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Old 02-07-2009, 05:06 PM   #1
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earprints HB User
Unhappy Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!


Hi, I’ve been struggling with a chronic head condition since August 2008 and it’s really taken its toll on me. Most hours of the day I suffer from this persistent “drugged,” “drunk-like,” “woozy” feeling in my head. I wouldn’t, however, really call it dizziness or brain fog. Compounded with that, I’m also unusually tired a lot of the time. This has severely affected my social life (I hardly go out any longer) and I’m barely coping at work. I just can’t seem to resolve this and it’s distressing! I’ve seen several types of doctors/alternative doctors and so far nothing:

- Primary Doctor (2x)
- Neurologist (1x)
- ENT Doctor (2x)
- Chiropractor (1x)
- Holistic/Nutritionist/Chiropractor (1x)
- Upper Cervical Chiropractor (2x)
- Psychiatrist (1x)
- Allergist/Immunologist (1x)

I’ve had the following tests taken and they all came back NEGATIVE:

- 3 blood tests (among other things, I was tested for Lyme Disease, Hepatitis C, Mono, AIDS, Thyroid conditions, etc.)
- CAT Scan (Sinus, head – w/o contrast) [this did show, however, that I have a deviated septum]
- MRI (Brain)
- EEG
- Sleep Study (testing for Sleep Apnea and other Sleep disorders)

I don’t have most of the common symptoms typically associated with Chronic Fatigue Syndrome and Fibromyalgia so I sort of ruled that out. I’ve also ruled out Ear/Middle-Ear disorders since I don’t have the symptoms normally associated with that either (dizziness and nausea).

The only things I’m still looking into are:

- Depression and/or anxiety both of which I suffer from to a certain degree. I’ve never, however, been on regular medication for it with the exception of the occasional Xanax/Klonopin pill. For the past few years, I’ve also suffered from Benign Fasciculation Syndrome (sporadic twitching) which might have been brought on by stress/anxiety. I also have Tinnitus which may/may not have been induced by anxiety (actually I think it came about from over-exposure to loud music).

- Lyme Disease: I’ve heard the standard blood tests one gets at doctor offices are pretty unreliable. I’m possibly looking into labs like Igenex. I’m not the biggest nature guy but where I am, NJ, Lyme is pretty rampant.
- Something Nutritionally-related (although I’ve never had problems with this in the past)

- Carbon Monoxide Poisoning (probably far- fetched)

- Electro-sensitively (also probably far-fetched)

- Chiari malformation (although I expect that any abnormality would have shown up on my MRI test, no?)

I’m supposed to see an Endocrinologist for the first time in a couple weeks but I’m not expecting much from that consultation.

Any other ideas/advice you might have would GREATLY be appreciated. I want to get on with my life!

Many thanks, Ami

 
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Old 02-08-2009, 02:54 AM   #2
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Low potassium will cause the symptoms you describe.

 
Old 02-08-2009, 02:56 AM   #3
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Forgot to mention, so will low blood pressure.

 
Old 02-08-2009, 05:30 AM   #4
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Quote:
Originally Posted by earprints View Post
[FONT="Arial"]....Lyme Disease: I’ve heard the standard blood tests one gets at doctor offices are pretty unreliable. I’m possibly looking into labs like Igenex. I’m not the biggest nature guy but where I am, NJ, Lyme is pretty rampant...
Some doctors think that 1/2 of chronic diseases, like the ones you've mentioned previously, are actually lyme but misdiagnosed. And some think that the Lyme tests that most doctors use should be banned because it is so very unreliable. If you check the Lyme Boards, I think you find that many posters, have gone through the health care system but have only found their answers after seeing a Lyme Literate Medical Doctor, and having tests run at Igenex.

I'm not sure I understand the "electrosensitivity" comment you made...but I will say that one symptom of lyme that some lymies experience are static charges and/or feelings of electricity running through their bodies. I've seen explanations as to why this happens but don't feel comfortable reiterating them as I am not a science geek.

Bethsheba

PS Low blood pressure and POTS are symptoms of lyme.

Last edited by bethsheba; 02-08-2009 at 05:31 AM.

 
Old 02-08-2009, 05:33 AM   #5
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Quote:
Originally Posted by vh90453 View Post
Low potassium will cause the symptoms you describe.
Yes, it will...but that should have shown up on the tests given the multiple specialists he has seen.

 
Old 05-31-2009, 08:56 AM   #6
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Hi,
I noticed you have not posted an update since February and wanted to see how you are feeling. I have the same exact symtoms you described and I also live in NJ. My symtoms started in October of 08. I have gone to several doctors, had blood work, chest x-ray, GI work etc. All came back negative. My doctor is suggesting an infection disease specialist next and testing for celiac disease. If you found something that worked for you I would love to hear about it.
Thanks

 
Old 06-01-2009, 07:58 AM   #7
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Hi ,

Sorry to hear that you're suffering the same thing. I also looked into Celiac Disease but that isn't what I have. I was finally diagnosed 2 months ago with Lyme Disease. Apparently that's been the cause of this horrible woozy problem. Since then, I've developed other symptoms which are more indicative of Lyme - like constant twitching/buzzing. It's beyond me how I got Lyme since I'm not an outdoor-type of person but it goes to show you how easy it is to get. Normal blood tests, however, are notoriously unreliable. If you suspect that you might have Lyme, I'd get a test done by Igenex, a lab out in CA. I'm currently being treated with a lot of oral antibiotics. I have a long road ahead of me, probably months...

I hope that helps. If you have any other questions, feel free to ask.

Good luck,

Amiel

 
Old 07-11-2009, 08:53 PM   #8
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Quote:
Originally Posted by amiel View Post
Hi ,

Sorry to hear that you're suffering the same thing. I also looked into Celiac Disease but that isn't what I have. I was finally diagnosed 2 months ago with Lyme Disease. Apparently that's been the cause of this horrible woozy problem. Since then, I've developed other symptoms which are more indicative of Lyme - like constant twitching/buzzing. It's beyond me how I got Lyme since I'm not an outdoor-type of person but it goes to show you how easy it is to get. Normal blood tests, however, are notoriously unreliable. If you suspect that you might have Lyme, I'd get a test done by Igenex, a lab out in CA. I'm currently being treated with a lot of oral antibiotics. I have a long road ahead of me, probably months...

I hope that helps. If you have any other questions, feel free to ask.

Good luck,

Amiel
Amiel, what symptoms specifically did you have? I have been experiencing fairly severe brain fog, random fatigue and occasional dizziness and memory problems for several months. I was tested for Celiac, Lyme disease and a few viral infections by my doctor and they all came back negative. But now that I have heard about the unreliability of general testing for Lyme disease, I'm starting to doubt the test results.

I specifically do not have any recurring joint pains, which I know are a major symptom of Lyme, so I'm still unsure.

 
Old 07-13-2009, 08:13 AM   #9
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Hi milankundera,

My symptoms include: this weird head thing - constant wooziness, occasional head pressure, sporadic headaches. Then twitching/buzzing all around and also fatigue.

I hardly have any joint pain/aches (knock on wood) yet I still have Lyme. If you've exhausted other possibilities, I'd definitely look moreinto Lyme !

Best of luck, Amiel.

 
Old 07-14-2009, 06:31 AM   #10
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Quote:
Originally Posted by amiel View Post
Hi milankundera,

My symptoms include: this weird head thing - constant wooziness, occasional head pressure, sporadic headaches. Then twitching/buzzing all around and also fatigue.

Best of luck, Amiel.
Hello Amiel.
I appreciate your posts. Can you elaborate on the twitching and buzzing? Is this in your muscles? have you been cured of the wooziness now that they have determined it was Lymes and have you on a treatment plan? I have had this constant wooziness for about 4 months. I have seen several doctors, had several test, but not tested for Lymes. I went to a GP and asked to be tested for Lymes and he told me that I had anxiety and that I needed to read up on that and not Lymes disease. I am starting to dislike the medical community. In addition to the wooziness, head pressure and sporadic headaches like you mention, I also have ringing in my ears. May I ask was it you that suggested they test for Lymes and if not what type of doctor finally diagonised you?
Thanks again for sharing your story.

 
Old 07-14-2009, 07:51 AM   #11
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Hi again,

The twitching and buzzing are likely stemming from the muscles but I'm really not sure. The wooziness is slightly better but I'm by no means cured yet. For 3 months, I've been taking an oral antibiotic but last week I also started intravenous antibiotic treatment. My LLMD (Lyme Literate Medical Doctor) advised this once she saw that there was some abnormality in my white matter (revealed in the SPECT test I had done).

Your symptoms sound similar to mine. I also have ringing in my ears (but I've had that for 5 years so I doubt it's due to Lyme). If you've exhausted other possibilities, I'd definitely look into Lyme. Most doctors don't really know anything about it. I was misdiagnosed by several and as a result, have now had Lyme in my body for at least 2 years. My story is very very common. I tested negative for Lyme twice. But then I started to read how so many people go misdiagnosed because their blood tests come back negative. Those regular blood tests are very unreliable for detecting Lyme. Once I had felt that I had eliminated other possibilities, I got in touch with an LLMD, who ordered more accurate tests (Igenex Lab, MRI, SPECT) and confirmed that I had Lyme. So perhaps it would be a good idea for you to get in touch with a LLMD yourself.

Best of luck, Amiel



Quote:
Originally Posted by luck24 View Post
Hello Amiel.
I appreciate your posts. Can you elaborate on the twitching and buzzing? Is this in your muscles? have you been cured of the wooziness now that they have determined it was Lymes and have you on a treatment plan? I have had this constant wooziness for about 4 months. I have seen several doctors, had several test, but not tested for Lymes. I went to a GP and asked to be tested for Lymes and he told me that I had anxiety and that I needed to read up on that and not Lymes disease. I am starting to dislike the medical community. In addition to the wooziness, head pressure and sporadic headaches like you mention, I also have ringing in my ears. May I ask was it you that suggested they test for Lymes and if not what type of doctor finally diagonised you?
Thanks again for sharing your story.

 
Old 09-14-2009, 02:10 PM   #12
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

I have had this woozy feeling on and off for 20 yrs. I also get BPPV vertigo alot. When the vertigo goes away I still feel woozy, tired and headaches in my temples. I have been to: neurologist, GP, Ent, and gyno. Some say it's anxiety, but I know what anxiety is and I don't have it all the time. My blood tests are all normal, my blood pressure is normal, I just don't know what to do anymore. I know that the barametric pressure affects it also. I have had 2 mri's in 2003 and 2005. I have had catscans, I have had my metal fillings changed to white, and I just constantly feel like I am drugged and my head is swimming all the time. Could it be hormones? SOMEONE HELP!!!!

 
Old 10-21-2009, 05:01 PM   #13
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Did you ever find out what is causing your symptoms? I have the exact same symptoms but have seen a doctor as of yet. I was attributing it to seasonal allergies since it is worse in the fall than the spring. When fall rolls around here in Atlanta, I am miserable wtih these symptoms.

 
Old 10-22-2009, 08:12 AM   #14
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Yes, I have a chronic case of Lyme Disease and Ehrlichiosis. I'm currently being treated but have nothing to show for it yet. Please keep in mind that regular Lyme tests are very very unreliable.

All the best, Amiel

Last edited by moderator2; 10-22-2009 at 01:13 PM. Reason: please do not post websites except as described in the Posting Policy

 
Old 10-22-2009, 11:29 AM   #15
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Re: Chronic “drugged,” “drunk-like,” “woozy” feeling in head – Help!

Hi Amiel,

By "buzzing" do you mean lilke a feeling that something is buzzing against your body or something else? I notice that I don't twitch all that much, but I get little itches and weird feelings all the time. I always thought these were due to anxiety, but I have the creepy crawlies even when I see to be very relaxed. Perhaps it's just allergies of some sorts, but I was just curious to find out more about this symptom.

I notice that I feel drunk-like a lot too. I've been this way for many years, but it became worse about several years ago. I'm tired almost all the time, unless I have a lot of caffeine. I have had basic tests done, but I am hesitant on getting a lot of tests done since I feel that it will be very difficult to find out exactly what it is. I seem a little worse since moving to my area, so I have a feeling it IS allergy related, but not seasonal. It's more of a constant thing. I used to get throat problems all the time when I lived in a different state, then I was fine after moving, so maybe this is something similar, yet the head feeling instead of throat.

I DO get vertigo though quite often and feel like everything is spinning at times. I take Prozac and the occasional Xanax, but I felt this way before taking them. The only other thing I take is birth control, but again, I didn't feel like this the whole time while taking it. I feel worst in the morning and struggle with waking up, even after a decent night's rest. The only time I can wake up fine is anytime I have a stomach-ache or if I wake up after the sun is out and very bright.

I've had times when it was pretty bad, but it seems manageable for now. I just don't want it to get worse again. I haven't really changed anything, so I'm not sure what it can be. I work out regularly and eat a healthy diet.

I did live in an area where Lyme disease was a bit more common since there were a lot of deer with ticks, but I stayed out of the wooded areas where the ticks were common, and I've never had a tick on myself. I suppose there are other ways I can catch it... I lived in that state for one year, two different times.

What would you say are the most common identifiers of Lyme that make it stand out from other things that would cause one to feel drunk? I can look up the common symptoms, but I wonder if there is anything in particular that would really stand out for me to watch for.

Thanks!

 
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