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I am not really sure how I ended up here, but after reading so many posts tonight it has given me some hope and comfort knowing that I am not alone. My story is long and at times even unbelievable to me and I lived it. So my intention is not to bore anyone but to hopefully grab someones attention that could help me!! It all really started in 2003 when I was involved in a motor vehicle accident. From this I had a spinal cord injury that resulted in numerous back surgeries, all unsuccessful until 2007. This is when I had a spinal fusion with somewhat good results. Unfortunately in 2009 I had ANOTHER MVA, fortunately I did not injure my hardware (2 rods, 30+ screws, cage, 3 plates) but did have a significant knee injury. I had tore my ACL, MCL, PCL...so this required several surgeries (7) to fix..Which almost leads me to where and why I am here today seeking help. On August 25, 2012 I had another ACL surgery because I continue to keep tearing it, as I have been told after an initial ACL tear you run a high risk of continuing to tear it, which of course I have!! I was feeling GREAT after this at was at PT in Sept (11) and the therapist put weights on my (L) ankle to strengthen my quads, I was on about 4 reps has I felt alot of pressure and pain in my lower back. I honestly didnt think it was anything so I continued on and that is when I heard a pop and had intense pain run through my back into my (L) leg. Of course we stopped at that time and I was hoping the pain would ease, to my dismay it increased. I went to the ER where they did some scans and said that I had bulging discs. Which were not present and a new injury from prior scans in 2009 (MVA scans) So at this time they gave me a referral to a spine center, because my neurosurgeon that did my back surgeries was in REHAB for substance abuse!!! HOW SCARY IS THAT??? So I apologize for the length in this post, but in hopes that someone can help I want to make sure I provide all details. When I went to see the Dr. at the spine center, he stated that I would need surgery to fix the bulging discs but he would have to go through and take out my hardware to fix them. He stated a 8-10 surgery with only a 30% chance I would ever walk again
At that time I asked him if there was anything that I could do to avoid that? He then recommended injections/spinal block. At that point I didnt think the pain could get any worse....oh I was incredibly wrong!! I completed injections and a spinal block both without any relief. The Pain specialist recommended a 2nd opinion but she herself thought surgery would be the only answer for relief. This is where I feel such a disconnect. I went for 2nd opinion and during that process the pain in my back was intolerable, I have nausea with and without vomiting leg pain, numbness and weakness. This has all resulted in me not being able to barely walk. So they admitted me into the hospital at that time and did an MRI which I have. They 2nd opinion Dr stated nothing he could do surgically. Didnt really explain anything to me at all. I instantly felt anxiety that I would just be like this forever!! While my 7 day trip in the hospital my b/p's are running entirely too high at one point 220/168! Which they are saying pain induced! They sent me home, with home health, pain meds, home PT!!!! This has caused me so much sadness but I am a true fighter. After two traumatic accidents, even the loss of my mother through this, I continue to FIGHT. I do not want to just give up! I dont want to just take pain meds everyday. I have to find someone to help me understand, find a plan, a new Dr. give me any advice. I find it very hard to open up to my friends and family regarding this because I dont want them to worry, but they have seen a huge change in me and my outlook. In addition to all of this the MRI states that I have a sacral tarlov cyst present at s2 measuring 2cm. When I got home and googled this, it amazed me that all of my symptoms pointed to that being the cause. I just dont get it. There are several things showing on my MRI, another key point in the MRI was:Posterior interbody hardware from L4 through S1 generates susceptibility artifact limiting local detail evaluation. Does this mean that because of my hardware they cannot really see anything??? It shows multiple perineural root sleeve cycts bilaterally at several levels. Spondylotic bulging at L3-4 with mild facet hypertrophy resulting in mild to moderate central/lateral stenosis and minimal foraminal narrowing. I am really hoping that someone/anyone can understand this. They want me to go to a new pain specialist, inquire about a pain pump! doesnt this sound like something that can be fixed surgically? I am not sure if its a good idea to just start back where I started at the spine center..I am currently a single mom and my husband and I have been apart for the past 3 years. So I am very much alone on this one! Like I stated I lost my mom
(2009) and she was my biggest support system and always knew what I needed to do! I do have lots of friends and people I can talk to, but for some reason finally releasing this in this post made me feel better. I pray tonight that someone reading this has or is going through something similar and can help me! Thank you so much for taking your time out to read this! I really look forward to getting some feedback!