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Bell's Palsy Message Board
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Old 02-18-2007, 09:47 AM   #1
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Join Date: Feb 2007
Location: Plano, Tx, Collin
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Need support HB User
Need support

I have Psoriatic arthritis as well as Fibromaylagia. I take Rhemicade infustions as well as Methotrexate. I am on a lot of pain medications Oxycontin and Oxycondone and I still have pain every day. The Rhemicade has taken most of my muscular skeletal pain away but I have stiffness and overall body pain everyday. Sometimes I am able to function and some days I have to stay in the bed for most of the day. I also have two children and I was wondering if others in my situation still have this much pain and if so what have you done about it. ALso, if you have children I would like to know how you manage. It gets really overwhelming for me at times.

 
Old 02-19-2007, 05:16 AM   #2
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Re: Need support

Hi Need Support. I am sorry things are so tough now. I know it is frustrating.

You may want to consider Lyme disease as a possibility. Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many seemingly unrelated symptoms. There definitely is Lyme disease in Texas.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

When Lyme disease is a possibility, it is very important to see a knowledge-able doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vay by lab. Lyme needs continuous, aggressive treatment.

Besides Lyme and Babesiosis, ticks can also transmit several other infections Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

If you think this may be a possibility and would like a doctor recommendation, let me know. I hope you can get some relief soon.

 
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