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Lupus
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Story of my Non-Healing Wound Steroids - Part 2

Posted 06-02-2014 at 06:53 AM by RABG (Story of my Non-Healing Wound)

Finding a good rheumatologist wasn't going to be easy. Finding a poor rheumatologist wasn't going to be easy either. I live in a small town so I realized I would have to drive at least 30 minutes.
At the time - early 90's- there was only one such doctor and he was one of the poor ones. There are so many symptoms associated with Lupus and prednisone that it was hard to sort them out.
It was too much for the 1st. Rheumatologist so I had to move on.
The search for another doctor...
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Old

Story of my non-healing wound- steroids, part 1

Posted 05-31-2014 at 06:06 AM by RABG (Story of my Non-Healing Wound)

When I read some of the posts, about people struggling with their illness, or disease it breaks my heart. I want to hug them, comfort their fears, tell them all will be well. I can't do any of that. How do I know if everything will be well. In reading their posts it brings me back to the beginning of my illness.
I have had Lupus for 25 years, probably more. If I looked at my illness on paper I would scream. So many times in the hospital, so many different doctors who have helped, so many...
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Old

Second treatment with Benlysta

Posted 07-27-2011 at 12:09 PM by Novelty

July 26th, my second treatment.

I had caffeinated coffee, 2 oz of cheese on toast, and almond milk for breakfast hoping that I will start with a higher than my normal BP.

The pre-treatment reading was 104/60. This time I didn't need IV saline. Treatment started at 9:45 and ended at 10:45. At 10:15 BP was 116/64; at 10:45 it was 133/61. I never had a reading this high. The nurse attributed the increase to what I had for breakfast. Before I was sent home BP was 112/61...
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Posted in Lupus
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Old

My experience with Benlysta

Posted 07-18-2011 at 07:53 AM by Novelty

I had my first IV infusion of Benlysta on July 12th.

The nurse first took my blood pressure and body temperature. My BP started at 97/70, temperature normal. Treatment should have started at 9am but it was delayed until 10:45. Pharmacy was having difficulty dissolving the medicine because it was chalky.

I was dozing on and off while waiting. The nurse took my BP again, it went down to 85/60. RN called my rheumatologist and started IV saline to raise the BP. MD said...
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Posted in Lupus
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Old

My Journey with Lupus.... Please dont give up!

Posted 11-16-2010 at 03:52 PM by ucgurll
Updated 11-17-2010 at 08:07 PM by Administrator

First I would like to say that if you ever feel like something is just not right with your body go with your gut feeling and be your own advocate, do not stop until you get answers.

With that being said i will start with my story:

It all started when i was younger with nose bleeds and the rocking of my foot since i was a baby. As I got older I started getting more nose bleeds (more so when i was cold and at night when i was sleeping), constant headaches (worse when...
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