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Old 01-07-2013, 02:52 AM   #1
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Unhappy Happy New Year

[FONT="Palatino Linotype"][[SIZE="4"]COLOR[/SIZE]="Magenta"][/COLOR][/FONT]
Greetings. I havent been here for a while.
After being directed from my surgeon to a rheumatologist, then from one pain management doc to another pain management doc who has diagnosed me with severe chronic intractable pain. I am finally being treated with several prescriptions that are helping with the pain. Notice I said helping, the meds have not dispelled the pain I experience almost constantly. I had anterior discectomy with fusion in March. I had 4 discs, c3,4,5,6, severely impinging my spinal cord. They removed c3 and c4, shaved down c5 and c6. and replaced the discs with plates, screws and plastic coated wire to hold in synthetic bone graft material that has been successful in generating new bone growth.
Before surgery I was losing the strength in my right leg, more importantly I was losing the signal from my brain to my leg telling it to move. I was also dropping things and losing my grasp,in my hands and in reality,as it was a very emotional and mentally exhausting time as well as physically for me. The surgery certainly stopped the progression of the impingement but it could not fix the damage already done,which includes,severe intermittent neck, shoulder, hip, back and buttock pain.
Learning to deal with this is hard enough but I have been getting other diagnosis from other medical problems throughout the year. My family is just about fed up with me and my "problems" and me being in bed most of the time, as it is where I am most comfortable for now. But these diagnoses are real...from doctors who have run tests and actually found something wrong!
I was dx'd with fibromyalgia in June...i cannot sleep right, i have lost over 70 lbs since my acdf surgery in March. I do not have an appetite. My energy levels are extremely low as I am dealing with severe pain constantly. The meds a plenty only help my symptoms they are not cures, (e.g. oxycodone 30 mgs. 5 x's/day, gabapentin 3 x's / day, cymbalta 2 x's / day, hydrochlorothaizide 1 x / day, Norvasc 1 x / day, metoprolol 1 x / day, catapres 2 x's / day, zanaflax 3 x's / day, prilosec 1 x / day, metformin 2 x's / day, valium as needed ( i sometimes do not take this valium for months at a time).
I had emergency gall bladder surgery 2 days before Thanksgiving.
This week i was diagnosed with a prolapsed bladder after discovering the problem myself. It scared the heck out of me.Now I have to see a urogenital/gynecological surgeon on the 21st of this month.
I have a bladder infection that is painful. I have also recently been dx'd with bulging discs at L4 and L5.
I am going through peri-menopause, dx'd by my gyn.
Now...as of 3 days ago...I have a severe upper left buttock pain almost right in the middle of my buttocks that hurts with any movement, especially going up the steps. I can definitely pinpoint the pain with my hands. The area is the size of my fist and is topical as well as deep. It feels like a really bad bruise but I have not injured that area. I am positive of that. It only hurts in that area.
Also, a new thing that is bothering me terribly is bi lateral hand pain on the back of my hands down between the thumb and pointer and over much of the back of my hand...much worse on right hand than left but both hands are effected. I have not seen a doc about the buttock or hands yet. Well, let me correct that, severe hand pain in both hands has been my primary complaint since 2010. I had ulnar release and carpal tunnel surgery preceding the acdf.
I'm a mess. The positive thing here is the weight loss. I was morbidly obese and pushing 300 pounds. I am now just under 200 and am going to continue the weight loss. I still do not have much appetite but am not worried about that now.
I know I am not alone...right? Can anyone here relate to what I am going through? I cannot drive, work, do my own laundry. I can do dishes and light housework. I can cook easier meals, but cannot stand long without severe pain setting in, especially in the right rear hip area that the gyn says is from the fibromyalgia.
Thanks for listening. I wasn't sure what board to put this on as you can see. Please believe me...I am NOT a hypochodriac. I do not diagnose myself. I go to the doctor regularly...they have always found something wrong with my complaints...they are not made up or embellished. I hurt...all the time. I hate that people think im making this up or that i can just suck it up and go back to life....If I could work I would, if I could function normally, I would. Who would want to live like this? I just need some understanding and support. Thank you! I appreciate it!
__________________


~ Ree~
~Fibromyalgia
~ degenerative arthritis
~cervical lordosis via fx of c2, c3
~acdf c4, 5
~ stiffness and joint pain in both hands and feet
~ back pain
~ diabetes
~ hypertension

 
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Old 01-07-2013, 03:28 PM   #2
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Re: Happy New Year

Welcome to the board. You should find some people who can relate to what you are experiencing on this board, and perhaps on other boards that relate to your other issues, too. I primarily hang out on this board and it is one of the more active boards on this forum.

Despite how you lost all the weight, I congratulate you on it and hope you will find that it helps with some of your pain and structural problems.

Are you seeing a pain management specialist that can oversee all the various medications you are on for pain?

I think you may find that the pain in your buttocks is related to your issues at L4-L5. Have you ever looked at a "dermatome map?" You can find it online and it will show you the area that is innervated by a particular spinal nerve. Problems at L4-L5 often result in radiculopathy that can run down the back of the leg or can just cover part of the buttocks, or hip or kind of groin area.
The nerve pain can result in a particular muscle becoming taut which could be the localized pain you are describing.

[B]I can cook easier meals, but cannot stand long without severe pain setting in, especially in the right rear hip area that the gyn says is from the fibromyalgia. [/B]

This inability to stand sounds like stenosis at L4-L5. I had severe stenosis before my fusion and couldn't stand long enough to chop an onion. I have a stool in my kitchen and used to have to sit after a very short period of time. Then I could stand up again for a minute. Took a LONG time to cook anything at that rate, but I managed simple meals...as you mentioned. The first big holiday dinner I cooked after my big fusion felt like a major accompliishment.

Don't give up on your cervical fusion helping with the pain just yet. It can take up to two years for the nerves to recover/regenerate. I had a 3 level lumbar fusion in June 2010 and I am still regaining feeling in my toes. Keep working at your recovery. Do the exercises that you've been given for rehab and have faith that you will get better.

I'm sorry I can't help with your other issues. There may be other members on this board that have fibromyalgia...hopefully they will see your thread and will respond.

Again, welcome and feel free to post often, whether you have a question or just need some support.

 
Old 01-07-2013, 05:10 PM   #3
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Re: Happy New Year

[QUOTE=Irishree;5113383][FONT="Palatino Linotype"][[SIZE="4"]COLOR[/SIZE]="Magenta"][/COLOR][/FONT]

I know I am not alone...right? Can anyone here relate to what I am going through? I cannot drive, work, do my own laundry. I can do dishes and light housework. I can cook easier meals, but cannot stand long without severe pain setting in, especially in the right rear hip area that the gyn says is from the fibromyalgia.
Thanks for listening. I wasn't sure what board to put this on as you can see. Please believe me...I am NOT a hypochodriac. I do not diagnose myself. I go to the doctor regularly...they have always found something wrong with my complaints...they are not made up or embellished. I hurt...all the time. I hate that people think im making this up or that i can just suck it up and go back to life....If I could work I would, if I could function normally, I would. Who would want to live like this? I just need some understanding and support. Thank you! I appreciate it![/QUOTE]





Hi irishree, I can highly identify with how you feel, and Im so sorry that you are going through this hard time. I, like you, have had many problems since my back surgeries and can no longer work. I have had many troubles, diseases even, after my original back problems and I understand how you feel when someone else (family, friends, neighbors, church members etc) doesnt understand that I am trying my best to do the best that I can under the circumstances, & the circumstances are that I have total back pain all the time for 30 years that worsens in severity & neuropathy every year. My legs & feet are going numb,making me fall, and it is scary. Luckily, its not "so" bad everyday.Thank God that the pain is mostly tolerable, with my medication, and the key for me is to reach the highest level of functioning that I can accomplish that day. Some days, weeks really Im laying down except for the same things that you mention that you can do but you know, those few things are really important around here! When I have spent a time doing bad I look at what I havent done & notice the things i can do are important, too! Its hard to give up the things I cant do anymore but no one else can be the wife or the mom, the role i have is important to the people that I love and that love me regardless of how much it is when I measure! So, even though it may feel like its not good enough, no one else can be you! Its so hard being in pain all the time. Its hard when everytime i go to the dr & get a diagnosis, just once it would be so great to heear "just fine"!lol Im glad that you found this board, it meant the world to me the first time someone said "I understand, me too" instead of Im sorry. So, I hope that you will keep posting, I think you even posted help to me before, things will get better, keep your chin up, we all "get it" here.

Last edited by gmak; 01-07-2013 at 05:32 PM. Reason: wording

 
Old 01-07-2013, 06:32 PM   #4
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Re: Happy New Year

Well, I believe every word you say and I am so sorry for all you are going through! I understand only some but I get it. It's down right depressing having any chronic issue, let alone multiple issues sneaking up one after the other. Just to make you feel not so alone, I have had back and cervical pain for 17 years. Last December I had a hysterectomy, Dr. thought I had uterine cancer, thank God I did not. I had many, many female surgeries before that also, and everything I have done never goes right or I don't respond right, get complications, etc. It took me 10 weeks to recover from that and return to work. Then, as I returned to work again my manager stepped up her game of being nasty to me and I couldn't take it anymore, so I quit my job. Apx a month later I began my "dream" job and a month after that I did the mother of all back injuries and have had a double lumbar fusion this past July. I'm still home recovering. Now my cervical has been acting up, migraines too. Oh, I have bad hemmroids also to top it all off. I feel like I have ruined our family by not bringing in any money and like each time I start to feel like I am making real progress, something else starts to hurt or go goofy with my body. I have a great family, but I know that my husband is getting tired of me not working, but my entire life every job I get, I end up getting a health problem that needs surgery and I lose my position or can't return to my former work. I'm tired of pills but each time I try and stop one I feel horrible. I've been too druggy at times and had to sleep alot. I am my best lately when in bed, esp in the am, I hate to get out of it. I finally am doing small chores like light dishes, light cooking, shopping (with help), dusting. I miss working yet I can't quite figure out how I could work again either, so I am looking and thinking of something part time to be doing at least something, though I don't know how my body will feel about that. UGH, so my point is, I totally get it and I feel for you. You should find alot of support on here-it's helped me so much to be on this board.
I'm sure others will reply with more experience and expertise to really help you, but I just wanted to reply and let you know that I understand and there are us out here who do care and get what you are going through. I'm sure your family loves you and you are just harder on yourself then they are, at least that is how I am I know. Hang in there!
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July 17, 2012
DDD
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Old 01-07-2013, 10:46 PM   #5
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Irishree HB UserIrishree HB User
Re: Happy New Year

wow..thank you ladies. It is a big help hearing that there are others here that can feel my angst! I really appreciate the kind words and what you all have shared with me. I am calling the urogyns office every morning first thing because I believe I need the surgery and as crazy as it sounds...if that is the case..i want to get on with it and get it over with. I've read the recovery is about 3 months long and painful. I'm scared but know it is going to be necessary. I've read where surgeons sometimes try other methods before operating. Again..sounds crazy but my husband and i just renewed our vows on 12/12/12..our actual 25th anniversary and could not celebrate it "properly". I have physically not been able to have sex for months. My bladder is in the way. nasty....sorry. My husband is incredibly patient and understanding but hey...i have needs too...lol. I want to get this fixed and get that part of my life back. Due to the severity of our back problems
( hubby has them too) our love life is not frequent but it does exist..at least it did before my pelvic muscles stopped supporting things. Its just one thing after another. I guess I should post about this on another board. But i felt at home here. Ill find the correct board for this before i sign off tonight. Thank you all! Have a good night all! God Bless!
__________________


~ Ree~
~Fibromyalgia
~ degenerative arthritis
~cervical lordosis via fx of c2, c3
~acdf c4, 5
~ stiffness and joint pain in both hands and feet
~ back pain
~ diabetes
~ hypertension

 
Old 01-08-2013, 06:18 PM   #6
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Re: Happy New Year

[QUOTE=Irishree;5113853]wow..thank you ladies. It is a big help hearing that there are others here that can feel my angst! I really appreciate the kind words and what you all have shared with me. I am calling the urogyns office every morning first thing because I believe I need the surgery and as crazy as it sounds...if that is the case..i want to get on with it and get it over with. I've read the recovery is about 3 months long and painful. I'm scared but know it is going to be necessary.



Hi irishree, I remembered something that happened to me and wanted to share it with you as it may be pertinent. When I had back surgeries the skeletal muscle relaxers interfered with my bladder by slowing its
contraction & I required a catheter for a longer period of time. If you are still on muscle relaxers post op back surgery they could cause a problem with urine retention like i had & I would make sure I told the urologist or gynecologist when going to the dr appt to seek bladder surgery. Its possible, as in my case, that urinary retention could interfere with having
the catheter removed maybe even delay the surgery or recovery.

Last edited by gmak; 01-08-2013 at 06:25 PM. Reason: wording

 
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