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Old 08-15-2002, 07:08 AM   #1
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Post Protein C Deficiency

If anyone has this blood clotting disorder, please reply. I would like to know how you are doing with the disorder and any problems you have had. This is a hereditary disorder which causes the blood to clot more than the normal person.

Thanks,
Angela

 
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Old 08-16-2002, 06:55 AM   #2
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I have a very similiar disorder called Factor V Leiden...different disorder but same outcome of clotting and possible deep vein thrombosis. If you read the post here entitles Von Willebrand's sufferer you can see some of the info I posted about it....in one post I mention a friend of my bosses who had a disorder similiar to mine....I believe she had what you had.

I am not undergoing any type of treatment for it....are you? Do you have kids? How were you diagnosed?

 
Old 08-16-2002, 08:19 AM   #3
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I was diagnosed when I was about 14 years old. My mom suffered from a TIA (a mini stroke) and that is when they did tests to see what caused it. Since it is hereditary, my sisters and I were all tested (all positive). My mom was placed on Coumadin and had problems with the medication so she was switched to Plavix.

I have one child, 2 year old girl. While I was pregnant I had to take Lovenox shots (small dose of heparin) throughout my pregnance, and switch to the full dose of heparin injections the last four weeks of pregnancy.

My sister, about to give birth, had problems when she got pregnant. She developed a blood clot in her leg (she didn't know what it was) that moved and formed a pulmonary embolism. She was hospitalized in time and put on heparin to disolve the blood clot. She was then placed on Lovenox (a higher dosage than I was on) for her entire pregnancy. She goes to the hospital Sunday so that she can be induced on Monday.

My other sister has had no problems.

My uncle had two blood clots in his legs and is now on coumadin.

In short, we have determined that my grandfather was the carrier of the gene for Protein C Deficiency, however, he was never tested for it. He had symptoms though that lead to our assumptions. My grandmother has never showed any symptoms of the disorder.

 
Old 08-16-2002, 11:49 AM   #4
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Wow, your family has been through alot with this disease.

I was diagnosed about 2 years ago after many miscarriages. My doc told me I'd have to do blood thinner injections as well if I were to get pregnant. But I opted out since I am also diabetic, Rh Negative, and pushing 40. Sometimes I regret it but I think I did the right thing.

One of my sisters just got tested and she has the same thing I do, but she never had any problems with her pregnancy, so go figure.

So you don't take meds unless you are pregnant, like maybe a baby aspirin? I take one when I think of it cause I also have very high cholesteral and diabetes so my chances for artery problems are very high. But I take the aspirin on my own...no doc has ever instructed me to.

 
Old 08-16-2002, 12:00 PM   #5
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I am currently taking Plavix. It keeps the platelets in the blood from sticking together. I started that withing the last 6 months. I used to be on aspirin.


 
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