Hang in there Steve- You will get through this but it is a tough road. Save your strength for where you need it and see an LLMD as soon as you can! The stress of not knowing what you have was really the worst part of it for me. Once you know that, you can be methodical in your search for the right treatment for you without worrying that you are going to keel over tomorrow!
But this disease is not easy to get through. Too much conflucting info with very little support (less than none) from the medical community. It will be a bumpy road but God bless you on your journey.