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Cerebral Palsy

Diagnosed @ 51 - A blessing?

Posted 04-20-2012 at 08:55 AM by Late Life CP

It's now been 24 hours since I was diagnosed with Spastic Diplegia or Little's Disease, a form of CP.

I found this message board last night & was relieved to see I'm not the only one that has been diagnosed as an adult.

This morning I decided to start this blog. My first posts were quick summaries of what when through my head yesterday.

I failed to mention that my husband had gone to the first appointment with my neurologist & feels comfortable...
Posted in Cerebral Palsy
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Diagnosed @ 51 - 2nd opinions?

Posted 04-20-2012 at 08:18 AM by Late Life CP

My brother-n-law, RDB, has a PhD in bio-chemistry & does medical research on cholesterol. I had to give him a call & see if he thought my new diagnosis was "medically feasible".

I talked about my visit with the neurologist. We also discussed my current visits to the chiropractor & massage therapists (now 2x weekly). Of course, he knows of my knee replacement. After a while he just kept saying " it makes sense".

He asked about the...
Posted in Cerebral Palsy
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Diagnosed @ 51 - What now?

Posted 04-20-2012 at 07:28 AM by Late Life CP
Updated 04-20-2012 at 07:30 AM by Late Life CP

Yesterday, I went for my 2nd follow-up with my neurologist for treatment of Chronic Pain Syndrome. We discussed the increased tightness of muscles in my legs and butt. We moved to an exam room & he re-tested my muscular reflexes and had me walk for him & then walk one foot in front of the other. Wow, I couldn't walk a straight line & kept reaching for the wall to my right.

We stepped back into his office where he proceeded to tell me that my reflexes had changed drastically...
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janna 15month old with spastic quadriplegia

Posted 10-14-2010 at 11:09 AM by shannon48183

So we went to see Janna's physical medicine doctor and boy were they surprised! They said they have never saw a patient that looked as good as her as far as her facial expressions and personality. Then they had to give me the statistics which I hate to hear letting us know she may never walk or crawl. I know in my heart she will do all of these things in time with continuous pt and ot and our help. I am praying for all who are going through this and I am thinking of petitioning the government to...
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