Nothiing left to do but have the spinal cord stimulator trial done now. Been to my spine specialist after accupuncture treatment and mri on right hip.
Didn't think much of the accupuncture treatment I had a couple of weeks ago. Actually it was a tens unit treatment. Had that before with no real good results. So after seeing my spine specialist yesterday, he ordered a mri of my right hip to just make sure that I didn't have something going on there.
He called today and said my hip looks fine except for alittle arthritis. He told me to go ahead with the spinal cord stimulator trial next week. So on the 15th, next wednesday, I will be having the trial done. It is 5 days and then on the 20th I go back and have that removed and decide then along with the rep from Boston Scentific whether or not to go ahead with the permanent install in my back.
I am so tired of all this thigh pain in my right leg. The dr. said if I don't get 70% better relief with the SCS trial then don't even do the permanent SCS.
Not really asking any questions here. Just updating from earlier threads I have done to let everyone know what's going on with me. I wished there was something else I could try but don't really know anything. I'm at a crossroads it seems on hoping to get better. I would love for this to really help me with this chance of going back to work someday.
I did ask my dr his opinion on whether he thinks I might go back to work and he only gave me a 50-50 chance. Could have guessed that myself. Anyway I will come back next week and report any progress I have. I know I will be able to walk after trial put in my back so I will do that and see how leg does.
I'm sorry the acupuncturist didn't live up to what you'd heard about him. What do you mean it was a tens treatment? Did he use "electricity" with the needles? I had that sort of treatment exactly once and we never did it again. All it did was rev up my nervous system and made my nerves feel even more sensitized. Not what I needed.
Well, I wish you luck with the trial. Some people are very pleased with their pain relief. I know one woman who hadn't been able to work for a number of years...and now she's been back to work for a year and doing great. I hope the same for you. Think positively, right??
Location: San Francisco, California, United States
Re: Nothing Left To Do But SCS!
I have a co-worker who had a stimulator implanted about two years ago. While the initial recovery was not easy, she has been able to return to work, travel extensively for work, and is doing much better. I hope you find some relief.
I said it was a tens unit because that was what the chiropractor called it. It was just a feeling a back nerves being stimulated by the unit. He turned up the device until i felt it strong and left it there for 25 minutes. Might have worked in the long term but I am not going to give it a chance. Too costy! The drive down and the co-pay will add up. I had the same thing at a PT a few months back here in my hometown.
Thanks Sweetpea for your comments. I hope I get the relief I am looking for also. I know it is a individualize thing. What helps one person might not help the next.
I am very anxious about this procedure. I have done about everything else that I know and my dr knows. This right leg pain has controlled my life for the past 6 months. Whether I work again, I don't know. Might not. But if this is something that will help me live a better quality of life from here on, then I am definetly for that.
Thanks for your all comments and suggestions. I will be back on probably thursday of this coming week and let you all know of how I am feeling.
Well, I had my SCS trial yesterday. Laying on the bed for 1 hr without moving was not easy. I was poked and prodded all that time. It was harder than I thought. Anyway, I am home and using the stimulator It has helped some. I went for a walk today at the park. Probably walked 2 miles. Got home and stretched out and turned on the stimulator. It seems to help some. I am going to walk alot in the next 3 days before I go back and have the trial removed. Then, I must tell them if I want the permanent install or not. It is a decision not to be taken lightly. But I am doing okay so far. Just wanted to drop a line to board members here.
Have had 3 pretty good days with the trial spinal cord stimulator. Have went walking for 2 miles each day and using the stimulator after the walk has really helped me alot. Have to go down on monday to have the leads removed and discuss the permanent install. Probably getting 80% relief from stimulator. Without it I know I wouldn't have been able to gone for the walks I did without much pain in right leg. My right leg only hurts now when I don't have the stimulator turned on.
I will be having to permanent one installed in near future. It has a 5 yr warranty with it and I was told that they normally last for 10-12 yrs. depending on use of course.
Dr. said that I will possibly be able to go back to work. I am really hoping for that. After that then maybe play golf again, which is a love of mine. I know I am jumping ahead alittle bit but I do have high hopes. I will come back after the permanent SCS is installed.
Yes I am going on with the implant. I have been waiting on approval from my insurance company. The Dr. office called me this morning and told me my surgery has been approved. On the 16th of this month I will be having the surgery early that morning.
After I went back down to have the SCS trial removed, it was no time that my right leg started hurting me real bad again. That was without doing anything like walking or standing long periods of time.
So, after all I have tried, this seems to be the best thing for me. A man called me last week who has had his SCS for 7 yrs, really talked it up as the best thing that he had ever done for his back. So, that was encouraging. I know everyone can be different but I have gone down about every avenue I can other than going to Mayo or other well known clinic to try and get to the bottom of this nerve pain. It would just cost me way too much to do that and then still not knowing if anyone else could help me.
Thanks Teri for asking about me and when I get back home and settled with the new implant I will come back and report in on how I am doing.
I have a SCS implant. The trial seemed to work better than the implant for some reason. Now it provides some distraction from pain while riding in a car but doesn't really help much overall with my pain. However I would not want to discourage you from giving it a try. I had several procedures that were less successful for me than some other people, so you never know. Good luck to you.
If it isn't too late, ask your doctor about a new variation on the SCS that was just approved in late Fall by the FDA. It is a neurostimulator that makes adjustments depending on your activity and body position.
The description of the product says: "RestoreSensor™ is the world’s first neurostimulator to automatically adjust stimulation to a patient’s optimal setting. AdaptiveStim™ automatically recognizes and remembers the correlation between a change in body position and the level of stimulation needed."
Okay Teri, I will call the rep from Boston Scientific tomorrow and ask her if she knows anything about this. Thanks Teri!
I have a week before surgery so any more info I can get will be good for me.
I will come back here and let you know what I find out.
I talk to the rep from Boston Scientific about the Restore Sensor from Medtronic. She told me that the device they have, you have this antenna that you have to incorporate with your remote and that there device does not come with a 5 yr warranty like the unit I am getting from Boston Scientific.
She also said that after 6 months, scar tissue will build up around the lead wires to the point that there will be no movement and that when I turn on the device and set it, body position changes will not matter. That seems to make sense to me.
Teri, it wouldn't really matter with the other device at this time simply because I have already had the trial and just been approved by my insurance company for this device. If I even wanted to change to another company, I would have to go through there trial according to my insurance company and I am not going to go through that again.
The 5 yr warranty with the device is very important to me, so I will stay with the Boston Scientific stimulator. Thanks for bringing up that info so I could check out. Be saying a prayer for me if you will and I will be back next weekend hopefully with how I am doing from the implant.