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Multiple Sclerosis
Old

Lost my sight today!!! MS Sinks

Posted 04-19-2012 at 08:41 PM by JsMis

I've been deal'n with this, what Dr. Jo told me was MS for years now. The Dizziness & passing out has been from 13 years old. Numbness and shooting pains, headaches, and falling from 8 years old. Pedi said I had Migraines at 8 years old. But in the last year I've started see'n shooting stars out of the corners of my eyes, or my eyes go blurry and I stop reading or turn the TV off and go to sleep. Because I can always Sleep. Also in the last year my brain power, thats what I call it has went...
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Old

How My Health Is Changing My Life - Part 4

Posted 02-07-2012 at 05:49 AM by dogmum

So, at this point I was feeling pretty frustrated with the whole system. In total over the last 4 months I've been in the ER a total of 10 times. The last time, the ER doc gave me the name of yet another MS specialist in another city on the sly when the neurologist on call just read my file, gave me a painkiller and sent me home.

I did a VEP test, at my own request, during which my neurologist came in to look at the results and yelled at me for "not trying hard enough"....
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Old

How My Health Is Changing My Life - Part 3

Posted 02-07-2012 at 05:35 AM by dogmum

The idea of multiple sclerosis terrified me. And now, not knowing was also terrifying me even more. I decided to do some reading on my own, so that I could know something by my own research about MG, MS, and the symptoms I was experiencing.

As for MG, considering that ALL of the tests were negative AND I had a negative response to Mestinon, it started to look very unlikely that it's what I have. So why is my doctor still insisting on this dx? Why is she pushing me to do the...
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Old

How My Health Is Changing My Life - Part 2

Posted 02-07-2012 at 05:07 AM by dogmum

This past summer, apart from the intestinal disturbances, was absolutely lovely! I worked as a volunteer with animals (dogs and mini farm animals) at a center that provides pet therapy to the local hospital as well as day trips to local schools. So, LOTS of activity. Lots of rewards emotionally. And lots of exercise and sunshine. It was in this beautiful sunshine, near the end of July, that I started to experience occasional double vision and severe light sensitivity. I bought a hat and a...
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Old

My mysterious 10 year journey! Yeah me!

Posted 09-10-2011 at 04:41 PM by Eyeball gal

My symptoms

Ok so here's a somewhat short version list of symptoms that one neurologist, one neuro-Opthamologist, one Opthamologist, one family doc and a bunch of assorted ER docs have not figured out what's been going on for the past 9yrs so here it goes
-radiating eyeball pain, in one eye! But switches to opposite eye on occasion, pain is a #9 and it never goes away, large doses of anvil curb it to a point, these episodes over the years have progressively gotten worst! Some...
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