I just found out that my 10 month old daughter has a high platelet count. In a routine 10 month CBC (Complete Blood Count) we found out that her platelet count was 2.9 Million. When we found out we took her to a hematologist. We are trying to find out all we can so I decided to post this message.
I am going through the same thing My baby girl (6 months)was found to have High Platlet count during a routine CBC, it was first 605, then they started giving her monthly tests. (MAY)750, then (JUNE)835, then it went to (JULY)385. She was tested last week at (AUG)612.
The Dr's havent given us any diagnoses, they are just watching and waiting. Our Specialist said it is most likly related to an infection or Iron deficiency. We had thought she was back to normal last month when she had the 385, but now that she tested 612 last week, I have no idea what to expect.
My daughter's platelets were much higher than that. Aug 11 they were 2.9 million/ml on Aug 12 they were 2 million/ml on Aug 13 they were 2.4 million/ml on Aug 20 they were 1.6 million/ml on Aug 24 they were 1.274 million/ml on Aug 27 they were 1 million 8 hundred thousand/ml and she will be tested tomorrow and hopefuly we will see them under 1 million. The hemitologist thinks that she has reactive thrombocytosis due to infection in the body. (ie ear infection) she was on 20 mg asaprin from Aug 11 untill Aug 24 to keep the blood thin. you may want to do a little research on thrombocytosis. There are many types of this. She had some pretty bad bruises on her when we went for a routine cbc and found out about it. Thank God for "well checks" at the peds!
Thanks for the reply, I understand your daughters was higher, there is just so little info on this for infants. There is plenty for low counts but not much at all for high.
Our Hemotologist told us they thought she had a reaction to an infection or virus. Me and my wife both had Strep throat the week of the first CBC, when they tested her hemo. I did read that infants under a year often have higher counts anyway. (I'll try and locate the study, online and post the link) And that Essential or Primary thrombocytosis is usualy only attributed to the older population 50-70 age range.
From reading medical texts, high platlet counts in infants 95% of the time is reactive or secondary thrombocytosis. Were her RGB normal, I was told my girls is in the normal "adult" range.
I'm getting frustrated with her getting poked all the time, and not to mention having to take her through the cancer center where our Hemo works. And just looking for any info out there.
In our daughters case they think it is reactive, we go this morning for another set of test and hopefully the count has continued to come down.
She had an ear infection that we thought had cleared up after 10 days of medication, then she got a cold, and then as she was getting over the cold she had another ear infection, likely the same ear infection as before. This is when we noticed the high counts after her being sick for about 5 weeks with various things. Her other blood counts were all normal, it was just the platelets that were high.
Our pediatric hemo doesn't seem to be to worried as long as the counts are below a million, and I have seen many stories of people who have slightly higher counts without any associated medical problems. If you babies counts continue to go up I would look for some type of infection that might be hanging around.
I understand your frustration, there really isn't much good information out there on this for infants. If my wife or I find out any information we will be sure to pass it along, and please do the same.