Originally Posted by astriapage1
After you have been to 30 doctors you just want to give up.
I have not been through the hell that it sounds like you have been though/are going through. It does sound like you are really in a rock and a hard place. Everyone's got their own special case, symptoms, hell, etc. If you think it's Lyme, as you already have mentioned you thought that's what it might be, keep pursuing it whatever way you can.
If you look at it from a different angle, it may help. Keep trying to go through the doctors, getting answers, getting Lyme and other tests, and getting anitbiotics if they help. However in the mean time while waiting for results from that end of things, maybe you should go a more natural route and try some herbs that have had success with Lyme, co-infections, and other bacterial infections. It can be cheaper than antibiotics. I almost think some of the herbs can work just as well as some of the antibiotics or work well in conjunction with anitbiotics.
You can try the herb protocols in this book. If they work they work, if not then they don't. Start slow and work your way up. You may feel worse while doing them, which can be normal with Lyme. I suppose some folks can have allergic reactions to herbs as well- just keep that in mind. It's worth a shot at this point. If it's not Lyme then it sounds like from what the doctors initially diagnosed, it might be some sort of bacterial cause or major complication from bacteria.
I always tell people about this book, because I think it's a great book to read and have in one's arsenal. It's got a lot of good references and was written by a master herbalist. I don't know the author at all; I'm not trying to sell it or anything. I did contact the author to ask a few questions though and he was extremely helpful.
Antibiotics are good but when you combine antibiotics with herbs, I really think that's the way to go. Just my laymans opinion though.
Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections: Stephen Harrod Buhner
Just some thoughts. If you aren't getting any help from docs and insurance right now then you might have to try something else in the meantime.
Try and find the smallest positive thing each day and focus on that. I know it's easier said than done. I also know from my own experiences and what I've read, you don't start to think/feel more positive until you feel better mentally/physically. If your in a limbo stage of sorts then you can't feel better, espcially with Lyme. There is so much back and forth with the symptoms too, you feel better one day the next you don't, it really degrades you over time. Sometimes for weeks on end I feel awful. Sometimes only days or hours. Messed up for sure.
I wish you luck with your search for answers.