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Jerry1985 · 02-15-2009, 10:38 PM

Well it's not trigeminal neuralgia.

I went back to my dentist because I felt that the jaw must be responsible and that the jaw specialist I saw in 2008 just didn't know what he was doing so my dentist referred me to a different oral specialist who said that I need to wear a splint because my unusually strong bite is causing the constant tightness along the left side of my head/forehead and to an extent along left side of upper back.

So I'm now wearing a very expensive splint every night the this specialist seems to think it will take somewhere between 3 - 6 months for the "tightness" symptoms and associated problems (such as perception distortion, impaired concentration and disorientation all caused by the constant tightness along the left side of my head) to be resolved.

What do you all think (I really really hope this works)? The specialist said the "tightness" is apparent on only the left side because we often tend to favour one side of the body over the other.

How long do you think it will be until the splint enables the tightness along the left side of my head to be reduced at least to the extent where I don't have those frustration side effects (especially the distorted perception caused by the constant tightness of the head near my left eye).

Thanks.

P.S. I should probably mention that so far I've been wearing the splint for the past 5 nights.

Jerry1985 · 02-16-2009, 10:38 PM

Any opinions would be appreciated.

Benit · 02-17-2009, 12:08 AM

Dear Jerry,

Can you refresh me on what all your symptoms are again, with as much detail as time permits? I think it would help others on here get a better picture of what's going on, as well.

Did any of the drugs they gave you for Trigeminal Neuralgia help, by the way? I have also heard that beta-blockers can help reduce "nerve pain".. have you ever tried these and did they help?

wakkochic17 · 02-17-2009, 11:00 AM

Jerry, I hope this works for you! That's so frustrating that it went full circle back to the jaw. I still think that's the best likelihood. I'm glad the new doctor saw what it could possibly be. I really hope it helps you!!

bethsheba · 02-17-2009, 01:59 PM

I doubt that it will help at all...you and your doctor are putting a band aid on the symptom, and not addressing the cause.

If this were caused by somethings your doctors knew about, it would have responded to treatment by now. In my opinion, what you and your doctors are trying will be futile.

Jerry1985 · 02-17-2009, 10:20 PM

Quote:

Originally Posted by bethsheba

I doubt that it will help at all...you and your doctor are putting a band aid on the symptom, and not addressing the cause.

If this were caused by somethings your doctors knew about, it would have responded to treatment by now. In my opinion, what you and your doctors are trying will be futile.

I've only been using the splint for almost a week and its meant to be used for somewhere between 3 - 6 months for the treatment to properly work.

What would you suggest the specialist be doing instead? They did a x-ray of my jaw and thats fine so he says whats causing the constant "tightness" is a unusually strong clinching which is causing the tightness symptoms along the left side of my head (apparently the left side of the clinching is having more of a pronounced impact, which I can feel when I put my hand under both sides of my jaw when I shut it.... meaning I feel more pressure exerted by the left side of the jaw shutting).

A splint is meant to be used for a situation like this to prevent the jaw from constantly reinforcing such 'tightness' so I don't understand why you believe it to be "futile".

bethsheba · 02-18-2009, 10:11 AM

Quote:

Originally Posted by Jerry1985

...Many years ago (I was in high school when I noticed this so could have been around the time this health problem started) I noticed a small red mark on the middle of my right hand and there was a pale white circle around it....

This is the only definitive symptom of Lyme that I am aware of...despite this, some think that less than 30 percent of those with Lyme remember seeing/getting it. You're one of the lucky ones!! You remember seeing it.

Although ticks were originally thought to be the carriers of this disease, some now think that flies, fleas, mosquitoes, and other insects may transmit the infection as well.

Based on what you've told us in the past, your health decline around the same time you saw this mark.

All of your other symptoms are symptoms of Lyme disease.

Your infectious disease specialist was wrong when he told you that Lyme doesn't exist in Australia. I have provided links in the past that support what I am saying.

If you are infected by lyme and/or its coinfections, only killing the infection will relieve your symtoms and that is IF you kill the infection before permenant damage has been done.

Ticker gave you some excellent advice...if you're serious about treating your condition, you'll utilize the resources she was so kind to share with you.

bethsheba · 02-20-2009, 05:05 AM

Am including the following US government link for any readers who have jaw problems or who have been diagnosed with TMJ, and who don't respond to traditional treatment for the condition:

[url]http://www.ncbi.nlm.nih.gov/pubmed/2812630[/url]

Another thread that may be of interest:
[url]http://www.healthboards.com/boards/showthread.php?t=626040[/url]

Jerry1985 · 03-30-2009, 10:29 PM

Yesterday I saw my physio and she believes that a nerve(s) running along the left side of my head/back and leg is underpinning my left head tightness, the feeling of tightness I usually feel running along the left side of my back and to an extent along my left leg.

She has told me to do an exercise where I get a towel and hold it around my left foot and lean my head down while pulling on the towel with my hands to stretch the nerve along my left leg (I can feel that underneath my leg it feels tight when I do this).

Is there anything else I could do to help resolve this hyperactive/inflammed nerve along my left side? Any medical or oral treatment I could seek from my GP other than just doing the physio stretches?

Thanks.

luvtocamp · 03-31-2009, 02:06 PM

Jerry1985

I have the same as you only opposite side, Right head neck arm, back, pelvis area, leg to the foot tightness. The right head has pressure and a humming.

I wonder is this is due tmj, neck or brain.

PS: look at your cheekbones, are they balanced or is one higher and further back?
Put you fingers in your ears, are they even?

I in my gut of gut feel this is my main problem, my right cheekbone is up and further back and my right ear is further back, my last osteo appoint. I asked why is my neck and head so tight, she said your chewing on your neck- she has yet to balance my headbones, I may have to have a chiro do it.

Your temporal bones with are attached to your cheekbones houses the tmj joint, so the joint is going to sit in its house, thus your jaw is not going to function right.

Now this is what I have researched and by my symptoms and face I have come to the conclusion that until my cranial bones are balanced (no ones are perfect- but mine use to be more even) I will always have these symptoms. If one temporal is noticably different, then the atlas (occiput) will be off also, as all the bones in the head.

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