Ok...I found very very old threads on here about people experiencing dizziness after stopping the pill. The threads were closed so I figured I would start a new one. Over 3 yrs ago I stopped the pill so my husband and I could start a family. I had been on the pill for 6 yrs. About 1.5 months later I got really bad dizziness, disoriented, anxiety, vertigo, lightheaded, feelings of fainting, nausea, mild depression and what not. I had so many tests done.
They checked my ears (hearing was perfect). They did vertigo tests (ENG and VNG) all showed no major signs of something wrong. I had the rotational chair spin test (passed). I had a CT scan of my head and all is normal. I had 2 mris of my head and all is normal. I JUST had one of my neck and all is normal. Blood work showed nothing wrong.
My thyroid was checked and is fine, I was check for anemia and I"m fine.
My blood sugar was checked and it is fine.
Eyes have been tested and all is fine.
I had my heart checked and the did an EEG (or something like that) to look at the blood flow through my valves (all is fine). So many things have been ruled out.
I am still experiencing all of this stuff and it's just horrible! I keep asking doctors if it could be hormones, but they keep saying that has nothing to do w/ the symptoms. I think they are wrong b/c it happened so close after stopping the pill and I'm not the first for this to happen to. I used to be so athletic, worked out 4-5 days a week, always full of energy and now I feel like I"m in a hole. I have energy b/c I"ve changed my diet (cut back on sugars, caffine and startches), but I can't get rid of the head feelings.
Is there anyone out ther who is experiencing this or has and found a cure. I would LOVE to hear what you did. I have an 8 month old son and want to just go crazy playing with him and going for walks, but after I walk I feel as if I'm going to fall over (which also makes me think inner ear, but they didn't find anything.) I'm trying to stay as positive as I can that I will find a cure for this soon.
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Hi! I have experienced many of the symptoms you describe over the past 20 months. My dizziness/lightheadedness/imbalance (not traditional vertigo/spins) started after the birth of my 2nd child by c-section. If you are still checking this site and interested in swapping stories/experiences, please reply. I have been to every specialist under the sun... 2 neurologists, neuro-otologists, ENTs, Endocrinologists, Hematologist, Rheumatologist, etc etc. Not one MD has a clue! I am so frustrated and tired of not feeling good for my 3 children. I am a young 33 yr old Mom who really wants to find an answer so I can be the Mom my kiddos deserve. I miss feeling "normal" and living my life free of this constant hungover feeling. My vision has been abnormal as well as this constant feeling of a slight dizziness, brain fog... really a feeling of being hungover without the fun night before of drinking
Hope to hear from you soon. I too have done a ton of research. Tried acupuncture, chiropractors, neuro chiropractors, cleanses, working out, low dose SSRIs and the list goes on!
Hope to hear from you soon. I was interested to learn if your neck vertebrae and chiro route has brought you any relief. I too was hoping it was my neck and it could easily be corrected.
Well, I know what you're going through and yes it stinks. I have an 8 month old and at times I feel like he's getting cheated on having fun w/ me and same for me. Doctors still have no clue hear and I've given up on my neurologist b/c they haven't gotten back to me about things in a month. I've left messages and what not and they're just really getting me mad. I have to get ahold of my primary doctor and have her contact them and see if she can get anywhere. She's limited on the tests and stuff she can do, but she knows something's wrong and is doing what she can to help me find answers and get better. One thing we may look into is Adrenal Fatigue. I have a lot of the symptoms of that. It's when the adrenal gland gets tired from stress and a ton of other things in your life and stops making enough of certain hormones. We'll see what happens if we look into that. Also, I've started back up on the pill to see if getting those hormones back in my body will start to help. Now I have been getting some better days, but not sure if it's just coincidence or the pill working. I still get nasty spells at times though. I hate the brain fog, "dizziness" and disoriented feeling. I mean this is no way for someone to live and there is an answer out there and doctors need to work harder to find them. I've had so many tests and scans done. I want my life back! I have gotten my energy back though. I did the "Activia Challenge" and believe it or not it did work. I have energy and can function now, but the "dizziness", brain fog, etc whoops my butt. One person, who is also experiencing this and keeping in touch w/ me via email, said he may have mercury poisoning b/c of the fillings in his mouth. He's going through all kinds of procedures to see if it works. The did find that he is suffering from "gut wall infection" which can be caused by mercury poisoning. So, he's keeping me updated on his progress. It's going to cost him a LOT to be going through all this. As far as I know all of my amalgum fillings (which contain mercury) have all been removed, but that doesn't mean I still don't have mercury in my body that could be causing this. Interesting though that this all started about 6 months or more after I had the mercury fillings removed. Grrrrrrr.....There's just SO much out there that can cause what we have. Just need to find the right answer. Like looking for a needle in a hay stack!
I've been experiencing similar symptoms. Dizzy, lightheaded (but not vertigo spinning) and lack of energy. I've seen my regular doctor, cardio, neurologist, and gynecologist. All have said that this has nothing to do with the pill, yet, all my sypmtoms started 6 months ago when I stopped taking it. The neuro wants me to take anti-depressants, but I really don't want to put more chemicals into my body.
Did I read right that you have been going through this for 3 years? Please tell me its not going to last that long!
Yes, I still have the dizziness. It's been over 4 yrs now. It's not something I am happy about and so frustrated with doctors that I'm taking a break from them. I went through another round of tests and mri's They looked for a condition called Arnold Chiari Malformation in the brain stem that can cause a lot of these symptoms, but I don't have that (thank God). A neurologist here said that if it was something neurological and would have gotten worse after this long of time. There's def. something going on, but I think it's so simple that doctors are missing it. I am starting think it may be my eyes. Reason I think that is b/c 95% of the time when I close my eyes it stops and/or if I just close one of them it seems to stop or lesson considerably. Stress is not helping it either. I do have a lot of stress and I get a lot of pressure in my neck and back of head as well. I have my energy back, but do have off days. But something is off in my body. I sometimes feel as if my body is getting a "fuzzy" feeling and is just going to drop. My blood sugar has been tested many times and I'm fine there as well. My blood pressure has been good too. So, I try to just not think about it in hope it will just go away. I had this once before and it lasted about a month and it just went away. Not sure why it won't this time.
The following user gives a hug of support to looneysebec: MrsBee (08-02-2011)
I am going through the exact same thing. Started birth control and after 6 pills had a major dizzy spell and numbness. Was admitted to ER and hospital - suspected stroke. I had zillions of tests and came out with no indication of anything wrong.
I stopped taking the pill because this experience terrified me, but as soon as I came off it (cold turkey) I had dizziness, nausea, tingling, and chronic anxiety and panic attacks.
7 weeks later and I still struggle with the dizziness. More of an imbalance and wooziness really than full blown spinning vertigo. I've tried a naturopath and chiropractor and nothing helps. This week I'm seeing an ENT and will probably get tested out of the wazoo - I've lost a lot of faith in MDs.
Anyway, you're not alone. I'd love to hear how you are doing. I am trying magnesium too, and I have good days, but before my period is awful. Even as it comes to an end it still flares up. Definitely hormones do have something to do with dizziness.