Hi everyone.....I have been researching this topic on this board and others but have been unable to determine any consensus on it. Has anyone had success with these products and if you tried it without success were you able to get a return on your money? I know there are tons of knowledgeable people on this board (thanksTeriT...and others!!!!!l ) but I need to either try this or stop thinking about it! Oh.......I have had two laminectomies and my surgeon told me that I Have "permanent nerve damage." I so want to prove him wrong.....thanks and hope for painfree days for all of you!!!!
I know we have corresponded in the past, but I do not remember the details, so please pardon me if I ask the same questions again! I am wondering if you have seen a spine surgeon recently? I'm wondering if perhaps you have developed some instability and there are nerves that are being compressed, rather than assuming it is pain caused by a nerve that is permanently damaged.
Sometimes with a laminectomy, if too much bone is removed, it can make a segment unstable, which makes it more likely that a nerve can get caught or trapped. Also if there is any unwanted movement, it causes other damage, such as deterioration of the facet joints at that level.
Before you resign yourself to a lifetime of pain management, I would encourage you to be certain you know what is causing the pain.
If you have only seen a neurosurgeon, I would encourage you to get a "second opinion" with an ortho spine surgeon.
As to your original question, I don't know what particular formula you are referring to, but there is no magic pill that will turn around a neuropathy. There are certain lifestyle changes you can make that help many with neuropathic conditions.
One is to change your diet to one that is based on the principals of a "Mediterranean" diet or "Omega" diet. Avoid eating sugar and white starches. Only use olive and canola oil when cooking.
Get sufficient exercise. And then there are the supplements...the B vitamins are very important. Many people are low on B12 and Vitamin D and don't realize it....there are some other things too, but I need to find my notes to tell you what they are!
I used to take a couple different things that were supposed to make neuropathy go away. They didn't work. What did work was spending 18 months finding a doctor that could diagnose me properly and was willing to look beyond what the MRI appeared to be indicating!!
The following user gives a hug of support to teteri66: alida1234 (01-29-2013)
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TTERI66 ....you are such a blessing to this board and I appreciate your honest knowledgeable information.....an orthopedic surgeon performed my two disectomies and yes.....I am in need of a second opinion. I have taken on a part time job so that I can work on getting another MRI and second opinion. He reason I feel that it is mainly a nerve condition is that I can stand on my feet for six hours to teach or walk forty five minutes with no pain but when the neurontin runs out.....watch out!!!! My surgeon said I had permanent nerve damage but it could be a compresseed nerve. Thanks again for your response and will keep you informed......God bless you!!!
It is not uncommon for a surgeon to tell a patient that there is permanent nerve damage when they do not know why a patient is still in pain post surgery. I was told that after my first surgery, which was a one level fusion, when all my symptoms remained almost identical to prior to surgery.
Because things looked OK on subsequent MRIs (ie no evidence of nerve compression) I was told by several specialists that the nerve had been compressed too long and I should just learn to live with it. I refused to believe what they were saying as my pain was so predictable...mine was clearly situational and gabapentin/neurontin/Lyrica had little to no effect.
In your case, perhaps it is nerve damage since it responds to neurontin and standing doesn't bother you. In any case, I do not believe in "permanent" nerve damage if they are implying that the nerve cannot improve. Unless the nerve is severed, I think there is always hope for improvement.
I would suggest, when you are in a position to do so, get a second opinion from an ortho spine surgeon, if you have a good one near you...and then I would suggest trying acupuncture and perhaps some Chinese medicine.
I used to go to acupuncture once per week for years before my last surgery. I hadn't been back in 18 months since my guy moved away...but I recently started going again and am again feeling changes in the numbness in my feet. They will never be "normal" but I am regaining some sensations even now.
I asked my guy yesterday about supplements...he's going to get me information on one formula that he has had success with...so I'll get back to you if it seems like it might be worth trying.
I think I told you I tried several different things I'd seen advertised online before I had my first surgery and they did nothing for me. My guy agreed that there is no "magic bullet" that cures neuropathies, nerve pain, etc.
The following user gives a hug of support to teteri66: alida1234 (01-30-2013)
The Following User Says Thank You to teteri66 For This Useful Post: alida1234 (01-30-2013)