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Old 09-01-2010, 06:37 PM   #1
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diagnosed today...

Soo..today I saw my doc and he is saying he really believes I have lyme even though the westernblot was negative by CDC standards. I have a couple of bands positive and a ton of symptoms so He gave me doxy but I'm on the fence about taking it. Also I hate taking new meds as I worry alot about side effects. Has anyone else had this problem??

I don't know what to do or what to expect by taking it. I'm desperate for relief but scared at the same time. Should I expect nasty side effects? Should I take it morning or night? What is making me worry more is that I recently took an antibiotic that I have taken many times but this time I had a bad reaction - I felt worse instead of better and also got hives?? So strange.

Ugh...

 
Old 09-01-2010, 07:33 PM   #2
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Re: diagnosed today...............

If I were you, I would start taking the doxyclycline immediately. The doctor must have told you the dosage. It doesn't matter what time of day you take it as long as it is always in your system.
Lyme is, as you know, a very serious disease to have; any side effect from doxy isn't likely to be serious, and if it seems to be, you can be switched to Amoxicillin. My son had Lyme disease several years ago, and thankfully started treatment right away. Now he is completely free of the disease (of course, he could get it again if he is bitten by a deer tick!)
If you let it go, you stand the chance of having flareups which can be very debilitating.
Of course, this is not a professional opinion - just one from someone who has known many people who have had it. If it turns out that you dont have Lyme, no harm will have been done by taking the doxyclycline. Good luck.. Mabent

 
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Old 09-02-2010, 07:11 AM   #3
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Re: diagnosed today...............

Yes of course the doc told me the dosage, just wondering about side effects keeping me up at night - I do not need that too.

Also wondering if I really developed an allergy to the other antibiotic or if it could have been a herx reaction?? This was back in may when all this started and I presented then with a rash all over and joint pain, fever. After starting the antibiotic (which I've taken many times before) my joint pain and body aches significantly increased along with hives, severe dizzines and fever. Could this have been a herx instead of allergy?? I didn't experience these effects until about day 3 of the antibiotic.

 
Old 09-02-2010, 08:50 AM   #4
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Re: diagnosed today...............

I'm sorry you've had all these problems! Have this been going on since May??
did your doctor say why you would have had such a reaction to an antibiotic which you have taken many times before? I had never heard of herx, but it does seem as if you may have had it.
Maybe you should consult a Lyme specialist. That's what my son did. In the meantime I hope you will take the doxycycline as soon as possible. It won't cause sleep problems.

 
Old 09-02-2010, 10:40 AM   #5
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Exclamation Re: diagnosed today...............

Please take your meds! I had a terrible, terrible case of Lyme...so bad that they are thinking of writing about it in medical journals. My western blot was "partial" like yours. I took meds early on when I was sick and they believe that it impacted the test results.

When I was sick I also got an all over rash. It was most apparent when I became hot - either after taking a shower or exertion. Little red bumps that itched and then turned into almost like blisters. A team of dermotologists later determined that it was an immuniological reaction to the lyme. _ Basically a herx. Symptoms getting worse when you start the meds are common - and yes that is a herx. It is temporary and it is because the spirochetes are dying - that is good.

Good luck.

 
Old 09-02-2010, 12:42 PM   #6
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Re: diagnosed today...............

Hello again, Kdel,
I just want to add the first sign my son had was Bell's Palsy. He had been bitten by a deer tick, which had imbedded itself in his chest. It was very tiny, so for a week he didn't realize that it was a tick! He thought it was a mole. When he did realize it, he called me and asked what to do, since, of course, he was concerned about Lyme disease. This was during the time when the media was constantly warning about it. I bought a book about it and learned that he would probably get a red ring and a rash if the tick was carrying the disease. It also said that it could start as Bell's Palsy!. He did get a faint ring plus Bells Palsy; fortunately, there was a doctor who specialized in Lyme, and I called and got him an appointment that day. The doctor immediately prescribed antibiotics; I believe he took two rounds. This happened 15 or 20 years ago , and he has not had another attack since.
The doctor said that he wasn't immune to the disease and could get it again if bitten by another tick. At that time there were some doctors who were making a fortune by having patients take antibiotics by IV from the beginning. I'm not sure about what the outcome of that was. But, you can be cured; it may flare up from time to time but inbetween almost everyone lives a normal, pain-free life. Mabent

 
Old 09-02-2010, 03:06 PM   #7
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Re: diagnosed today...............

Kdel,
One of the most important topics my LLMD covered on my first visit was finding a way to get a good night of sleep because that is when the immune system recharges. Most Lymies have trouble sleeping and it needs addressed just like the Lyme. I am sure each diagnosed person will have a different method that works for them.

For me, I take Gabapentin about two hours before bed and maybe Nyquil to help sleep. Magnesium also helps with the muscle twitches.

 
Old 09-03-2010, 06:27 AM   #8
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Re: diagnosed today...............

Hi again and thank you all for the advice and info. To answer some of your questions - yes this has been going on since May - that is when I presented with the all over body rash, joint pain, sore throat and extremely swollen glands - I also had a fever but low - 99.9. This is when the doc gave me the antibiotic that I had the bad reaction to. Then in June I suddenly developed severe pain, swelling and stiffness in one elbow one day, then the other the next along with other joints, hip and knee - that night I woke in the middle of the night with 103 fever (this was about 2 weeks after finishing the antibiotic). I thought I had some strange summer flu but the joint problems didn't make sense and didn't go away which led me back to the doc and the lyme test. Also this is when I told the doc about the reaction I had to the prev. antibiotic. He said he suspected lyme and did give me doxy at that time but when his office called to say test was negative (I was waiting for results before starting med) they didn't tell me that there were some pos. bands sooo..............didn't take the doxy and just went back again the other day and that is when my doc said lyme even though not by cdc standards. Also my dog was just diagnosed as well (her test was positive) and we do share the same backyard so I know we have ticks carrying it in the yard.

 
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