Hi there. And first off, let me just start by saying, I don't expect anyone to actually read this blog. My intentions in writing it are to hopefully blow off some steam and clear my thoughts a bit.

Firstly, a little bit about me. I've always been an adventurous and happy person. I met my husband while teaching English in Italy 8 years ago and packed up my quiet life in small-town USA 4 years ago to marry him and settle permanently in the Alpine town I now call home.
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So, at this point I was feeling pretty frustrated with the whole system. In total over the last 4 months I've been in the ER a total of 10 times. The last time, the ER doc gave me the name of yet another MS specialist in another city on the sly when the neurologist on call just read my file, gave me a painkiller and sent me home.

I did a VEP test, at my own request, during which my neurologist came in to look at the results and yelled at me for "not trying hard enough"....

The idea of multiple sclerosis terrified me. And now, not knowing was also terrifying me even more. I decided to do some reading on my own, so that I could know something by my own research about MG, MS, and the symptoms I was experiencing.

As for MG, considering that ALL of the tests were negative AND I had a negative response to Mestinon, it started to look very unlikely that it's what I have. So why is my doctor still insisting on this dx? Why is she pushing me to do the...

This past summer, apart from the intestinal disturbances, was absolutely lovely! I worked as a volunteer with animals (dogs and mini farm animals) at a center that provides pet therapy to the local hospital as well as day trips to local schools. So, LOTS of activity. Lots of rewards emotionally. And lots of exercise and sunshine. It was in this beautiful sunshine, near the end of July, that I started to experience occasional double vision and severe light sensitivity. I bought a hat and a...