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Old 07-31-2004, 05:58 AM   #1
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Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

I saw a Neuro 4 years ago. I had problems with recent memory, saying wrong words, writing wrong letters. I also had other symptoms that you would find with MS. MRI showed one slight mark. Dr. thought it was small stroke (TIA) but didn't rule out MS. Right before my visit with Neuro I found out that I had a B-12 deficiency. I started getting shots and felt much better. Several months later I became pregnant and stopped seeing the Neuro. My problems are noticeable again and probably have been going on for about 2 years. About 5-6 months after having my baby, I started having a constant period. I had surgery for this about a year ago. I can't remember what the procedure was called but the lining of my uterus was burned. The periods stopped for 3 weeks and started up again. I have an appt. with OBGYN in a month. I started seeing my Neuro again about a month ago. Second MRI had nothing on it so he is ruling out MS. All blood work is normal. At first he thought it could be depression or early signs of Alzheimer. He said I do have Dementia. As my visit on Thursday, he doesn't think it is depression. I probably do have some depression, but I don't know if it would cause some of the problems that I am having. I say the wrong word in sentences about 10-20 times a day. Once I could not remember how to cut an onion when I was cooking. I couldn't remember what a phone was called. I put things back in the wrong place a lot. I'm in a fog a lot. I can't remember what I am about to do or if I already did something like taking medicine. I am 44 and finding it hard to believe that I have the beginnings of Alzheimer. I would truly appreciate it if anyone has any suggestions on other things it might be or if you know of anyone with similiar circumstances.

 
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Old 07-31-2004, 08:01 AM   #2
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

First, are you currently on any medications or taking supplements with it, besides the B-12 shot. Some medications can cause memory loss, being in a fog. I would look at that being a possible culprit first.

 
Old 07-31-2004, 09:19 AM   #3
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Hi, I was just browsing through these boards and came across this thread.I can't believe i feel the same thing. I'm 44 also. I had that procedure that you did with the burning of the uterus. The Dr. said that it usually works with all women. Ya right.....1 out of 100 for instance it does not work. I was the 1.I then had a partial hysterectomy.Well the bleeding stopped. I have been placed on several antidepessants, nothing worked.I just started with hot flashes and even more of memorey loss.Very cranky and depressed. I went for my anual at the ob and they tested me for menopause. Well it came back FULL menopause. I just started with meds yesterday.Back in 1989 I was diagnosed with Lupus which also causes memory loss I guess.
Well, I'm sorry for rattleing on but I can't believe we sound so much alike.
I wish you luck and i hope it is not serious,
Sue

 
Old 07-31-2004, 11:24 AM   #4
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Susieblueyes
We do sound a lot a like. My OBGYN told me if the surgery didn't work the next step would be a hysterectomy, which I have been putting off. Also, in 1992 I tested positive to Lupus but all of my tests since have been negative. My Dr. does a regular check. I originally was tested for Lupus because I developed an allergy to the sun called Solar Urticaria. Did you have problems with memory loss before you had the hysterectomy? Do you have other prolems like mine like using the wrong words or putting things in the wrong place, etc? Thanks for sharing with me. Hopefully, this will turn out to be a female problem instead of Alzheimer's. I wish you the best with your health.

Reply to Crabbyroad
I take B-12, vitamins, inhaler for Asthma and blood pressure medicine.

 
Old 07-31-2004, 11:41 AM   #5
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

vkhtn, I am sorry you have been through so much. I know it is frustrating.

I recommend that you be evaluated for Lyme disease and the other infections ticks can transmit--Babesiosis, Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Lyme can cause MS like lesions on MRIs. Tickborne illnesses can also cause many neurological symptoms. Lyme disease is the second fastest growing infectious disease in the US after AIDS and has been reported in every state. Although it is very prevalent, little is being done to educate the public and medical community.

If you think this is a possibility, it is very important to see a knoweldgeable doctor. Most doctors rely on inadequate tests and follow outdated treatment protocols. For more information on Lyme, read the "Lyme Disease Information" post on the Lyme forum here. If you want to see a knowledgeable doctor let me know where you live, and if I have any information I will post it.

Keep searching, you will find out what is wrong.

 
Old 07-31-2004, 02:12 PM   #6
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

My personal opinion is it's good to get a copy of the lab results. I've learned to never accept a simple "it's normal". That way you can see if anything is close to being out of range and you can question it if you choose. The bottom line-get as educated as you can about what's happening to you.
And it certainly doesn't hurt to get a second opinion.

VKHTN, if you haven't already, you may want to copy your post and paste it on a new thread in the alzheimers disease board.
And it might be good for you to ask your doctor to do a full thyroid panel if he/she hasn't already. The ranges in some of those tests for thyroid are very controversial among the medical community. That's why I say I think it's best to get lab ranges as well as your own test results.
I had severe memory loss before I was dx'd with hypothyroidism. I forgot my own 15 y/o son's name not to mention many other things. I would be driving down a very familiar road and temporarily forget where I was or where I was going. I had severe depression, problems with my period and a host of other things.
There are so many things that can be causing your problems. You're doing the right thing by pursuing diagnosis and treatment. I hope you get the answers you're looking for very soon.
Barb
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Old 07-31-2004, 08:52 PM   #7
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

ticker,
Thanks for the info. I have so many of these symptoms. I am going to talk to my family Dr. about this possibility. I live in the suburbs of Atlanta. If you know of a Dr. in this area, I would appreciate the name(s). I will have this checked out. You've given me some hope. Thanks so much.

 
Old 08-01-2004, 07:33 AM   #8
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

vkhtn, I am happy to help There is always hope.

More often than not, Lyme disease is very difficult to diagnose by most doctors. There are not many Lyme knowledgeable doctors in the country. The closest ones to Atlanta that I know of are in Temple Terrace, FL (near Tampa) or in Huntersville, NC. Would you like one of their names?

Hang in there okay? I know firsthand how difficult it is to know something is wrong and not be able to find out. Do not give up. You know yourself better than anyone. Please keep me posted on your progress.

 
Old 08-01-2004, 08:07 AM   #9
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Quote:
Originally Posted by vkhtn
Susieblueyes
We do sound a lot a like. My OBGYN told me if the surgery didn't work the next step would be a hysterectomy, which I have been putting off. Also, in 1992 I tested positive to Lupus but all of my tests since have been negative. My Dr. does a regular check. I originally was tested for Lupus because I developed an allergy to the sun called Solar Urticaria. Did you have problems with memory loss before you had the hysterectomy? Do you have other prolems like mine like using the wrong words or putting things in the wrong place, etc? Thanks for sharing with me. Hopefully, this will turn out to be a female problem instead of Alzheimer's. I wish you the best with your health.

Reply to Crabbyroad
I take B-12, vitamins, inhaler for Asthma and blood pressure medicine.
I have had memory loss for so long and it has all been blammed on depression.Although I did read that one of the symptoms of the Lupus is forgetting things.When I was pregnant with my daughter who is now almost 15 I was real bad with memory. I did not know I had Lupus at the time.Soon after she was born they diagnosed me. What kind of Lupus do you have? I refer to the two as the inside kind or the outside kind.I have the inside, which has affected my kidneys. I would really be checked again to see if your Lupus is active right now. Thank God that I have been in remission now for 10 years With the menopause that I have just been diagnosed with I'm blamming the memory loss on the hormone changes.Hopfully things will improve with the meds. that they gave me.I love how the doctors always blame depression.Good luck and keep in touch,

Sue

 
Old 08-01-2004, 12:59 PM   #10
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

VKHTN,
When you said you live in Atlanta the first thing that popped into my head was that that is where the CDC (Centers For Disease Control) is!
So regarding finding a knowledgeable Lyme Disease specialist you might want to try contacting one or all of the following:

Centers for Disease Control and Prevention (CDCP)
U.S. Department of Health and Human Services
1600 Clifton Road, N.E.
Atlanta, GA 30333
inquiry@cdc.gov
http://www.cdc.gov
Tel: 800-311-3435 404-639-3311/404-639-3543


Arthritis Foundation
1330 West Peachtree Street
Suite 100
Atlanta, GA 30309
help@arthritis.org
http://www.arthritis.org
Tel: 800-283-7800 404-965-7100
Fax: 404-872-0457

Lyme Disease Foundation, Inc., One Financial Plaza, Hartford, CT 06103-2601. Call 860-525-2000.
I've heard they will give doctor referrals for your area. but they require that you write to them to make the request.

Another organization with similar name... The American Lyme Disease Foundation(ALDF) maintains a Physician Referral Service.
They have access to knowledgeable primary care physicians and specialists throughout the country.
- To obtain a physician referral, you can call them at 914-277-6970, and ask for physician's names in Atlanta.

Good luck!

zuzu xx

 
Old 08-01-2004, 02:01 PM   #11
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

zuzu,
Thank you.

 
Old 08-01-2004, 03:25 PM   #12
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Hi everyone. A word of caution from someone who has been through the many ropes of Lyme disease and trying to find a knowledgeable doctor.

The CDC is very far behind on tickborne illness reporting and treatment. In the Lyme community, the ADLF is not thought of as a reputable organization although the Lyme Disease Foundation is. This information can be researched and verified through various avenues.

In my opinion, it is best to see a doctor who has been recommended by a reputable Lyme disease organization or a Lyme patient. There are not many knowledgeable doctors in the country.

 
Old 08-02-2004, 11:19 AM   #13
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Ticker,
How long did you have Lyme Disease before you were finally confirmed with it? What symptoms did you have and/or still having? Did all of your symptoms happen at once or gradual over a period of time? Did your symptoms ever get better for a while and then return again? What was your treatment and did it work? Hope you don't mind all of the questions. I have so many of the symptoms that I have to have it checked out.

Thanks to everyone with all of your suggestions. I will act on every one of them.

 
Old 08-02-2004, 06:33 PM   #14
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Hi vkhtn, I do not mind your questions. It took several months for me to get diagnosed, and I was extremely ill. I saw my family doctor during much of this time and was tested for many things but Lyme disease was never a consideration. It was a nurse at a different doctor's office who suggested that I may have Lyme when she heard some of my symptoms. She did not even know I had been bitten by a tick! When I read the symptom list, I knew this is what I had.

I then went to a very prestigious teaching hospital in my area. I was dismissed after a few minutes--told that Lyme did not exist here. When I asked about the possibility of having co-infections, I was told that if I had them I would be dead. I knew I had to get help. Several months later I was diagnosed with Lyme by an out of state doctor. I also was positive for four co-infections. If I would have listened to that doctor, I would not be here now.

I have done extensive research and correspond with people from all over who have these diseases. Sadly, the majority of them saw several doctors over a long period of time before getting properly diagnosed. I cannot understand why the medical community is ignorant of these serious and often debilitating diseases. I know firsthand how important it is to see a knowledgeable doctor. No Lyme test is completely reliable.

I have received very aggressive treatment, including anti-malarials (for Babesiosis), IV antibiotics, and oral antibiotics. Lyme affects everyone differently so people have different responses to meds. It can take some time to find he best med for each case.

Lyme symptoms do wax and wane. They can also migrate. I have had almost all the symptoms. Some of the worst for me were severe brain fog, difficulty concentrating, difficulty reading and following conversations, profound fatigue, stiff neck, headache, muscle pain, sensitive teeth (which I have never had), and nausea. I think that often when people experience so many seemingly unrelated symptoms, they and their doctor think they are crazy.

Many people who have Lyme experience the symptoms you describe with saying the wrong words, forgetfulness, and difficulty concentrating.

Last edited by ticker; 08-02-2004 at 06:38 PM.

 
Old 08-02-2004, 07:33 PM   #15
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Re: Age 44 Dr. thinks it's Alzheimer's-Could it be something else?

Thank you so much for going into so much detail. I have read a lot about Lyme disease since your response. I have so many of the symptoms. I also have difficulty concentrating, following conversations, fatigue, stiff and aching neck (I am constantly moving my neck to try to crack it like when you get an adjustment from Chiro.), muscle pain and weakness, bad headaches, short-term memory loss, mood changes, speech problems and arthritis. I have been diagnosed with Bell's palsy and confirmed nerve damage in arms and face. I am really wondering if this could be what's wrong with me. I requested dr.referrals in my area from the LDF. I have an appt. with my primary Dr. next week and will discuss this with him. He is a great Dr. and I think he will try to get me to the right Dr. If I still come up with nothing, I will go outside my insurance and go to a Dr. on the referral list. You have really given me hope and I can't thank you enough.

I hope you don't mind another question. You mentioned that you had four co-infections. What exactly does that mean? Can a tick give you more than one infection. I hope you are doing much better and fully recover. Thanks again.

 
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