Factor V Leiden - anyone have it? - Blood and Blood Vessel Message Board

acbuchan · 05-09-2003, 11:13 AM

Hi just wondering if any of you knowledgeable sould knows anything about Factor 5 Leiden? I have it and so does most of my family and children. Just wanting to know more, not easy to find on the net, I keep just finding the factor 5 not the Leiden bit. Thanks

SnowyLynne63 · 05-09-2003, 02:48 PM

Type it in your browser,you'll find it..........

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Lynne

acbuchan · 05-10-2003, 07:37 AM

Im sorry perhaps I should have been more specific. I have looked through the information on the net.What little there is, considering how prevelent factor V Leiden is. I was wanting a more personal opinion really. Like what is it like to have it,i.e anyone who has had problems, are they that frequent, problems in pregnancy (it has been suggested to me that that is why my son has a muscular/neurological disorder, they think that maybe somehow he developed a clot? or I passed one one through the umb. cord. Anyway I was just seeking personal opinions, not cold computer generated stuff - that at the best of times is confusing medical lingo. Thanks

jcove · 05-23-2003, 09:33 PM

I don't know if this helps any but when we were told my son had a stroke inutero they did many tests and of course some were blood tests at the hemotologist's office. My son was tested for the factor 5 leiden and we were told that was why he had the stroke. My older son was tested as well and was positive as was I who passed it on to them. My oldest was and is fine. We were given a list of things that they both need to stay away from in order to not get blood clots. To our surprise after a miscarriage we found out the stroke was not from that it was because my husband has an antigen in his blood that I do not. So my body makes antibodies to fight the foreign antigen. We are now in the low percentage of NAIT patients (neonatal alloimmune thromboyctopenia) So basically the information we were given by the hemotologist did not mean a thing because after further testing and seeing a high risk doctor we found out other info. The high risk doctor also said there has never been a case where a child has suffered a stroke due to this blood problem. Who knows?
Jcove

GiMMiE BiG MaC · 05-25-2003, 08:55 PM

hi i have factor 5 lieden. i just found out i had it like last year i think and dont really know much about except that it couses blood clotting. im not supposed to take things like birth control pills and my mom has it and has to take coumadin. that about all i know. can someone tell me some more about it like what causes it? is it rare? and i also wanna know if its an autoimmune disorder and if it is, what is it that ur body is detroying? i cant really find much information about it online. thanx...