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Old 11-19-2012, 12:41 PM   #31
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Re: c1 c2 fusion headaches normal?

I live in Los Angeles so it's not that cold, but I'm wearing a scarf around the ugly white collar to hide it now. It's working better people don't stare as much anymore. I actually was only taking Tylenol for pain. I have not been on anything for a couple weeks now. I am experiencing a lot of clicking and popping in my back, chest and some joints...so I'm hoping I don't have any arthritis...I see a rhumatologist in December and get tested for that. I had both an orthopedic and neurosurgeon work on me. My surgery was very long about 6 hours. It's been 4 and a half weeks now and I am feeling a bit better than last week. HOpe your doing better. I did talk to the nurse and she did say all of this is normal and it takes a long time to get better. She said not to even try to move the neck so I don't loosen the screws or plates. I suggest not to look down or do anything to move your neck around.

 
Old 11-20-2012, 03:24 PM   #32
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Re: c1 c2 fusion headaches normal?

Glad to hear it is all normal. I haven't felt any popping yet, but I also haven't tried to move that much. It seems like if I overdo it everything tightens up back there. I hope you don't have arthritis...you are way too young. Thanks for the suggestion of not moving...I will definitely not try. Did your Doctor talk about needing another surgery down the road? Mine said there is a 25% chance of surgery within 10 years. Something about putting stress on the vertabrae below...I guess c3. Ow well I can't worry about that now. Sometimes you have to deal with one thing at a time. Did you have your follow up with your neck doctor? Did the take a X-ray? Hope things are continuing to get better for you. Let me know if you have heard any tips on supplements/tricks to get bone to fuse. Take care.

 
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Old 11-25-2012, 11:21 PM   #33
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Re: c1 c2 fusion headaches normal?

Hi, I hope you had a happy and pain-free thanksgiving! How are you doing? Any pains still or discomfort? Are you off the meds? I am on Forteo which is an osteoperosis drug to help with both my low bone density and to help with fusion. I had also been seeing my other doc (bone doc) who ran some tests and I came back positive for AS - Just the marker so it doesn't necessarily mean I have it. It's a form of arthritis. I'm going to see a specialist in a few weeks for more tests. I have my first x-ray appt this Thursday! I have been waiting soooo long for this Thursday to come...pretty much since I got out of the hospital. I'm curious to see if fusion will show yet. I feel like the first 3 weeks I could actually feel getting better every few days, but these last two weeks seem the same...like I've hit a plateau and I'm not noticing getting better. I hope your doing well. Hang in there!

 
Old 11-28-2012, 10:06 AM   #34
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Re: c1 c2 fusion headaches normal?

Hi there,

My pain is definitely better, getting a little more use to wearing the collar, but still ready to get it off. Do you know what recovery looks like after we get it off. I know there is physical therapy and massage therapy in our future...I just don't know how long all of that takes. I hope your tests come back good....and your XRAY....I want to hear that there is some bone growing! Keep your head up...guess we don't have a choice do we? haha

 
Old 11-29-2012, 09:14 PM   #35
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Re: c1 c2 fusion headaches normal?

Hi- so I went to see my spine surgeon for the first time since the surgery...I had seen the nurse for a wound check 2 weeks after. He said my X-ray showed that the hardware was in place still and looking good. He said its too soon to see fusion since its only been 6 weeks. He said I can take off my collar for an hour a day and walk around. He said to come back in another 6 weeks and by then we should be see some fusion starting. At least he's letting me take it off for an hour! Better than nothing. That's pretty much it on my end. I wish I could give you tips on fusion, but I don't think there is...maybe eating more dairy? Let me know what your doctor says when you go in. Keep in touch!

 
Old 12-11-2012, 10:37 PM   #36
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Re: c1 c2 fusion headaches normal?

Hi, just wanted to know if you saw your doctor yet and how things are going? I'm still very stiff but I guess that's expected. I'm almost 8 weeks post surgery...I can't wait to get out of this collar in January! Let me know how things are going for you!

 
Old 12-12-2012, 10:07 AM   #37
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badhbt HB User
Re: c1 c2 fusion headaches normal?

I had my post op xray and everything looks good. I saw the xray and was amazed at how big the screws are...woah. I am ready to get out of this collar too. How did your RA appointment go? I am curious about how it will feel without the collar. Are you going to do Physical therapy? Thanks for keeping in touch!

 
Old 01-10-2013, 10:11 AM   #38
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Re: c1 c2 fusion headaches normal?

Hi How are you doing? I just had my second x-ray yesterday and it looks good. The plates and screws are still in place thank goodness. I finally got my collar off too! I am starting physical therapy on Monday. They have to get me ready so I can drive again too. It's been a rough road, but at least I don't have pain anymore...just stiffness now. The stiffenss is much better than a couple months ago though. He still wants me to wear this bone growth stimulator which I think is really annoying, but I'll do whatever he says. Did you get your second x-ray yet? Did you see any fusion? My doctor said the only way to really see fusion is through a ct scan. He didn't want to put me though another ct scan since it's so early still. Did you get your collar off?

 
Old 01-11-2013, 10:23 AM   #39
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badhbt HB User
Re: c1 c2 fusion headaches normal?

Hi there,

I am in a soft collar now. I will have to stay in it for 4 weeks then I will get a flexion and extension xray. If it looks good then I will do physical therapy. My Doctor said the same thing about the CT scan. This had been a long road hasn't it? How does it feel to be totally collar free? Do you have good range of motion? Are you allowed to turn your head side to side? Glad things are looking good for you....lets pray for bone growth!

 
Old 05-15-2013, 07:42 PM   #40
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Russ J HB User
Re: c1 c2 fusion headaches normal?

I have been diagnosed 2 days ago with Bow Hunters Syndrome. I first noticed I felt faint on turning my head hard left in Jan 2012 and have taken 16 months to confirm the syndrome to be the cause. I had a cerebral angiogram to confirm my condition. My issue is lower in my neck, c5,c6 region.
I hope to be scheduled for surgery in the next few weeks.

 
Old 05-15-2013, 08:54 PM   #41
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badhbt HB User
Re: c1 c2 fusion headaches normal?

Glad you were able to figure out what was going on. I hope your surgery goes well. Do they fuse the lower cervical vertebrates to keep from compressing the artery?

 
Old 05-17-2013, 07:15 PM   #42
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Re: c1 c2 fusion headaches normal?

[QUOTE=badhbt;5175510]Glad you were able to figure out what was going on. I hope your surgery goes well. Do they fuse the lower cervical vertebrates to keep from compressing the artery?[/QUOTE]
Not sure til next visit with Neurosurgeon, but believe mine is due to arthritic growths on vertebra causing obstructions, so expect a bit of bone scraping to clear the path for the arteries at the points where they are being kinked. I have had previous spinal surgery on L4-5 and L5-S1 for buldging discs. So I am not concerned with this next operation. I will be happy to resolve the problem and not have to worry about sleeping with neck in wrong position, head turned hard left, that stops blood flow to brain... and not wake up, (oops).

 
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