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Old 11-10-2008, 05:25 AM   #31
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Jerry,

Interestingly enough, you are the third poster on this thread to remember a tick bite...hmmmm. Again, it's too much of a coincidence not to take Lyme seriously!

Bethsheba

 
Old 11-11-2008, 12:01 AM   #32
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

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Originally Posted by bethsheba View Post
Jerry,

Interestingly enough, you are the third poster on this thread to remember a tick bite...hmmmm. Again, it's too much of a coincidence not to take Lyme seriously!

Bethsheba
I remember a tick bite 8 years ago, all right, but the problem for me is no recollection of a bullseye rash, no recollection of an illness in the coming weeks.

I also seem to be missing most if not all of the first two stages of Lyme disease.

it does seem like a long shot in my case...

 
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Old 11-11-2008, 12:03 AM   #33
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Today my GP referred me to an infectious disease unit at a major hospital near where I live.

I think I should get in soon.

I really hope it is lyme disease because I've tried everything else and am so frustrated with how long I've had it.

If it is lyme disease does it get resolved via a special strain of antibiotic treatment?

Thanks.

 
Old 11-11-2008, 04:21 AM   #34
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Jerry,

I'm glad to hear you're getting some specialized help. Keep in mind that few doctors have the training and experience to diagnose this condition (including infectious disease doctors) so you may have to be proactive and educate them! So do as much reading as you can keeping in mind this is a relatively "new" infectious disease and there is a lot of contradictary info out there. You might want to check the Lyme boards to see if anyone knows of a Lyme Literate Medical Doctor in Austraila.

Igenex Labs, in Palo Alto, California, from what I understand, has the most reliable testing available for tick borne illnesses (Lyme is not the only infection carried by a tick) in our side of the world. One Lyme poster recently was tested for Lyme and for the coinfections, and was grateful she did...she didn't have Lyme, but she does have a serious co infection.

Many of the symptoms of lyme and coinfections can be reversed with antibiotic treatment if the damage isn't permenant. The type of antibiotic treatment depends on what kinds of bacterial infections are in the body... someone may have Lyme AND have two or three other coinfections...so treatment may be with several different types of antibiotics.

Again, I would hope that you'll post or at least review the Lyme boards.

Good luck Jerry!

Bethsheba

 
Old 11-12-2008, 12:51 AM   #35
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

I found out today the appointment will be November 27.

Until then I'll just keep taking the clonazepam so I'll be able to rule out whether or not it is a bizarre evil tight muscle caused by TMJ. If the clonazepam doesn't work by the 27th of November then I'll know that muscle relaxants won't be able to do the trick then lyme disease will look like an even more viable candidate.

Last edited by Jerry1985; 11-12-2008 at 12:52 AM.

 
Old 11-12-2008, 06:58 AM   #36
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Good luck, Jerry.

You'll be in my thoughts and prayers.

Bethsheba

 
Old 11-14-2008, 01:23 AM   #37
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Are there any other infections/diseases that can be caused by a tick/vector other than Lyme disease?

 
Old 11-14-2008, 11:08 AM   #38
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Yes there are and they are referred to as coinfections...more info about the various strains on the Lyme Boards.

Please remember that the tests we have for Lyme and for other bacteria/organisms carried by ticks are very limited. There is an internation association of specialists dealing with these issues and they state that symptoms should be treated even if the tests are not conclusive...treatment protocols are public information but due to web rules I can not post the link.

One reputed lab, Igenex Labs in CA, from what i understand will recommend which specific co infection tests to have based on the area of the country/world you live in.

Bethsheba

Last edited by bethsheba; 11-14-2008 at 11:15 AM.

 
Old 11-14-2008, 11:56 PM   #39
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

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AlexMiami, do you have constant tightness around either the left or right side of your forehead/head that causes such tightness around one of your eyes that it causes you to always perceive your nose as two 'separate shadowy images'.
I have this exact same problem! Everything in my head/face feels tighter than it should be, and it makes it harder for me to move my eye muscles. Now my eyes are slightly misaligned and I have both shadowy images of my nose all the time.

I always used to have one shadowy image but that's because I have a large nose (no joke..) I only started to get the TWO shadowy images when my eye muscles started getting tight.

 
Old 11-15-2008, 12:37 AM   #40
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

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Originally Posted by Bill Zenith View Post
I have this exact same problem! Everything in my head/face feels tighter than it should be, and it makes it harder for me to move my eye muscles. Now my eyes are slightly misaligned and I have both shadowy images of my nose all the time.

I always used to have one shadowy image but that's because I have a large nose (no joke..) I only started to get the TWO shadowy images when my eye muscles started getting tight.
I always see the two sides of my nose as "two separate shadowy images" because I have constant tightness along the left side of my forehead/head. Do you know what can be done to relieve this tightness that impinges upon the left eye (thus, I believe the left eye can't open properly because of the surrounding tight muscle) which causes this distorted perception?

I'm on clonazepam now to treat this if its simply a bizarre long term tight muscle problem but should there be something else I should be doing?

Thanks.

 
Old 11-15-2008, 07:23 AM   #41
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

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I have a problem with the jaw popping consantly. Now I find that Ive got an aching ear...or it seems like its the ear...and it goes down into the neck area, where the glands are directly underneath the ear. Not nice
Do you do anything for that?

 
Old 11-20-2008, 12:50 AM   #42
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Is it possible that a sort of "tight" feeling in my left leg, and i sometimes hear a click behind my left knee cap, could be travelling up the left side of my body and presenting the symptoms of "tightness" in the left side of my head/forehead?

However, I do keep hearing that things can't "travel up" so I suppose thats unlikely?

 
Old 12-05-2008, 10:15 PM   #43
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Ok, so I gave up on the jaw specialist route because both the deptran/doxepin and clonazepam didn't do anything so went to see an 'infectious disease specialist' at a major hospital who got me to take several blood tests and I will see him on the 18th of December to see what those tests have shown (probably nothing I'm sure) and should they not show anything he wants a new MRI and a lumber puncture (at least this specialist seems very motivated to get to the bottom of it). I think he also wants me to do a test for varying tick bourne infectious diseases so we'll see what he says in the Dec. 18th appointment.

Also, in the last week or so I feel like my symptoms have inexplicably gotten worse, which I don't understand, whereby the tightness along the left side of my forehead/head feels more severe as well as the tightness/discomfort along the lower left side of my back and left leg.

And of course I continue to get increasingly depressed because it seems more and more likely I'll never get better and will be doomed to a life of being an idiotic unhealthy schmuck.

 
Old 12-20-2008, 06:10 PM   #44
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

So I went back to the 'infectious disease' specialist and he told me my blood tests came back all normal and said that aside from ordering a new MRI he's all out of ideas.

I notice that I often hear a clicking sound behind my left knee and parts of my left leg often feel tight, so, should I get an x-ray or scan of my left leg to see whether or not the source of my condition could be something with the joints, ligaments, muscles or something else originating somewhere in that left leg (and the "tightness" feeling has spread up the left side of my back, neck and head).

Thanks.

P.S. I wish that "House" was a real person so I could see him.

Last edited by Jerry1985; 12-20-2008 at 06:15 PM.

 
Old 12-20-2008, 09:00 PM   #45
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Re: My Ridiculous 6 Year Health Problem: So The Jaw Is Responsible?

Ticker, My infectious disease specialist says my problem can't be lyme disease because it doesn't occur in Australia.

Could my problem be originating in my left leg (possible ligament, muscle or joint problem) that is causing the tightness up along the left side of my body (as my left leg can generally feel ususually tight and I hear clicking sounds behind the knee)? Is that possible and could an x-ray or scan of the left leg help to clarify that?

And, another theory, is that around the age of 14 my left testicle (again with the "left".. coincidence?) withdrew into my abdomen and has been there ever since and sometimes feels uncomfortable and even, at times, slightly painful. I was wondering whether an acquired undescended testicle could be impinging on nearby muscle, nerves or something else which is resulting in the sporadic tightness I feel around the upper part of my left leg and lower left side of my back/hip and importantly the constant tightness i feel along the left side of my head/forehead (as I've had spine ct scans, neck x-rays, an mri and multiple muscle relaxants I think that has ruled out the tightness originating in the head).

I appreciate any and all comments and thoughts.

Last edited by Jerry1985; 12-21-2008 at 01:18 AM.

 
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