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Old 07-07-2008, 11:21 AM   #1
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Join Date: Dec 2004
Posts: 1,232
Llama HB User
Tired all the time - and sick of it!!!

Hey folks, just a quick question. What can I do about all of this tiredness? I sleep 12-18 hours. I suspect it's from the meds (I'm on lamictal, abilify, provigil...in case you forgot). I really thought it was maybe from the abilify because I never had this symptom before when I was just on lamictal. But then I tried taking myself off of abilify and psychologically I felt like crap. Just a lot of bp symptoms resurfacing.

Well then the other day I was thinking that maybe I just have depression and don't have bp and don't need all these strong meds anyways. I know your'e thinking that doesn't make sense because I've had manic episodes, but what if that was just part of the depression? Know what I mean?

Argh, what do you guys think?!??? I have an appointment in with the pdoc but I can't get in until the 30th. But I just called today and they said they'd have her nurse give me a call back today. I'll let you know what they say.

I want my life back, but I am afraid I may just have to learn to deal with sleeping 12 or more hours a night.

 
Old 07-07-2008, 08:58 PM   #2
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seaturtle HB User
Re: Tired all the time - and sick of it!!!

(((((Llama)))))

Hey, I'm sorry to hear you've got med troubles again.

Ask your pdoc to get you in sooner, at least get on cancellation list.
I've never taken any of the meds you're on, but I'd think the Provigil would help with the sleeping.

Have you tried setting yourself a sleeping schedule and making yourself get up? I know maybe that's impossible, but just a thought.

I think you know you've got bipolar, not just depression. At least from all the time I've known you on the boards, you seem to definitely have it.

Are you in a depressive cycle - and have you had change in meds/dosage recently? Can you pinpoint when th is started and link it to any med?

I am thinking of you and hope the nurse calls you. No, I don't think you'll have to be sleeping 12-14 hours for the rest of your life. Haven't you had periods when you haven't (matter of fact, when you weren't sleeping well at all?)

Hang in there, keep your perspective, this will be worked out. We're here for you, and I look forward to hearing from you.

Fondly,

Seaturtle

 
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Old 07-10-2008, 03:59 PM   #3
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Join Date: Feb 2007
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martavee HB User
Re: Tired all the time - and sick of it!!!

I have been given a trial run of Modafinil in the UK by my doctor. I am meeting with my pdoc in the US before returning to the UK and my UK doc wants me to get the official prescription from the pdoc. It has been used off-label for those with significant residual fatigue from medications. You can research it easily online.

It was quite an eye-opener. The first two weeks I felt speedy (but not like amphetamine-like stimulants) and that sort of scared me. Luckily that then subsided and now I don't feel any adverse effects. I don't forget words like I used to, I can concentrate better, I'm more talkative, I'm not as tired and don't get foggy. I still have moments of course where I do stumble in a sentence or forget a word. Usually that's because I'm physically/mentally tired or not eating properly.

It's considered a "wakefulness promoting agent" rather than a classic amphetamine-like stimulant, which I think is important for people that have bipolar disorder because it decreases the risk of mania. You also don't get the side effects that are associated with stimulants (although I would like to note the first few weeks I did feel my heart rate was different, not THAT different, but a bit after taking the medication). The dosage is 200mg-400mg. Research has found that 400mg doesn't produce a different effect than 200mg. It doesn't give you a 'high' like other stimulants so there isn't the same abuse potential. That was important for me because I have a history of drug abuse.

Oh btw- I take 200mg Lamictal (one morning, one afternoon), 200mg Modafinil (morning) and 300mg Seroquel at night.

 
Old 07-16-2008, 11:10 AM   #4
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tiredoftired HB User
Re: Tired all the time - and sick of it!!!

I don't know your history, so this is a little abstract;

About a year and a half ago, I noticed that I was always tired and thought it was "chronic fatigue" which I'm not sure is even a real medical illness. Then about a year ago I was diagnosed with depression/anxiety. Hence the cause of me sleeping 12 hours a day and still feel as if I hadn't slept at all.

Right now I'm on meds (parnate and abilify) for depression / anxiety. agian, I'm not sure where this fits into your diagnosis, but I hope this information is helpful. Good luck.

 
Old 07-16-2008, 06:22 PM   #5
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Join Date: Mar 2007
Location: elk river, MN USA
Posts: 130
lavenderlily13 HB User
Re: Tired all the time - and sick of it!!!

Hey there,

I just wanted to say hi and suggest that maybe you could try a new med combo. If you feel much more tired than you used to, it's likely that it is due to the meds you're on. It's amazing how much the meds affect our energy levels, I feel completely different now than I did on my last med combo. I was taking effexor for a few months, and it made me more irritable and impatient, my energy level was good with it, but my family hated being around me. I went back to wellbutrin and prozac for my depression.

What about other depressive symptoms for you? Are you the same as before with other parts of your personality? Do you still have interest in the same hobbies as before, or are you just going from day to day doing what needs to be done? It's always been hard for me to tell when I'm depressed, I guess because I was used to repressing my emotions, and I could only tell by guaging my physical symptoms. Do you have other physical symtoms of depression, and what does your doctor say about it?

Sorry, instead of giving you answers, I'm just asking questions, but I think it may be the key to helping you figure out what's up. Hang in there, this is part of our life, trying to figure out what the heck is going on. It never ends, it seems. Just as soon as I think I've got things figured out, something comes up, and I have to start from the top. That's not just a bipolar thing, it's a human thing, it's just a little more complicated for us, with meds and craziness and such...

hang in there,

~~ lily~~

 
Old 07-22-2008, 06:05 AM   #6
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Join Date: Jan 2007
Location: Australia
Posts: 36
lyndylou2005 HB User
Re: Tired all the time - and sick of it!!!

Hi llama, Well I have seen my doctor and have now seen a blood doctor, lung specialist and had a sleep study done in hospital. Have to wait until 5th August for the results. Am really hoping they find something else wrong with me as I can't stand the tiredness either and if it is just the meds I am not sure how I will cope. Pdoc doesn't want to prescribe anything else until my results are all in. Have had my meds changed with no real difference. Have you had everything else checked? My poor 12yold thought I was dying because I was seeing so many doctors. Had to try to explain it was all for mum's sleeping. Will let you know how I get on. I know how hard it is (believe me) but let's keep our chins up and keep looking for answers. I don't believe we have to be this way. All the very best, ((hugs)) Lyndylou.

 
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