I am new to this board and have been reading alot of information posted on various topics. I think I may have found the best site to discuss these issues I have been having over the past few months.
I have suffered from Rheumatoid arthritis since I was 23 - for 12 years now I have dealt with it - quietly for the most part - and figured if I was going to get a disease in life - this one I can deal with. And I have been fine taking enbrel injections for many years side effect free - very lucky.
After a lovely trip to Italy last August - and the intense heat - I drank alot of water and was thrilled to have lost quite a bit of weight when arriving home. Enough that I gained it back quickly and then some shortly after coming home and didn't really take notice until my clothes didn't fit me well. I did not change any eating habits and didn't give it much thought - until my energy level started to fall off the map. I am a pretty much a "go..go...go" girl and have energy issues already with RA - this feeling was something much different. After feeling horrible and putting up with it for months - the foggy head symptoms showed up. Along with numbness and tingling on my face to the right side only. I was diagnosed with Hypothyroidism a month ago and take levo meds now at 100mg. I had a 1 month follow up this week along with a physical - I told my doctor I was not feeling much better and this "fogy head" and zero concentration has started to affect my work and daily life. I insisted for a neurologist referral but that will take a couple months. I just don't know if I can put up with this any longer.
Can anyone assist me with this? Are these facial tingling/foggy head issues symptoms of hypothyroid? My blood test this week showed my levels were fine now - then I shouldn't be getting worse..and this is my concern. I was fully expecting my levo dose to be increased but that won't happen...just frustrated and thought someone here could help me.
Thank you in advance for taking the time to read and hopefully shed some light..
If you have a copy of your last labs post here with the ranges. Just because your doc thinks your levels are "fine" doesn't mean they are fine for you. Often the wrong tests are done (like TSH) to monitor treatment and if your doc ignores your symptoms (like the foggy head) then you can be hypo forever.
As far as the one-sided face numbness that's one I've not heard of for a hypo symptom. It almost sound like Bell's Palsy or a Lyme disease issue. Have you been exposed to any ticks? I'd ask for some neurological or Lyme testing if it doesn't resolve.
There are just so many different causes for facial tingling/numbness, many totally benign some more serious. But if this is a persistent symptom, I wouldn't just chalk it up to hypothyroidism without insisting your doctor investigate more serious possibilities first. (did the doctor do a general neurological exam when you were in the office?)
I think what makes medicine so difficult is that there is no way to know whether a particular symptom is being caused by the known disorder or if it is due to another undiagnosed disorder.
It's a process of elimination and I think it's important to be your own advocate by educating yourself as much as possible and insisting on ruling out more serious conditions before being satisfied that the issue can be put under the umbrella of a known disorder (like hypothyroidism). It sounds like you are doing exactly that.
I hope you get answers soon, it's frustrating for sure.
Thank you so much LG20626 and Javelina for your replies - much appreciated.
I apologize for the delay in responding - I had a blip over Valentine weekend with trouble breathing. I ended up convulsing quite alot - broke about every blood vessel in my face and eyes - I thought it was time to visit the emergency - I qualified after this episode (I hate using the emerg unless completely necessary).
Long story short - after 11 hours - I had an EKG and a Catscan - both were clear. I was advised to definitely see a neurologist about this facial issue - just from doing a few routine "feel" tests with him - he said my sensation was definitely "off" to one side. After waiting for these results to be sent to the neurologist I am currently waiting for an appt on - the emerg doctor advised this episode would definitely hurry up an appt. with him. Wrong...after hounding the neurologists office today - I was advised that even with my emerg visit and the doctors recommendations - I won't be looked at until around July - that is just to look at my file. So now I am back to my family doctor for another referral - I told her to send me somewhere within a 2 hour radius so I can see someone right away.
When my doctor calls back hopefully this week to pickup a new referral copy - I will ask for my lab results and more info and post it. I am trying to learn all I can about this disease but not getting much help. I did ask the emerg doctor if my thyroid levels could be good but I still feel horrible - he replied "yes" - my body could be in catch up mode and I haven't got the full effects of the levo yet. It has been since Jan 8 - I think this has been long enough.
I am also experiencing lumps in my throat now - but nothing there....no sore throat - no blockage - just a lumpy feeling - heaviness...I have also found a few posts on this site from others experiencing the same thing. Very frustrating that my doctor basically just sent me on my way with pills after telling me my thyroid was not working properly - there is alot more she could have informed me about...ALOT MORE...
Wow, I've heard of long waits to see specialists before but July?? What is he, the only neurologist in your state? I had to wait several months to see a neurologist once but this was a sub-specialist at an elite medical center.
It sounds like you need an ultrasound of your thyroid next, the lumps are most likely nodules. The foggy brain is very likely thyroid and if you could post your most recent labs here it would be helpful.
Also a brain MRI is a better test for neurological problems than CT. If it's going to take a long time to see a neuro ask your PCP to order one for you, this should speed things up a little.
Hello, just wanted to share something that happened to me a few years back. For twenty or more years I have had MS type symptoms without "officially" being diagnosed. At one point I had facial numbness, went to a nuerologist, had an MRI. I figured for sure I must have MS now. Went on vacation while waiting for MRI results. While on vacation had a horrible toothache. Went to the dentist and found out I had an abcessed tooth! Had the tooth fixed, some antibiotics, and the numbness went away! I thought since you had such a long wait to see the nuero, you might just want to go see your dentist. The abscess I had was touching (or infecting?) a facial nerve. I hope it turns out to be something simple like that. Best of luck.