Re: Superficial Siderosis
We are in touch with Dr. Levy We are now just debating whether or not to pursue treatment with Deferiprone (as the next trial is not expected to begin for several months) and looking to speak with people who have used it to understand their experiences, the risks, and how they were able to procure the drug.
Sounds like you saw some improvement during the trial, albeit the trial was only for a short time? I would be curious to learn more if you are available to speak or via email?
Also, if there is anyone else out there who has experience with Deferiprone I would be curious to hear about your experience as we embark on a treatment using the drug.
Last edited by moderator2; 07-26-2011 at 10:10 AM.
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