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Old 12-30-2012, 09:49 AM   #16
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Re: MRI thoracic/cervical region HELP

Gmak ..... thanks for telling me you knew the inventor of the Harrington Rods. For me they really helped me out which my spine issues.

 
Old 12-30-2012, 12:53 PM   #17
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Re: MRI thoracic/cervical region HELP

[B]But what concerns me which was contained in the body of report it said "severe disc loss space at C6-7." So from this and not sure from the report if this disc height is loss how much of the disc is left? It appears that while some of the disc is still there sounds like it is heading towards vertebrae on vertebrae the way I am reading it.[/B]

I think this loss of space between the vertebrae may be a combination of disc dessication and maybe of the kyphosis too. When the angle of the curve increases, it decreases the amount of space between the vertebrae, particularly on one side.

I know you are very concerned about this finding, but many people have cervical discs that fuse naturally and it is completely without pain. It just depends on whether a nerve is in the way, or not.

I think I told you this is my situation, and I had no idea anything was going on. It was a big surprise when I read the report and it stated that the segment was fused (I like it is C5-C6 but would have to pull out the report to verify.) I've never had any pain in my neck or any sort of cervical issues. I had the cervical MRI at the time of my initial lumbar radiculopathy when the spine surgeon discovered my knee reflexes were too much...which is a sign of a cervical cord compression, apparently!

My point is this particular finding may not be as devastating as you are anticipating. When do you see the surgeon for his opinion on the meaning of the MRI?

 
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Old 12-30-2012, 01:17 PM   #18
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Re: MRI thoracic/cervical region HELP

Teter:

I understand what you are telling me. My issue is that I have pain in the entire spine. Yes it varies from day to day. I find that night time is the worst for me. And my legs seem to be real problematic when it's bed time.

As to where my pain is coming from specifically I cannot say. I think it is a combination of problems that contribute to my pain. As to the severe loss of height in C6-7 I will discuss with my pain management doctor as to what impact he feels it has on me.

I see my pain management doctor on 1/11/13 when I go in for the pain pump implant. I will be staying over night. I am hoping that either before or after the surgery I will be able to discuss the findings with him. If not then, I am assuming that there will be a followup appt with him after the implant to see how I am doing. I am sure he has the report by now but has not seen the films which I have with me.

I dont know if I can explain this properly but it doesnt seem it takes a great deal of something being wrong for it to have an impact on me.

For example, when my back first started I had bulging discs in the lumbar spine. Bulges to my understanding are not as severe as herniations. at least that is what I was taught. Eventually my bulges became herniations thus surgery,.

But when I had the bulges I had major issues. I could not stand up erect. My posture was describe as "simian" meaning I was walking hunched over like an ape. When the bulges first started to have an impact on me I was taking really sick, radiating pain, severe, diarrhead, nauseous from what I remember. At first they thouhgt it was kidney stones from the symptoms but that was ruled out and was determine that it was spinal in nautre. I thus was in traction for 2 weeks.

I am now also having more thoracic issues. There are bulges in my thoracic spine and now I have more pain in the thoracic spine which started befor the MRI was done. I find I take a deep breath and I get a severe short lived spasm muscle cramping. Or if I get into my car to buckle up I get a jolt to the sides of the thoracic spine. This is all something new and it doesnt have to be something big that I do in the way I move. Sometimes just standing up from my bed I get thoracic pain. Not sure what is causing that.

So I think my pain is probably a culmination of various issues found in the spine.
And don't forget that because of the instrumentation in my spine they could NOT get a clear picture of everything in my spine. So is it possible that there are more things going on that did not show up in the MRI scan? your guess is as good as mine but my gut instinct is that they arent getting everything that needs to be known.

I just cant wait until 1/11/13 to get at least some relief. I hate living like this.

 
Old 12-30-2012, 03:04 PM   #19
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Re: MRI thoracic/cervical region HELP

I would think you'd want to see your surgeon just to touch base. He has much more training and experience in the workings and deterioration of the spine that does anyone in pain management. They are usually anesthesiologists with a couple additional seminar-type courses in pain management. They may be good at giving injections and a couple limited surgeries, but they don't have experience with all the myriad other issues that a spine specialist can spot. They are used to doing procedures rather than in thinking creatively about the over-all workings of the spine and what can be done to maintain what function you do have.

I would think with your deteriorating strength, you would want to be under the care of your neurosurgeon or orthopedic spine surgeon...although perhaps yours is one that doesn't want to manage your case unless you are a candidate for surgery. I know some (many?) are like that. The ones I've dealt with take care of their patients' spine issues whether they are in immediate need of surgery or not. This type of care is probably one strike against a big teaching hospital--they tend not to regard their patients in this way...don't really have the time, I suppose.

 
Old 12-30-2012, 03:27 PM   #20
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Re: MRI thoracic/cervical region HELP

Teter:

Here is what my plan was. Since the pain doctor ordered the MRI I was going to discuss things with him initially.

Yes I agree someone else needs to be involved. I do see a neurosurgeon for the past 7 years or so. And I was scheduled to see him in the spring time. But thinking of moving that up now since the MRI was done.

But my pain doctor and I discussed the future for me. The plan was see what the MRI shows. And we would see what could be done from a "pain" perspective.

As to surgery yes he felt I should be seen elsewhere. Either back to the neurosurgeon that I had been seeing. But his thoughts were maybe to be seen at John Hopkins in Maryland or Hospital for Special Surgery in NY. Niether is on my health plan so I doubt that I will be seen there. I am looking for another neurosugeon to get a 2nd opinion beyond the NS that I am already seeing.

So I am not relying strictly on my pain doctor for treatment.

But part of my problem is who will see me. I have in the past been trying to see other doctors for 2nd opinions but a few of the doctors wont even see me. They initially review my records and since they dont want to touch me they wont even see me. I was hoping that the pain doctor would have some input on who would see me and who the best doctor is in the area for an opinion on surgery or not or what my options are.

So I am trying to input from a variety of specialists not just my pain doctor. I think they have to work together and I need a "TEAM" approach to give me the best course of action.

 
Old 12-31-2012, 05:57 PM   #21
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Wink Re: MRI thoracic/cervical region HELP

PB, Been reading your posts. Great idea having a team of Dr.'s, that's the best way to handle your difficult situation.
There are new MRI scanners that can handle readings when you have "hardware" inside. I know this because when I had my pain pump, there was only one imaging place that I could go to & the MRI reading said it was taken with a "Tesla" scan. After you get your pump and if you need anymore scans, you will have to find a place that has these new scanners. The pain pump puts out a big blast of light where nothing can be seen. (been there before!!)
I sure hope your Dr's can help you & you get much deserved relief from your pain. I know a lot of it can be handled with the pump!!! I'm having a lot of "old pain" coming back since I had mine removed. But will have to deal with it from other alternatives. Life is full of "trade-off's".
Happy New Year & New You!!!

 
Old 12-31-2012, 06:45 PM   #22
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Re: MRI thoracic/cervical region HELP

LG:

First of all wishing you a Happy & Healthy New Year.

Secondly you mentioned a "Tesla" Scan. I looked at my MRI Film and it stated the following:

TECHNIQUE: Multiplaner MR imaging was performed with 1.5 TESLA.

I assume that is what you were referring to in your post.

So if I am correct I am in the newer machine which should have been able to handle doing an MRI on me because of the harrington rods. There was still some difficulty in getting complete readings on me because of the hardware. And also I had an MRI of the lumbar spine I think it was last year as well. I also have Harrington Rods in the lumbar spine and in that area they were still unable to get readings because of the Hardware. They could NOT read anything of the lumbar spine because of the harrington Rods. I am not sure if it was using the tesla last year or not.

But it appears that it was used this time and still had issues. At least to some degree.

When I see my pain doctor I think we should discuss my MRI from a pain point of view, but I also want to see my neurosurgeon as well who I have been using for 6 or 7 years or so.

But I have been thinking maybe I should have another neurosurgeon look at me for another opinion. The problem is who do I see. some doctors at this point in time wont even see me because of prior history. I need to get my foot in the door for just another set of eyes.

Maybe my pain doctor will have some input on who to see and what direction to go .

I have the pain pump done on 1/11/13, less then 2 weeks away. I am more then ready for it since I have had some bad days recently.

 
Old 01-01-2013, 12:01 PM   #23
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Re: MRI thoracic/cervical region HELP

I don't have my MRI's with me but I know that it was a Siemens MRI. When I get back to FL. I'll pull it up & give you the info. I Googled the Tesla 1.5 & although it's new, it says it's mainly used for people who are claustrophobic & gives a quicker scan. I know that while I had the pain pump, that was the only one they could use or the MRI would be a big blast of light. (which happened @ the hospital) If the "podunk town" I lived in had these, I'm sure where you live will.
If you were to get another opinion, why would any new Dr. have to know all of your prior history right off the bat? If you want another Dr.'s opinion on your current films, then do just that. I've learned (that he hard way) that most Dr's can only concentrate on one problem at a time. After all, they're human too!!! Most are anyway!!!
Try to concentrate on getting "your game face on" for your upcoming surgery.

 
Old 01-01-2013, 12:55 PM   #24
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Re: MRI thoracic/cervical region HELP

LG:

I've had doctors that have refused to see me. It was like either last year or the year before, cant remember which year I wanted another opinion from somone in Philadelphia that is considered a big name. They asked for the records ahead of time so I sent them what I had. After a several week wait I called to see if he reviewed them and about getting an appointment. I was told by someone in office, not sure what her job is, that he wouldnt see me. Not even a recommendation as to what to do or not to do.

Then when I went to my pain doctor who is doing the pump we happened to talk about other opinions. The doctor that wouldnt see me, his name came up and he knew him and he knew based on my history that he wouldnt see me.

Some of the doctors wont see you in this area unless another doctor refers you to them. Some of these doctors are so big in their field they pick and choose who or who they won't see. If he couldn't help me at least there could have been a message as to where I should turn.

For now I am going to set up an appointmen to see the neurosurgeon that I have been seeing. I was due for an appt within the next few months anyway. See what he says. the NS that I have been seeing were going to schedule an MRI for this year anyway. Since its been done then I'll get the appointment.

I think after I get his opinion then I will get another set of eyes. I really think with everything going on that another point of view is needed at this point in time.

 
Old 01-01-2013, 01:14 PM   #25
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Re: MRI thoracic/cervical region HELP

PB: I totally agree that you should get this looked at. If your PM Dr. and your neurosurgeon see the MRI's and come to the same conclusion; wouldn't that be enough? Just thinking out loud. I've had Dr's reject me also & give no reason why, very aggravating to say the least!!!
Hey, Happy New Year!!! Hope it's a whole lot better one for you!!!

 
Old 01-01-2013, 02:21 PM   #26
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Re: MRI thoracic/cervical region HELP

LG:

Happy New Year to as well.

As to whether I should get another opinion or not if both are in agreement, that is a tough call.

The pain doctor may give me a conclusion based on a pain perspective, the neurosurgeon on surgery point of view.

I am sometimes overly cautious as to doctors. To make a long story short in 1994 I was diagnosed with Parkinson's disease. I got a 2nd opinion. Agreed that I had Parkinsons. In 1997 I was seeing an orthopedist for upcoming surgery who referred me to a neurologist for surgery clearance. His opinion was that I did NOT have Parkinsons disease. This is after almost 2 Plus years of treatment. I was mad. DId I or didnt I have it. I went back to the doctor that gave me a 2nd opinion. All he did was scratch his head.

I ended up flying 3000 miles from NJ to Ca for an opinion. I did not have Parkinsons and no one could diagnose the problem.

So since that time while I hear agreeing opinions. sometimes my inner voice tells me get another one just to be on the safe side.

 
Old 01-03-2013, 10:40 AM   #27
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Re: MRI thoracic/cervical region HELP

Hi pebble, Just wanted to say that I have been thinking of you & praying for you as your morphine pump surgery is now only 8 days away. Jan 11, right? What dr visits etc do you have before then now that you have your MRI results or are you all set to go? And are they going to keep you overnight? Hope you are doing ok now while waiting for relief !

 
Old 01-03-2013, 10:50 AM   #28
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Re: MRI thoracic/cervical region HELP

Gmak;

I am all set for next week. I just have to call a day before the procedure to see what time I have to be there.

I did see my kidney doctor yesterday before the surgery. Blood work is worse. not sure what this means in the long term. Need to redo blood work in March to see if blood work is sitll bad or what. The doctor ws concerned about the changes found in the lab work.

time will tell as to what is going on with the blood work. More later.

 
Old 01-03-2013, 11:19 AM   #29
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Re: MRI thoracic/cervical region HELP

[QUOTE=pebblebeach3;5111852]Gmak;

I am all set for next week. I just have to call a day before the procedure to see what time I have to be there.

I did see my kidney doctor yesterday before the surgery. Blood work is worse. not sure what this means in the long term. Need to redo blood work in March to see if blood work is sitll bad or what. The doctor ws concerned about the changes found in the lab work.

time will tell as to what is going on with the blood work. More later.[/QUOTE]



Pebble, Thanks for the update. Im glad that its all set to go! Hopefully friend when the pump is controlling your pain at least 50% then the amount of medicine that you take orally will be so much less it will make your kidney labs better, I hope. Does this make sense? If you are on less medicine & you have until march, it could improve, yes? It seems to me that it is a good chance anyway.So praying for the highest relief possible & kidney function to improve & of course you! Not too much longer. I will be here for you if you need an ear, i hope you know i understand. Thanks friend, gmak

Last edited by gmak; 01-03-2013 at 03:23 PM. Reason: wording

 
Old 01-08-2013, 07:20 AM   #30
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Re: MRI thoracic/cervical region HELP

[QUOTE=pebblebeach3;5111852]Gmak;

I am all set for next week. I just have to call a day before the procedure to see what time I have to be there.

I did see my kidney doctor yesterday before the surgery. Blood work is worse. not sure what this means in the long term. Need to redo blood work in March to see if blood work is sitll bad or what. The doctor ws concerned about the changes found in the lab work.

time will tell as to what is going on with the blood work. More later.[/QUOTE]

Hi pebble, I am thinking of you this week and not much longer now until your pump surgery! Are your friends taking you again this time? I hope so. And are you staying overnight for sure, as in planned, or does it depend on how the surgery goes on friday? Hope you are doing better pain wise this week before the surgery. Thanks, gmak

 
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