jsiplon,
i was diagnosed with ITp in 1980 when i was 10 years old. back then it was very rare and there were not many treatments for it. My platelet count dropped down to 2000. the normal range is 150,000 to 350,000.
the dr's had tried alot of stuff(prednisone) for many months which has caused me many problems now later in life. but finally had to resort to having my spleen removed( ended up having 2 spleens) they removed both of them. After the surgery i did not have a problem with my platelets dropping for many years untill 1995 when they dropped to 40,000 but i was told to stop working ( i worked in physically demanding job at psych hospital) which i did for a month and they went back up on thier own without any medical interaction. I am told to stay away from NSAIDS and Aspirin. being on NSAIDS is what caused the drop in plateletes in 95. but i have not had any problems since then . i just watch my levels every few months and make sure i check for bruising or patechei(little red spots)(can't spell).
On the other hand my sister was dx'd with ITP back in 92 she was 15 and she was put in hospital for a week and treated with gamma globulin.She has not had a problem since then and has even gone through surgeries and c-section with no problems.
it is not a lost cause.I suggest you take your child to go see a hematologist they are who deals with this kind of illness and know about all of the treatments available and i believe there are pediatric ones out there.Can i ask what your pediatrician has done to get your childs platelet count back up?
hope this helps you , if you need any more info please don't hesitate to ask.
SapphireChild
| 
Linear Mode
