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Old 12-21-2011, 04:15 PM   #1
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child with back pain

hi im new here can anyone help me understard my 10 year old daughters mri it reads.there is
blunting of the antro-superior endplate of the body of the T8.there is minor associated oedema.normal alignment.no
sinister bony lesion identifed.disc spaces are well preserved.within the canal at T8 is a linear of low signal which is
most suggestive of and ectatic vessel.would be gratfully of your thoughts.
2 months ago she was complaining of weak legs in the morning,but didnt start getting back pain for a couple of weeks later.she is ok in the mornings but come evenings she is in a lot of pain.
there is prob very little wrong and i no there is a lot of plp on this site in alot worse form but its hard to watch your child in pain.sorri for goin on

Last edited by katiebear; 12-21-2011 at 04:44 PM. Reason: forgot information

 
Old 12-21-2011, 05:21 PM   #2
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Re: child with back pain

anyone have any ideas?????

 
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Old 12-22-2011, 08:16 AM   #3
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Re: child with back pain

Welcome to the board. I'm sorry your daughter is having pain. I know how heartbreaking it is to watch your child in pain and to not be able to do much about it.

I didn't reply right away because I don't feel I am knowledgeable enough to feel secure in an answer. I wouldn't want to tell you it is nothing to worry about and then have you find out that wasn't correct, or, vice versa.

Thoracic issues aren't that common, and, luckily, I haven't been afflicted with any issues in that area, so have no personal data to call upon. Also the language in the radiology report is a bit different from what I am used to seeing here in the US. I have asked a friend from the "spinal cord disorders" board to take a look and see if she can help, so please be patient a bit longer. Jenny should be able to provide some insight.

For the most part, the language you have copied appears to me to say that most things mentioned are well within the normal range.

It appears that the discs are in good shape, the spacing is normal (meaning there is no compression), and everything lines up normally (meaning there is no indication of any instability). The endplate is what you could think of as the edge of the vertebra that runs along the disc. (When you look from a side view of the spine, when you see a spinal segment, it consists of the two vertebrae with a disc separating the two bones. You can think of it like an Oreo cookie, with the vertebrae being the cookie and the disc being the filling between the two wafer cookies. The endplate when it is healthy looks like a smooth straight line. When it says the endplate is blunted, it means that on the film, something is causing that edge to look less that perfectly sharp and straight. The report goes on to say that there is some swelling that goes along with this blunting, but that everything else appears as it should be.

The part I am not familiar with is the "ectatic vessel" (which is a blood vessel
that has expanded beyond what would be considered "normal" size.)

The tricky part of any MRI is deciding what is important or significant and what is not. The radiologist is compelled to report what he sees on the films without subjecting anything to his personal judgment of whether it might be important or not. He writes a report which is read by the treating physician, who will examine the patient, and then combine the findings of the MRI with what he finds in the physical examination and whatever information is gleaned from the patient's medical history.

Has your daughter recently gone through a growth spurt? I personally don't see anything on the MRI report that jumps out and says "this is a reason to have pain." But, as I said above, we are not doctors, and I could be mistaken!!

Hopefully someone else will be more familiar with the ectatic vessel mentioned in the report, and can give you a better idea!

Last edited by teteri66; 12-22-2011 at 08:19 AM.

 
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Old 12-22-2011, 08:57 AM   #4
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Re: child with back pain

Hi Katie......Teri asked me to come over and see if I could help but vascular issues within the cord are not my area either so I've asked someone called "Feelbad" to take a look at the MRI results. She is more versed in the area.

But as a mom, I feel for you. Horrible when a child is in pain and you don't know how to help. Just be you and love her as best you can.

Hope Feelbad can shed some light on this. When you can ask the docs, please let us know what they say is wrong. We all care here.

Hugs...........Jenny

 
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Old 12-29-2011, 09:42 AM   #5
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Re: child with back pain

sooo sorry it has taken me a while to just finally get here. too many things in my world not going so well between a freakshow c spine mess, and FROM a vascular glob that was found in my spinal cord that needed to come out. so i do have some knowledge of vascular spinal issues.

what i am wondering here is what her actual doc had to say per this report? is she seeing at least a neurologist, or even better, just considering the possibilities with vascular issues, a good knowledgable neurosurgeon to best explain? that really IS who i would be trying to get her in to see if she is not already, an experienced in vascular issues type of ped neurosurgeon. they just usually ARE the go to people, then the interventional neuroradiologists. or REALLY experienced vascular type of specialists? it all depends on how things just 'are' in your part of the world. but a good NS would more than likely at least refer her for some type of angiogram to be done so they simply can best define this vascular issue.

anytime anything 'vascular' is simply found within the spinal, the main thing that is simply a must here is to find out just exactly what particular "type' of vessel this is that she is dealing with as being enlarged(going by terris explanation, have not yet looked this up myself), either this is an artery or arterial branch vessel or venous vessel. the best way to find this out, if they simply cannot tell per the MRI would be with a really good angiogram done ON that area by a type of specialist called an "interventional neuroradiologist". OR, if the initial MRI was not done using any type of contrasting agent to simply best highlight the vascular, that could possibly show that vessel much more clearly. but the angios really ARE the best for defining vascular issues.

but they NEED to find out why she has ANY actual swelling going on there at all(could be fluid seeping from that enlarged vessel too, esp if the 'natural flow" is not right/backed up causing engorgement) and what is triggering the enlargement of that particular vessel. the mere fact that she IS having any neurological symptoms and pain as well just really makes this a bit more impactful and that NEED to truely know what is behind this found out.

there just can be many different types of actual vascular malformations that anyone can also be born with ,as was my case too. this is probably some type of actual congenital 'defect' within that particular area/vessel that was simply 'formed' that way? it just happens in some people. i really AM so sorry that this is even occuring in your child at all. i know how horrid it can be just watching your child suffering with any medical situation too. went down THAT road with a ton of major medical issues with my youngest son. if you could let us know just exactly what type of doc she is seeing and what you have been told at this point, and what 'plans' any given doc has mentioned for her as far as 'truely defining' this area to check out any potential risks or impacts to any given areas, that would help to know. as the others have said, the way this report is simply written up IS a bit different than what we usually see in US MRI reports here.

but if she IS being impacted by this whole area and what is going on with pain and the neuro symptoms, it just HAS to be better defined in order for the docs to even come up with at least 'some' type of a treatment plan. any real 'changes' that our blood vessels simply 'do' in us can also cause pain in and of themselves as well. if this vessel is somehow also dilating then constricting in her in that area, THAT too would generate some level of pain and possible sensory issues too depending on the type of vessel and impact to it, as in "major/branch arterial, or" venous/major or branch return'. the MRI is NOT like a 'realtime ongoing' type of picture like an angiogram would be where they could actually shoot the dye into that area and then watch that particular vessel on the screen to see if it IS expanding and constricting too. just knowing what YOU know at this point, hopefully something more than when you initially posted this on the 22nd would help. and again, i really am so sorry i was not able to get here much sooner. i hate to leave anyone hanging, esp when it involves a child. but anything new that you have found out would help us to help you alot. after your response, i WILL respond MUCH sooner, i promise. sorry you even have to be here katie, marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 01-01-2012, 08:17 AM   #6
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Re: child with back pain

hi again katiebear. i am hoping that you ARE getting the emails from your post sent to your email? i REALLY would love to know just how things are going with your daughter at this point. like have you seen a good neurosurgeon or even a good vascular doc at this point in time? have you found out ANYTHING that you were not aware of before you posted and just from that initial MRI yet? it's just the actual location where this enlarged blood vessel was actually found that concerns me the most, within that spinal canal?

after doing a bit of research, i DID find that 'most" of these DO occur within the dura(within that spinal canal) which is simply one of the three, but outtermost layers of the actual spinal cord. but alot of mentions of potential aneurysms too(that would be the worst case scenerio, but could be venous too). and if that IS indeed the case, this just does 'up' the need for full Dxing and intervention if this is the underlying make up. luckily, our arteries(unlike our venous system), if this is in one, actually have three pretty strong layers in each and every one of them, only because they DO carry all high pressure blood flow. i have also had an aneurysm in my brain too that never burst and was successfully coiled and taken out of the circulation permanently. there just ARE ways that vascular malformations of many types CAN be helped or interviened upon successfully.

i am also wondering, just becasues they found not just that ectatic blood vessel in the mid T spine, but that 'blunting' of the vertebrae there too, if they have possibly now MRIed her whole spinal column area from top to bottom, just to hopefully rule out any other potential areas of what would have to have been, at least with the overall 'shape' of that one vertebrae, more than likely a 'congenital issue" at her still young age? believe me, there just are many many different things that a human being can have that is 'off' or different than the norm that we are simply 'born with' too. these 'oddities or congenital defects" in many cases are simply not known until they either 'present' themselves with specific symptoms that require ongoing testing(as in your daughters situation), or the more common thing, they are found kind of as an 'incidental finding' on some type of a scan that just gets done for a completely different reason? been there done THAT one with my congenital vascular malformation inside of my cord, 'incidental finding' on my c spine MRI that was done for just a herniated disc.

i realize that you do more than likely have alot on your plate right now, but if you just could please let us know how she is doing and what you have found out, we 'could' possibly still help you with info/advice here. or simply be a good sounding/venting board for YOU.

when it comes to peoples children having to deal with stuff like this, i REALLY DO care soo much more about them, and the parents too who have to deal as well. no child should just have to deal with what can be some pretty major medical issues that can just suddenly pop up in their lives. they 'should be' just 'kids'. i just truely would like to know what you have found out so far. and also hope your daughter is doing okay with all this. if you just have some time or need to ask questions or even just 'vent", PLEASE DO pop back in hon. that IS what we are here for. i am just so sorry i could not get here sooner for you. take care katie, marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 01-03-2012, 05:53 PM   #7
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Re: child with back pain

happy new year to you all and thank you so much for all information ye have given.sorry i haven't got back to ye sooner after all your hard work.just to let you no the background....
when i first brought katie to my gp he ordered an xray,but when i brought her to the hospital they said it would be less harmful to do mri scan and to come back the following week.when we returned they told me it would take half an hour but then the nurse called me in and asked if they could give contrast.results came to my gp the following day which is really quick for the part of ireland we live in.when he called me to come in for results he said he didnt no what results ment so he rang the radiorapher(sorri bout spelling) radiorapher said fatie would need to be refered so my gp has refered her to a peds doctor we have no nero doctors or vassel doctors in our hospital so its just a regular ped doctor.dont no how long ill have to wait for appointment but my gp said he put it down as urgent so hopefully will see someone soon.
Again i would like to thank you all so much for taking the time to help me out i will keep ye posted on how she gets on and i hope and pray that this will be a good year for ye all as reading your posts ye seen to have a lot of suffering xxx hugs to you all

 
Old 01-04-2012, 09:12 AM   #8
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Re: child with back pain

big hugs right back to you hon. anytime a child is involved with ANY medical situation, i think we all here tend to REALLY want to help the parents out even more. i too have been thru ALOT with our youngest and do know what its like to be left hangin in that holding pattern of "is this bad, or really bad, or something more handleable'. you just realistically won't know anything solid until she CAN get in to see the 'right' type of specialist somewhere there.

hopefully, once she sees this other ped doc, they will be able to direct you to who she really DOES need to be seeing for 'her' type of problem. tho they may not actually have that "right' type of specialist at the hospital you are currently going to, there just HAS TO be some type of a vascular or neurosurgeon who handles what are the things, like this, that involve vascular issues for people who have other types of vascular problems simply CAN be referred to, ya know what i mean?

is there ANY type of an actual "teaching' hospital(university) at all near you somewhere(even a couple hours away from you)? these types of facilitys just would be ideal for her to see one of their specialists at. unfortuently, it sounds like you may have to do at least a little bit of traveling in order to just get her to the very BEST type of specialist for what she has going on in her spinal right now. the main problem here is unless she just DOES get referred eventually to that "appropriate' specialist, finding out anything as far as what this actually is, the type of vessel it is in, and more importantly, just what this may mean for her both now and in her future will never be realistically found out.

if possible, i would get online and start doing some searching on anyone/or facility close enough for her to eventually be seeing that IS a ped specialist in either neurosurgery, or an NS that specializes in vascular issues, or even a 'vascular specialist". there would just almost HAVE to be someone that others with like aneurysm, blood clots or other odd things that just can occur within vessels actually sees in your area somewhere, or alot of people who get these types of issues would have NO ONE to go and see to get this type of vascular involved and some highly life threatening depending, esp within the brain, first, fully evaluated and then properly treated, ya know?

hopefully you can get somewhere with this referral, at least to the 'right' type of specialist. but i would do some searching online just to even possibly find other parents who have a child who is dealing with ANY types of vascular issues to see where THEY went for help. anything that you simply CAN do, and you can do alot online for your child(trust me), will help both you and your daughter in all the best ways when you do see that ped doc. having any good info on someone she should/could be seeing will help this new doc make the appropriate choices in just who she really NEEDS to be seeing right now. that area with that vessel just HAS TO be better seen and evaluated right now to even know just what part or parts of the possible spinal cord and the vascular make up of what type of actual vessel it is that is also enlarged too. there just can be alot of different reasons for an enlarged vessel. it can be kind of a "backflow' issue where for some reason, the area(vessel) that this is supposed to be running into to just continue normal flow has either a too small diameter or some type of a real 'born with/congenital' issue, or even that one area of the enlargement could have been a congenital defect of some kind too. but anytime you have a vessel that will not allow all the blood to simply 'flow thur it' for whatever reason, it will back up in there and enlarge/engorge the other side of a vessel in most cases. so that is the bigger thing here, the 'whys' in how this is even occuring.

getting a good angiogram if at all possible seriously would show things in that area in the very BEST ways tho. did they end up using contrast with that MRI or not?

thanks for responding hon, i really wanted to know just what you had found out and what any actual 'plans' had been made, but it sounds like you are still in about that very same place you initially were, but with at least a referral to someone who can hopefully refer you to the 'right' doc for katies needs. i really do hope that this is how things go for both of you. but please DO keep us all posted on her, and you too,K? we all are just here to try and help when we can. hang in there 'mom'. marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 03-06-2012, 09:57 AM   #9
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Re: child with back pain

hi all,hope ye are all keeping well.so sorry i have not got back to ye sooner.
well im still getting no where went back to my GP last week as katie was in a lot of pain to see if he could get her an appointment any quicker as she is not seeing paediatric doctor till april 12th,but when he rang the hospital they said she would not be seen any sooner as its her first time going about this prob.

i really hope ye are all keeping well and thanks for letting me rant

Big hugs to you all from ireland
Grainne xx

Last edited by katiebear; 03-06-2012 at 10:03 AM.

 
Old 03-06-2012, 11:41 AM   #10
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Re: child with back pain

How frustrating! Is there something you can do to make your daughter more comfortable while you wait?

 
Old 03-07-2012, 09:02 AM   #11
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Re: child with back pain

i sooo agree with what teri just said. honestly, there is NO reason that just becasue you cannot get in to actually 'see' this other doc til flippin april, that your referring doc cannot actually CALL that doc/specialist himself just to find out what WILL help with her pain(it is called a "consult' between docs, simple as that. just for "their much more experienced advice"). i would be bugging the living heck out of the referring doc to CALL the specialist just to get "something' rxed for her(any Rx needs to still come from hER actual doc and not the specialist yet since he has never even seen her). this is simply cruel to do to any child, and for you to have to watch as a mom too.

the bigger problem here when simply even dealing with most types of vascular issues that have not yet been fully evaled and better defined is trying to find just what you even 'can' use as far as pain control. any NSAIDS like advil, motrin or the longer acting like aleeve are usually NOT recommended simply becasue they DO tend to also thin blood and if there just happens to be a weak spot in that vascular area(or simply do not KNOW for certain the 'make up' of this, the 'whys"), it can make things much worse if 'something' should trigger even a minimal bleed. we also do not know yet if this actually is an artery or vein either. and believe me i KNOW how much THAT sucks. have you tried using anything like tylenol/panadol for her pain yet? if you have and that is NOT working at all(and the doc NEEDS to know this too), that doc really needs to kind of go the safest route here and possibly place her on some form of at least lower type of a narcotic like at least codiene as needed. most narcotics in general would actually have the least risk and potential side effects for HER 'type' of pain and situation.

while i do not normally advocate placing ANY child or teenager ONTO any types of narcotics depending, in this particular case given what her actual pain generator just even 'is' along with other probably better for 'her' type of pain meds working much better FOR this type of probably more inflammatory but vascular pain, it would seriously be the 'safest' type of med to give her at this point. unfortuently, until this vessel simply really gets better defined and understood, certain things just usually in most cases cannot be given. at least that is the protocal here in the US. even trying to use heat or cold on this, while it may actually make things feel better for her, one dilates vessels(heat) and the other constricts(cold)them, so even the 'basics' are kind of iffy just not knowing what is the underlying cause of this just 'is' or how it could react, could simply even 'do' to that vessel and to her, you know what i mean?

but DO keep on that referring doc til someone simply does LISTEN to you and does something to actually help her. she just should NOT have to lie there suffering when there just ARE many ways she could be helped with her pain. this is what i have had to do in also advocating for my son. 'we" can make a huge difference in how our children simply get treated by bugging the heck out of the right people to simply do THEIR jobs for us and our children.

if her pain simply DOES get way too much for her, take her to your local ER and demand that somebody help her with the pain. let them also know about that upcomming apptw with that specialist but it is not until april too and USE that docs name as well. it may make a difference to 'them'. i soo wish i could help you more hon. this is just a situation where you kind of have sooo many areas in her condition that simply have yet to be fully evaled or better defined, so you kind of have to be very careful UNTIL you at least actually KNOW what the heck is going on with the vascular set up back there which could explain the reason for that vessel itself simply being the way it is in the very first place. hopefully her docs will do their job and help her with dealing with the rather insane types of pain that can just come along with any types of more prominant vascular issues. good luck hon, and hang in there and keep us all posted. marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 06-27-2012, 06:16 AM   #12
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Re: child with back pain

hi all been a long time since i've been on here hope ye are all doin well.....a wee update on katie and more advice if possible.Katie has been getting physio for the last 12 weeks but its been no help(the physio was excellent at his job).so really we dont really no whats wrong.I have just been to my GP today and her new mri report is just in she had it last week it reads....

A 5mm tranverse diameter at least focally ectatic right thoracic inter canal extramedullary blood vessel at the T8 level.this appears grossly similar to the previous routine thoracic spine sequences on mri 15/11/2011.sequences obtained to date are not sufficient to fully evaluate for possible inter canal AVM.

its been a long road and we dont seen to be getting any where fast.I rang the hospital today to see if i could get a quicker appointment to see the orto consulant who ordered this new MRI.she is still in terrible pain and they are only giving her calpol.

any advice from you would be great

many thanks and hoping that all is goin well for ye xxx

thanks for letting me rant again ha....

 
Old 06-27-2012, 08:52 AM   #13
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Re: child with back pain

trust me KB, you ALWAYS have the right to rant here. i cannot believe that things really have not changed at all much since the last time you posted? what ARE these docs thinking here? why in the heck did they feel doing any real physio on her for what she has would actually realistically 'do' anything for her? what did they tell you when they told you they wanted to try this? i just cannot imagine the reasoning of it given where her main issue lies, thats all. i am sure you wondered about that one too? getting a real diagnosis is what they 'should have' been working on by doing much more specific in depth testing they have not yet tried.

unfortuently for the docs you have been dealing with, it IS time to start getting a bit louder and non stop in TELLING these people you simply HAVE TO find some way to just even come up with an actual diagnosis for gods sake. there are times when you are dealing with this kind of BS and you DO have to bite your tongue and get your needs met, but THIS is simply the most off the wall sick way to NOT treat a child i have ever heard of, so now, the voice needs to get louder and a wee bit more demanding.

it is sometimes just what we have to do as advocates of our children to seriously get someones actual real attention and start that ball actually rolling to just even get what she should have had a long time ago. a REAL diagnosis. just considering the mere fact this DOES show up on an MRI, it is NOT that hard to define using the appropriate types of testing. believe me hon, i am soo angry for you you have no idea. there are just a few different ways that they could have found out what the hell this actually is instead of pushing her into some form of PT she really did not need(i just personally cannot see how this would help what she has, unless it was to try and KEEP leg strength from deteriorating even further). they need to be working on FINDING OUT what that generator IS/consists of and not treat something that realistically does not mean possible life or death here if that should rupture. i am sorry to have to even say that hon, but geez where are these idiots heads at?

there are other types of scans that would give much clearer definition of that vessel. this states it is 5mms in transverse diameter, so it makes it 'sound' like this is one single vessel. but on the other hand, they mention they cannot rule out AVM either. an AVM is basically a glob of many arterial vessels, or often referred to as a 'can of worms" only because it is alot of malformed arteries that just kind of grew together in a very bizzarre type of glob configuration, with feeding arteries, and usually some types of draining vessels too. so i am wondering, only because they did give an actual measurement this time around, that this may just be more akin to something more like an aneurysm vascular malformation?? just guessin by what is stated. but 5 mms is pretty large for an artery, esp within the spinal canal where there really is no "give" since it is just the solid structure that surrounds that cord. so depending upon the overall pressure within that artery, it would at least press into somewhat the path of least resistance, the spinal cord, which i do believe is the cause/reason for her symptoms and that pain.

but they can use what is probably the very best scan as in an angiogram done by what is called an interventional neuroradiologist or interventionional radiologist. it all depends. but it WOULD see that artery VERY clearly, esp if this IS for certain an artery, because of the larger amount of contrast that they inject into an artery within the crease of her groin(the femoral), vs in the hand or arm by IV? this is how they had to determine whether or not my spinal cord glob was arterial or venous. mine did NOT light up upon injection, so it was then that we knew at least i was not dealing with an AVM.(higher pressure vascular lesion than venous)

i am not too certain about the MRA with being in the spinal. i KNOW they can do this wirhin the brains arteries but would have to check if they can do this on the spinal arteries. all this scan does is highlight arteries ONLY. so it could possibly be used too.

another option i KNOW they can try if that hosp has this particular type of MRI set up, is called a "3 T or 3 Tesla scan. this is exactly 'like' a regular MRI machine, but it actually uses three times that magnetism of the standard that she already had, which i believe is only like 1.5 or something? just doing that testla using contrast right on that needed area to be defined may actually give you some really great definition and finally an actual real diagnosis.

so those are just some good options for her docs to try and get something IDed here like soon? it is appalling that this has taken well over a year already and they know nothing more than they did at the very beginning. they should be ashamed of themselves calling themselves "doctors'. they found a "problem' they just have not yet bothered to actually identify it after all this time has passed and your child suffers for it. you need to get damned angry at these people then use that to get your needs met for her. honestly, when i got angry at someone AGAIN not actually doing a real needed job for my son, they finally started hearing about it where i used to not say anything? you of course do not want to go crazy here,lol, but i think you know what i mean? question everything you do not get or understand,ask the 'whys' of how come we STILL do not yet know after a year just what this thing is inside my childs spinal column. and what ARE you people going to finally just DO to REALLY help her?

if they are not appropriately managing her pain, i would find someone at the hosp who is supposed to be a patient advocate and find out how to get THAT helped. or yopu can ask to be referred to a good pain clinic where they WILL take her pain much more seriously than these idiots have.

just what IS calpoll? is it some type of narcotic or something else? does it actually even work on her pain? if these docs holding up things is the main reason she is seffering right now, then THEY need to be treating IT in the "right" ways too.

i do hope at least some of this helped in some way. but i would be pushing like heck for that angiogram or that 3 T with contrast if at all possible. it seems like everyone has just dropped the ball on katie and she needs YOU to take over and get things done for her(it should NOT take over a year to actually fully Dx something in ones spinal canal for gods sake). and we will be here to support you,K? good luck and do please let us know how things are going.hugs, marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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katiebear (06-27-2012)
Old 06-27-2012, 04:31 PM   #14
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katiebear HB User
Re: child with back pain

hi Marcia,thanks for your reply again.calpol is the same as Tylenol over the counter meds.i really am getting upset with the whole system now but as you said i am goin to be heard the next appointment which is on the 9th july.Im also goin to be armed with a list of questions,i have been looking up all the advice you have given me(which is alot more than i got from docs)and a lot of it makes sense.
The main prob was that i was seeing a different doc in hos every time.It really makes me mad that every time i asked what an ectatic vessel was they told me it was nothing abnormal,until i seen the consultant on our last visit who then said this vessel needed to be investigated further hence the MRI.
now im feel ing like a fool when my child is in pain and i didn't push them harder.
Im goin to ask to be refered to neuro,our hospital is only small so i will have to travel far to see these other docs but i think it will be worth it in the end.The biggest prob is not knowing what this is ,i think i could deal with any news at this stage as long as they can help and sort her pain.

i would just like to thank you for taking time to help me when you have so much goin on in you life.you are in my prays
many thanks grainne

 
Old 06-29-2012, 01:22 PM   #15
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Kelly2014 HB UserKelly2014 HB User
Re: child with back pain

Hello,
I don't know much about reading MRI results but I do know that from personal experiences, if a child is having back pain, they need to go see an orthopedic surgeon (or even better a pediatric orthopedic surgeon) who specializes in back problems ASAP, they are good at reading mri results and will explain their findings in English. Childhood back pain could indicate that there is some sort of abnormality present because generally there shouldn't be any degeneration of the bones or discs.
I started having back and neck pain when I was about twelve years old. We didn't have health insurance at the time so my mom just always took me to the chiropractor. Chiropractor would just tell me I needed an "adjustment". All he ever did was pop my back but if anything it would only worsen the pain. My pain was similar to your daughters it would be better in the morning and worsen at night.
Once I graduated college about a year and a half ago I was fortunate enough to get a good job with good health insurance. However, confined to a desk most of the day, my pain has progressively worsened ever since. I went to my doctor at least half a dozen times and she just kept telling me it was just stress maybe even mild fibromyalgia (even when i started experiencing muscle weakness and numbness in my arms and legs)and would prescribe me with a slew of crazy meds (some of which I had very bad reactions to) but she kept refusing to refer me to a spine doctor. I believed her at first because I had done some research and could not find anything similar to what I was going through because I am only 24 and never had an accident or fall that was the catalyst for my pain.
About 2 months ago the pain became unbearable to the point where it hurt all day and I barely had the strength to get up and go to work. I wasn't sleeping hardly at all during the night and ended up losing about 30 pounds during that time because I was in so much pain it hurt to chew and swallow and any movement of my neck was painful.
Now more to my point...I finally put my foot down and found the highest ranked orthopedic surgeon in my area. Just looking at me the nurse ordered an immediate X-ray. The doctor came in and told me I had some abnormal curvatures to my spine and ordered an MRI. I brought the images to the spine surgeon who explained I had what was called scheuermann's disease. This disease. This is a disease where your vertebrae, instead of being in a symmetrical disc shape, are in the shape of a wedge. This makes it very easy for a disc to slide out of place towards the spinal chord. This is what happened to me. I have 6 herniated discs. One cervical, and 5 thoracic and I am only 24.
So, consequently I looked up all I could on the disease and found out that the disease is usually diagnosed either in childhood or in young teenagers when they hit puberty. I also learned that if the spinal deformity is caught before the persons growth plates close, it can potentially be reversed with back braces. As much as wearing an ugly back brace would have sucked, my pain now is such that I would give anything to go back and have it corrected.

 
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katiebear (07-25-2012)
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