Has any doctor mentioned Thoracic Outlet Syndrome? Some nerves that supply the scapula area can become trapped in the area between the ribs and collar bone (the thoracic outlet
). This can happen in teenagers who carry heavy backpacks.
I know the pain you are talking about. Although mine wasn't TOS, I had a similar situation years ago. Intense chronic pain in my left scapula region, pins and needles sensation, muscle atrophy, etc. It took 3 years of non-stop doctors, tests and therapies. Fin***y diagnosed with a nerve entrapment in my neck. My anterior and medial scalenes were compressing a nerve that goes to muscles across top of shoulder and down into the scapula area.
Diagnosis was made by nerve conduction tests, EMG and a nerve block injection. I would suggest you see a Physical Rehabiltation doctor (Physiatrist) if you haven't already. They can be the great at solving a mystery. I was diagnosed by a neurosurgeon and the physiatrist did most of the testing to confirm. Ultimately I had surgery to decompress the Dorsal Scapular Nerve
. Woke from surgery pain free.
My injury/problem was the result of a car accident, but it can be caused by different types of strain on the neck - even carrying a heavy shoulder bag.
I read your post and thought I would throw in my two cents worth. I hope this gives you a new avenue to pursue. I remember the pain was relentless...
Best Wishes and Good Luck. Hope you find an answer & relief soon.