long it will flare up for.
In October, after two successful diagnostic injections to my facet joints at three levels, I had RF Ablation done. I have been almost completely pain free since about two weeks following the procedure. I have a transitional vertebra with psuedoarthrosis (false joint) on the right side. The transitional vertebra actually gives me 6 lumbar vertebra and only 4 sacral vertebra. This procedure is not a permanent fix, but I can actually do exercises again without causing pain, and the best thing is that I have my life back.
So my EMG revealed that I have nerve damage, and yet we dont know the extent of the damage..how did THIS happen?? :/ Disk degenerative disease.. and my arthritis has spread. and L3, L4, & L5 problems? The numbness is spreading, and walking is becoming more and more unbearable! the pain has now spread down into my right ankle which makes it impossible for me to walk now, and my left foot my toes (in the web) are completely numb now! Now the doctor ordered yet ANOTHER MRI.. and lets NOT forget the fact my hip is KILLING me now!! ugh man I feel I need to be in a nursing home anymore!! I dont understand why it takes SO long to figure out whats going on.. I am really losing faith.. I am sorry I am new at this so I WILL get the entire results of my tests.. thank you guys for the help so far!! Means alot to me!
Last edited by Charmed26; 12-14-2011 at 08:19 PM.
The following user gives a hug of support to Charmed26: Cymrudenver (12-29-2011)
With nerve damage, it sounds like it's time to see a neurologist. That is their specialty! A pain management doc would also be someone to consider seeing, but it definitely sounds like you need to see a neurologist.
It will be interesting to read some of the information from the radiologist reports from your MRI's etc. That will give those of us that are there with you a better idea of what is going on.
With my Facet Joint Syndrome, that issue had been noted in my very first MRI, yet none of the doctors except for my current one even went there. The RF Ablation did relieve all of my back pain. I still have some minor issues in my right hip. I have SI Joint disorder and a transitional vertebra with a pseudoarthrosis (false joint, unilateral, unfused) on the right side. I have 6 lumbar vertebra and only 4 sacral. I don't know if that discomfort will mellow out a bit more as I continue to add exercises, or if we are going to have to look at doing something with one of those two issues. At least I have had some very good relief from my pain.
I can relate to most of what you are going through, as my youngest was 8 when this stuff started up. I have two other boys as well who are 3 and almost 7 years older than the youngest son. I ended up missing out on a lot of things because of this. My boys have all been very supportive, as has my hubby, which made things a bit easier to deal with, but it's still difficult to be relatively young and feel like you can't do things you are use to doing.
It started out with a painful numbness, sometimes so numb I couldn`t feel my leg at all. Other times I felt exactly as if someone had poured a glass of ice water down my leg, along with the burning numbness.
Well, I never had it treated - nerve block was the only thing he could do, I believe, so I`ve had that for all these years.
It sounds like you are finally getting somewhere with your situation, although to me it seems unbelievably slow...
Best of luck to you, and may you find some FAST results! And here`s a hug.
Last edited by GraciePearl; 12-27-2011 at 05:35 PM.
So I am back at square one..ha where ever that is!! So Ive been diagnosed with Disk degenerate disease, nerve damage, arthritis and a herniated disk! Sounds fun! ha So I went to my Ortho doc yesterday & he says he has nothing left for me, meaning he's done all he can & now is referring me to a Pain management clinic..so therefore no more Tylenol 3 no help..oh and here's the kicker ALL the pain places around here do NO accept my insurance, so idk what to do now..
I have had an epidural shot 2weeks ago & had adverse reactions to it & at the first initial appointment the doctor performing it bluntly said "I doubt this is going to help you" & guess what it sure did not!! So I am back, freaking out because what am I a lost cause now? Not only is walking becoming the most fearful thing to do bc I fall ALL THE TIME but no sleeping now more than ever, and I am just down right depressed.. I am so ready to throw in the towel & just be freaking done!!!
My husband suggest that we add me onto his insurance but financially that is a REALLY bad mistake..so now what? I LOVE slipping through the cracks.. any advice? if I am unable to live a "normal pain free life" than I guess thats the cards I was dealt but that doesn't mean I have to live in agony till the day I die does it??... I am scared that I am stuck & my family is fearful bc everything in my life has a timer on it now.."mommy can't walk that far honey" or being 27yrs old having to use a chair when shopping at walmart bc I can't walk & its excruciating!!..Advice!?? It's greatly appreciated!
The following user gives a hug of support to Charmed26: SweetPeainSF (02-01-2012)
Location: San Francisco, California, United States
Re: Severe Chronic Back and Leg Pain :(
I'm sorry to hear about your insurance situation. When I first started having back problems, I had catastrophic protection only, so I just ignored it for about six months and eventually it went away, well, sort of, and only for a while. I understand your frustration.
The ortho doctor who acted like such a fill-in-the-blanks -- was he a spine specialist? I was diagnosed by a sports and spine ortho, had epidurals with a physiatrist, and eventually went to a spine-only ortho surgeon. Doctor 1 does not do epidurals or spine surgeries, Doctors 2 and 3 don't see you without the diagnosis and referral.
Since this doctor has essentially released you from his care, I'm hoping that there might be another spine-only orthopedic surgeon or a neurologist who specializes in spines out there who can offer you some treatment options. The doctors rarely "care" -- they are trained to be detached, though some are compassionate. Remember: it's your body. Doctors can treat you, but you have to live in it.