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Old 10-28-2007, 02:49 AM   #1
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fibromyalgia and tooth pain

I am 39 yo female with chronic tooth pain. Every root canal I have had has failed. I have had 3 teeth pulled on the top since February and am now scheduled to have the remaining top teeth pulled on November 8th. My fear is that it won't take care of the problem and I am then stuck with dentures for the rest of my life. My dentist is good. He is even at a loss for what is going on. I have been to a neurologist and was diagnosed with trigeminal neuralgia . My theory is maybe it is related to fibro? Any thoughts on this topic? Help!

 
Old 10-28-2007, 07:18 AM   #2
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Re: fibromyalgia and tooth pain

if this IS the trigeminal nerve that is giving you problems,i don't think pulling the teeth out will solve your problems unfortunetly.this would be the actual nerve that has the problem and not in the gums or your teeth themselves,you know what i mean?i know fibro can do some pretty strange things to a persons body and show itself in many different forms too.there is a fibro board here that you could ask them about this.

have other possible causes been ruled out like within your c spine or a posssible issue within your brain,or face?ever since i had my aneurysm coiled,i have been getting a stranger form of my normal migrane headaches that i have had since i was 13(i am now 46).it starts only in the left side of my jaw and works back to just above my left ear,always.its the very same thing every time.this is new for me.but my midrin that i usually take for my migranes actually helps with the pain process.what meds have been tried on you for this pain process?how does your pain start?is it always the same exact thing everytime or does it change in presentation?knowing this would help me to help you.but pop into that fibro board and ask some questions of them.i just think they could give you a much clearer idea if this could be possibly fibro related or some other level of nerve affectation.please keep me posted on how you are doing,K? FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 10-28-2007, 11:55 AM   #3
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Re: fibromyalgia and tooth pain

Hi smithp68. Your post caught my eye.

Have you ever considered that you may have Lyme disease? Lyme disease is a multi-system bacterial infection caused from the bite of an infected tick. It can cause many seemingly unrelated symptoms. Lyme disease is the second fastest growing infectious diseaSe in the US after AIDS and the number one vector-borne disease in the US. It is in every state.

Many people are bitten by ticks without knowing it. They are tiny and inject a numbing agent so you cannot feel them on you. Some people who have Lyme were first diagnosed with other diseases including CFS, Fibromyalgia, MS, and ALS.

Although tooth pain is not mentioned on the symptom list below, I believe it can be a symptom. I have Lyme disease. Before I was diagnosed I had severe pain in my teeth. I have never had sensitive teeth. I saw several dentists and no problems were evident. During treatment, this has gone away completely.

Below is a Lyme symptom list. You can have any combination of symptoms.

Unexplained fevers, sweats, chills, or flushing
Unexplained weight change--loss or gain
Fatigue, tiredness, poor stamina
Unexplained hair loss
Swollen glands
Sore throat
Testicular pain/pelvic pain
Unexplained menstrual irregularity
Unexplained milk production: breast pain
Irritable bladder or bladder dysfunction
Sexual dysfunction or loss of libido
Upset stomach
Change in bowel function-constipation, diarrhea
Chest pain or rib soreness
Shortness of breath, cough
Heart palpitations, pulse skips, heart block
Any history of a heart murmur or valve prolapse?
Joint pain or swelling
Stiffness of the joints, neck, or back
Muscle pain or cramps
Twitching of the face or other muscles
Headache
Neck creeks and cracks, neck stiffness, neck pain
Tingling, numbness, burning or stabbing sensations, shooting pains
Facial paralysis (Bell's Palsy)
Eyes/Vision: double, blurry, increased floaters, light sensitivity
Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
lncreased motion sickness, vertigo, poor balance
Lightheadedness, wooziness
Tremor
Confusion, difficulty in thinking
Difficulty with concentration, reading
Forgetfulness, poor short term memory
Disorientation: getting lost, going to wrong places
Difficulty with speech or writing
Mood swings, irritability, depression
Disturbed sleep-too much, too little, early awakening
Exaggerated symptoms or worse hangover from alcohol

It is very important to see a kowledgeable doctor. Many doctors do not understand Lyme and treat with outdated protocols. No test is completely reliable, and results can vary by lab.

Besides Lyme, ticks can also transmit several co-infections including Babesiosis, two types of Ehrlichiosis (HME & HGE), Bartonella, and Mycoplasma. Many people who have Lyme are co-infected. It may affect treatment choice and progress. It is important to be tested for these by a Lyme reputable lab such as IgeneX in Palo Alto, CA.

If you think this is a possibility and you would like a doctor recommendation, let me know.

It is also important to learn as much as possible. I recommend reading Dr. Joseph Burrascano's 2005 Diagnostic Hints and Treatment Guidelines For Lyme and Other Tick Borne Illnesses (on-line). He is one of the top Lyme doctors in the country, and many Lyme doctors follow his protocols. I also recommend the book "Everything You Need To Know about Lyme Disease
(2nd edition)" by Karen Vanderhoof-Forschner.

I hope you can find out what is wrong soon.

 
Old 10-28-2007, 12:51 PM   #4
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Re: fibromyalgia and tooth pain

SmithP68 - I agree with Ticker. I too am on the Lyme Healthboards and want to let you know that one of my first Lyme Disease symptoms was tooth pain. All my left molars - top and bottom hurt and still do from time to time even though I have been treated for Lyme. Lyme gets into the teeth and are hard to eradicate. Evidently I had TMJ for some time but never had pain until Lyme Disease. If you think there is any chance you have Lyme make sure you see only a Lyme Literate Medical Dr. Go on the Lyme Disease Assn. website and go to the Dr. referral section to find a physician in your area.

Also, I am not sure if you realize that some muscles can refer pain to the teeth. (Lyme really affects the muscles). The masseter can refer pain to the upper and lower teeth. The medial pterygoid muscle can refer pain to the back of the mouth, hard palate and tongue. The "Trigger Point Therapy Workbook" by Clair Davies, NCTMB has helped me immensely. I found a chiropracter that I see weekly and she works on these trigger points.

I hope this has helped you. Please let me know if you have any questions.


 
Old 11-01-2007, 05:04 PM   #5
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Re: fibromyalgia and tooth pain

I have the same problem
root canals and still pain
instead of pulling, which they said pain would still be there.....??
I did acupuncture, which has helped
pain is much better and I have my teeth
just an idea..........

 
Old 11-02-2007, 01:43 PM   #6
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Re: fibromyalgia and tooth pain

Dear Smith68,
I am sorry to hear about your situation. I just joined health boards today, I have trigeminal neuralgia and recently had surgery for it. I have had symptoms on and off for almost 10 years.
It started after I damaged a tooth in a fall, I had multiple root canals and ultimately had the tooth pulled. After the tooth was pulled I still had pain, I went to a dentist who tried all the tests possible and decided it wasn't the tooth. I went to a neurologist who said I had TN, at first I was hesitant to accept the diagnosis. TN is a dynamic disease that takes on many forms; I am 34 (it usually affects people over 50) and have atypical, infact my surgeon called it "young woman's TN".
I really hope you can get his resolved and be pain free. Maybe consider getting a second opinion with a facial pain specialist. Good luck!

 
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